Structure and process measures of quality of care in adult congenital heart disease patients: A pan-Canadian study

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• 作者：Luc M. Beauchesne^a ; ¹ ; ^{lbeauchesne@ottawaheart.ca} ; Judith Therrien^b ; ¹ ; Nanette Alvarez^c ; ¹ ; Lynn Bergin^d ; ¹ ; Gary Burggraf^e ; ¹ ; Philippe Chetaille^f ; ¹ ; Elaine Gordon^g ; ¹ ; Catherine M. Kells^h ; ¹ ; Marla Kiessⁱ ; ¹ ; Lise-André ; e Mercier^j ; ¹ ; Erwin N. Oechslin^k ; ¹ ; Jeffrey Stein^l ; ¹ ; James W. Tam^m ; ¹ ; Dylan Taylorⁿ ; ¹ ; Anne Williams^o ; ¹ ; Paul Khairy^j ; ¹ ; Andrew S. Mackieⁿ ; ¹ ; Candice K. Silversides^k ; ¹ ; Ariane J. Marelli^b ; ¹
• 关键词：Heart defects ; Congenital ; Quality of care
• 刊名：International Journal of Cardiology
• 出版年：2012
• 期刊代码：128_01675273
• 类别：med
• 出版时间：17 May, 2012
• 卷：157
• 期：1
• 页码：70-74
• 文件大小：213 K

摘要

Background

There are more adults than children with congenital heart disease. Of over 96,000 ACHD patients in Canada, approximately 50%require ongoing expert care. In spite of published recommendations, data on the quality of care for ACHD patients are lacking.

Methods

Survey methodology targeted all Canadian Adult Congenital Heart (CACH) network affiliated ACHD centers. Clinics were asked to prospectively collect outpatient and procedural volumes for 2007. In 2008, centers were surveyed regarding infrastructure, staffing, patient volumes and waiting times.

Results

All 15 CACH network registered centers responded. The total number of patients followed in ACHD clinics was 21,879 (median per clinic = 1132 (IQR: 585, 1816)). Of the total 80 adult and pediatric cardiologists affiliated to an ACHD clinic, only 27%had received formal ACHD training. Waiting times for non-urgent consultations were 4 卤 2 months, and 4 卤 3 months for percutaneous and surgical procedures. These were beyond Canadian recommended targets at 11 sites (73%) for non-urgent consultations, at 8 sites (53%) for percutaneous interventions and 13 sites (87%) for surgery.

Conclusions

Of a minimum number of 96,000 ACHD patients in Canada, only 21,879 were being regularly followed in 2007. At most sites waiting times for ACHD services were beyond Canadian recommended targets. In spite of universal health care access, published guidelines for ACHD patient structure and process measures of health care quality are not being met.