Identification of areas of functioning and disability addressed in inflammatory bowel disease-specific patient reported outcome measures

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• 作者：Ulrike Achleitner^a ; Michaela Coenen^a ; Jean-Fré ; dé ; ric Colombel^b ; Laurent Peyrin-Biroulet^c ; Narine Sahakyan^a ; Alarcos Cieza^a ; ^d ; ^{alarcos.cieza@med.lmu.de}
• 关键词：CGQL ; Cleveland Global Quality of Life ; CENTRAL ; Cochrane Central Register of Controlled Trials ; CINAHL ; Cumulative Index to Nursing and Allied Health Literature ; EMBASE ; Excerpta Medica Database ; IBDQOL ; Inflammatory Bowel Disease Quality of Life Questio
• 刊名：Journal of Crohn's and Colitis
• 出版年：2012
• 期刊代码：pca215_18739946
• 类别：med
• 出版时间：June, 2012
• 卷：6
• 期：5
• 页码：507-517
• 文件大小：455 K

摘要

Background and aims

Patient-reported outcome measures (PROMs) make it possible to assess health-status problems from the perspective of persons suffering from a disease. The objective of the paper is to examine and compare the contents of PROMs related to IBD based on the World Health Organization's International Classification of Functioning, Disability and Health (ICF) as the frame of reference.

Methods

A systematic literature review (1999-2009) in the databases Medline, EMBASE, PsycINFO, CINAHL and CENTRAL was performed to select IBD-specific PROMs. Abstracts and full-text articles were checked applying predefined eligibility criteria; IBD-specific PROMs were identified. The contents of the identified PROMs were examined by linking the items to ICF categories. The linked ICF categories of the PROMs were then compared.

Results

The review resulted in the selection of eight IBD-specific PROMs (e.g., Cleveland Global Quality of Life, Inflammatory Bowel Disease Quality of Life Questionnaire, Inflammatory Bowel Disease Questionnaire-32, Rating Form of IBD Patient Concerns, Short Inflammatory Bowel Disease Questionnaire). In total, 129 items were identified, the majority of which (n = 90; 69.8%) could be linked to specific ICF categories. None of the linked categories were contained in all PROMs. The most frequently identified categories were 鈥榖1300 Energy level鈥? 鈥榖5254 Flatulence鈥? 鈥榙910 Community life鈥?and 鈥榙920 Recreation and leisure鈥?

Conclusion

The present study provides an overview of IBD-specific PROMs and their items. The results of the content comparison provide valuable information to facilitate and account for the selection of appropriate PROMs for different purposes of data collection in clinical and research settings.