Longitudinal Changes in Health-Related Quality of Life for Chronic Diseases: An Example in Hemophilia A
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  • 作者:Jiat-Ling Poon PhD (1)
    Jason N. Doctor PhD (1)
    Michael B. Nichol PhD (1)

    1. University of Southern California
    ; School of Pharmacy ; 1985 Zonal Ave ; PSC 206-BE ; Los Angeles ; CA ; 90089 ; USA
  • 关键词:health ; related quality of life ; hemophilia A ; longitudinal ; chronic disease ; rare disease
  • 刊名:Journal of General Internal Medicine
  • 出版年:2014
  • 出版时间:August 2014
  • 年:2014
  • 卷:29
  • 期:3-supp
  • 页码:760-766
  • 全文大小:222 KB
  • 参考文献:1. World Federation of Hemophilia. Guidelines for the Management of Hemophilia: World Federation of Hemophilia; 2005.
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    4. Lindvall, K, Mackensen, S, Berntorp, E (2012) Quality of life in adult patients with haemophilia鈥攁 single centre experience from Sweden. Haemophilia 18: pp. 527-531 CrossRef
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    6. Zhou, ZY, Wu, J, Baker, J, Curtis, R, Forsberg, A, Huszti, H (2011) Haemophilia utilization group study鈥擯art Va (HUGS Va): design, methods and baseline data. Haemophilia 17: pp. 729-736
    7. Poon, JL, Zhou, ZY, Doctor, JN, Wu, J, Ullman, MM, Ross, C (2012) Quality of life in haemophilia A: Hemophilia Utilization Group Study Va (HUGS-Va). Haemophilia 18: pp. 699-707 CrossRef
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    14. Varni, JW, Limbers, CA, Burwinkle, TM (2007) Parent proxy-report of their children鈥檚 health-related quality of life: an analysis of 13,878 parents鈥?reliability and validity across age subgroups using the PedsQL 4.0 Generic Core Scales. Health Qual Life Outcomes 5: pp. 2 CrossRef
    15. Bryk, AS, Raudenbush, SW (1987) Application of Hierarchical Linear-Models to Assessing Change. Psychol Bull 101: pp. 147-158 CrossRef
    16. MacCallum, RC, Kim, C, Malarkey, WB, KiecoltGlaser, JK (1997) Studying multivariate change using multilevel models and latent curve models. Multivar Behav Res 32: pp. 215-253 CrossRef
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  • 刊物主题:Internal Medicine;
  • 出版者:Springer US
  • ISSN:1525-1497
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