The Caregiver Quality of Life Cystic Fibrosis (CQOLCF) Scale: Modification and validation of an instrument to measure quality of life in cystic fibrosis family caregivers
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- 作者：Whitney Boling ; David M. Macrina and John P. Clancy
- 关键词：Cystic fibrosis ; Family caregivers ; Instrument development ; Quality of life
- 刊名：Quality of Life Research
- 出版时间：December 2003
- 出版年：2003
- 期刊代码：106_09629343
- 类别：bio
- 卷：12
- 期：8
- 页码：1119-1126
- 数据来源：sp
摘要
Objective: Modify the Caregiver Quality of Life Index – Cancer (CQOLC) scale (Weitzner, Jacobsen et al. Qual Life Res 2000; 8: 55–63) as the Caregiver Quality of Life Cystic Fibrosis (CQOLCF) scale, validate it with cystic fibrosis (CF) family caregivers, and assess caregiver quality of life QOL with patient disease severity. Methods: Following modifications, 100 family caregivers were administered the CQOLCF. Construct validity was assessed by the Medical Outcomes Study Short Form (SF-36) and the Beck Depression Inventory (BDI). Pulmonary function scores and hospitalizations assessed relationship between caregiver QOL and patient disease severity. Results: Split-half reliability was 0.862 and internal consistency (Cronbach''s ) was 0.909. As expected, there were relatively high correlations with the mental health (0.634) and emotional distress (–0.687); and low correlations with physical health (0.049). ANCOVA examined differences in the CQOLCF totals based on disease severity, controlling for age. Significant mean differences existed (days hospitalized F = 3.010, sig. = 0.022). Discussion: The CQOLCF appears to be a valid, reliable, and internally consistent disease-specific scale with CF family caregivers. Future research recommendations include administering the CQOLCF to an increased study sample to explore item factor analysis.