脑卒中患者与陪护者生活满意度互为影响研究综述
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摘要
近年来脑卒中的发病率呈上升趋势,它不仅影响到患者个人还影响到其陪护者。由于脑卒中患者的生活满意度对陪护者生活满意度产生影响,后者的生活满意度也影响着前者生活满意度,加上国内外学者对陪护者生活满意度的研究较少的现状,因此研究脑卒中患者和陪护者生活满意度互为影响的理论具有十分重要的意义。文章通过文献回顾,对国内外脑卒中患者和陪护者生活满意度互为影响的理论进行梳理,总结指出研究成果上的不足,并进行未来研究展望。
In recent years,with the rising of incidence of stroke,it not only affects the patients himself but also affects his caregivers. For that patients with stroke have an impact on their caregivers' life satisfaction,and life satisfaction of the latter also affect that of the former,what's more,few domestic and foreign scholars have studied on stroke patient's caregivers' life satisfaction,so it is very important to review the theory of life satisfaction mutual impact between stroke patients and their caregivers. This paper attempts to start from the basic concept of life satisfaction of the stroke patients and their caregivers through literature review,conducts a systematic review of the research progress on the theory of life satisfaction mutual impact between stroke patients and their caregivers at home and abroad,finding the deficiencies in the current theory,giving some suggestion about how to put forward and prospect the research.
In recent years,with the rising of incidence of stroke,it not only affects the patients himself but also affects his caregivers. For that patients with stroke have an impact on their caregivers' life satisfaction,and life satisfaction of the latter also affect that of the former,what's more,few domestic and foreign scholars have studied on stroke patient's caregivers' life satisfaction,so it is very important to review the theory of life satisfaction mutual impact between stroke patients and their caregivers. This paper attempts to start from the basic concept of life satisfaction of the stroke patients and their caregivers through literature review,conducts a systematic review of the research progress on the theory of life satisfaction mutual impact between stroke patients and their caregivers at home and abroad,finding the deficiencies in the current theory,giving some suggestion about how to put forward and prospect the research.
引文
[1]Bakas T,et al.Time and difficulty of tasks provided by family caregivers of stroke survivors[J].Journal of Neuroscience Nursing,2004,36(2):95-106.
[2]Coombs UE.Spousal caregiving for stroke survivors[J].Journal of Neuroscience Nursing,2007,39(2):112-119.
[3]Visser-Meily A,et al.Intervention studies for caregivers of stroke survivors:A critical review[J].Patient Education and Counseling,2005,56(3):257-267.
[4]Visser-Meily A,et al.Psychosocial functioning of spouses in the chronic phase after stroke:improvement or deterioration between1 and 3 years after stroke?[J].Patient Educ Couns,2008,73(1):153-158.
[5]Forsberg-Wrleby G,A Mller,C Blomstrand.Spouses of first-ever stroke patients psychological well-being in the first phase after stroke[J].Stroke,2001,32(7):1646-1651.
[6]Visser-Meily A,et al.Spouses'quality of life1 year after stroke:prediction at the start of clinical rehabilitation[J].Cerebrovascular Diseases,2005,20(6):443-448.
[7]Forsberg-Warleby G,A Moller,C Blomstrand.Spouses of first-ever stroke victims:sense of coherence in the first phase after stroke[J].Journal of Rehabilitation Medicine,2002,34(3):128-133.
[8]Nieboer AP,et al.Spousal caregivers'activity restriction and depression:a model for changes over time[J].Social Science&Medicine,1998,47(9):1361-1371.
[9]Forsberg-Warleby G,A Moller,C Blomstrand.Life satisfaction in spouses of patients with stroke during the first year after stroke[J].Journal of Rehabilitation Medicine,2004,36(1):4-11.
[10]White CL,et al.Long-term caregiving after stroke:the impact on caregivers'quality of life[J].Journal of Neuroscience Nursing,2006,38(5):354-359.
[11]Beth H,WE Haley.Family caregiving for patients with stroke:Review and analysis[J].Stroke,1999,30(7):1478-1485.
[12]Draper BM,et al.A comparison of caregivers for elderly stroke and dementia victims[J].Journal of the American Geriatrics Society,1992,40(9):896-901.
[13]Scholte Op Reimer WJM,et al.Assessment of burden in partners of stroke patients with the sense of competence questionnaire[J].Stroke,1998,29(2):373-379.
[14]Anderson R.The contribution of informal care to the management of stroke[J].Disability&Rehabilitation,1988,10(3):107-112.
[15]Wilkinson PR,et al.A long-term followup of stroke patients[J].Stroke,1997,28(3):507-512.
[16]庞琳,金水高,陈捷.脑卒中患者住院陪护负担分析[J].中国卫生统计,2000,17(2):93-94.
[17]孙海娅.农村地区脑卒中患者家庭陪护人生活质量调查研究[J].济宁医学院学报,2007,30(2):158-160.
[18]龙泳.陕西省汉中市2003年农村脑卒中患者疾病负担的研究[J].疾病控制,2005,9(6):592-595.
[19]杨文君.脑卒中病人主要照顾者预期需求及影响因素研究[J].护理研究,2011,21:1894-186.
[20]王玉龙,申继亮.负担感、照料满意感对家庭照料者情绪的影响[J].心理研究,2012,1:62-65.
[21]王玉龙,申继亮.脑卒中患者功能独立性与家庭照料者负担感的关系:以社会支持为中介变量和调节变量[J].心理科学,2012,1:238-242.
[22]王玉龙,申继亮.脑卒中患者功能独立性、家庭照料者负担感与其负性情绪的关系[J].中国临床心理学,2013,1:133-137.
[23]黄力平.脑卒中患者生活满意度的调查[J].中国康复医学杂志,1998,3:9-12.
[24]姚菊峰.脑卒中患者生活满意度及其影响因素调查分析[J].中华护理,2000,11:43-44.
[25]邹继华.慢性脑卒中患者ADL与生活质量的相关性研究[J].中国实用护理,2004,20(12):4-6.
[26]徐本华,胡永华.脑卒中患者生活质量的研究[J].中国临床康复,2005,1:136-138.
[27]邓秋兰,潘素兰,农兰欣.配偶陪护与保姆陪护对脑卒中患者日常生活能力恢复的影响[J].中国康复理论与实践,2008,14(1):92-94.
[28]邱艳茹,李斯俭.脑卒中患者家庭照顾者的应对方式和抑郁状况的调查[J].解放军护理,2008,25(16):26-29.
[29]严兆娴.脑卒中照顾者自我效能感与患者生活能力相关性研究[J].内蒙古中医药,2010,29(15):102-103.
[30]胡治平.脑卒中患者及家庭照料者生活满意度及其影响因素研究[J].中国临床心理学,1997,1:29-31.
[31]胡洁,王爱红.社区脑卒中病人照顾者生活质量影响因素研究进展[J].护理研究,2010,8:669-671.
[2]Coombs UE.Spousal caregiving for stroke survivors[J].Journal of Neuroscience Nursing,2007,39(2):112-119.
[3]Visser-Meily A,et al.Intervention studies for caregivers of stroke survivors:A critical review[J].Patient Education and Counseling,2005,56(3):257-267.
[4]Visser-Meily A,et al.Psychosocial functioning of spouses in the chronic phase after stroke:improvement or deterioration between1 and 3 years after stroke?[J].Patient Educ Couns,2008,73(1):153-158.
[5]Forsberg-Wrleby G,A Mller,C Blomstrand.Spouses of first-ever stroke patients psychological well-being in the first phase after stroke[J].Stroke,2001,32(7):1646-1651.
[6]Visser-Meily A,et al.Spouses'quality of life1 year after stroke:prediction at the start of clinical rehabilitation[J].Cerebrovascular Diseases,2005,20(6):443-448.
[7]Forsberg-Warleby G,A Moller,C Blomstrand.Spouses of first-ever stroke victims:sense of coherence in the first phase after stroke[J].Journal of Rehabilitation Medicine,2002,34(3):128-133.
[8]Nieboer AP,et al.Spousal caregivers'activity restriction and depression:a model for changes over time[J].Social Science&Medicine,1998,47(9):1361-1371.
[9]Forsberg-Warleby G,A Moller,C Blomstrand.Life satisfaction in spouses of patients with stroke during the first year after stroke[J].Journal of Rehabilitation Medicine,2004,36(1):4-11.
[10]White CL,et al.Long-term caregiving after stroke:the impact on caregivers'quality of life[J].Journal of Neuroscience Nursing,2006,38(5):354-359.
[11]Beth H,WE Haley.Family caregiving for patients with stroke:Review and analysis[J].Stroke,1999,30(7):1478-1485.
[12]Draper BM,et al.A comparison of caregivers for elderly stroke and dementia victims[J].Journal of the American Geriatrics Society,1992,40(9):896-901.
[13]Scholte Op Reimer WJM,et al.Assessment of burden in partners of stroke patients with the sense of competence questionnaire[J].Stroke,1998,29(2):373-379.
[14]Anderson R.The contribution of informal care to the management of stroke[J].Disability&Rehabilitation,1988,10(3):107-112.
[15]Wilkinson PR,et al.A long-term followup of stroke patients[J].Stroke,1997,28(3):507-512.
[16]庞琳,金水高,陈捷.脑卒中患者住院陪护负担分析[J].中国卫生统计,2000,17(2):93-94.
[17]孙海娅.农村地区脑卒中患者家庭陪护人生活质量调查研究[J].济宁医学院学报,2007,30(2):158-160.
[18]龙泳.陕西省汉中市2003年农村脑卒中患者疾病负担的研究[J].疾病控制,2005,9(6):592-595.
[19]杨文君.脑卒中病人主要照顾者预期需求及影响因素研究[J].护理研究,2011,21:1894-186.
[20]王玉龙,申继亮.负担感、照料满意感对家庭照料者情绪的影响[J].心理研究,2012,1:62-65.
[21]王玉龙,申继亮.脑卒中患者功能独立性与家庭照料者负担感的关系:以社会支持为中介变量和调节变量[J].心理科学,2012,1:238-242.
[22]王玉龙,申继亮.脑卒中患者功能独立性、家庭照料者负担感与其负性情绪的关系[J].中国临床心理学,2013,1:133-137.
[23]黄力平.脑卒中患者生活满意度的调查[J].中国康复医学杂志,1998,3:9-12.
[24]姚菊峰.脑卒中患者生活满意度及其影响因素调查分析[J].中华护理,2000,11:43-44.
[25]邹继华.慢性脑卒中患者ADL与生活质量的相关性研究[J].中国实用护理,2004,20(12):4-6.
[26]徐本华,胡永华.脑卒中患者生活质量的研究[J].中国临床康复,2005,1:136-138.
[27]邓秋兰,潘素兰,农兰欣.配偶陪护与保姆陪护对脑卒中患者日常生活能力恢复的影响[J].中国康复理论与实践,2008,14(1):92-94.
[28]邱艳茹,李斯俭.脑卒中患者家庭照顾者的应对方式和抑郁状况的调查[J].解放军护理,2008,25(16):26-29.
[29]严兆娴.脑卒中照顾者自我效能感与患者生活能力相关性研究[J].内蒙古中医药,2010,29(15):102-103.
[30]胡治平.脑卒中患者及家庭照料者生活满意度及其影响因素研究[J].中国临床心理学,1997,1:29-31.
[31]胡洁,王爱红.社区脑卒中病人照顾者生活质量影响因素研究进展[J].护理研究,2010,8:669-671.