遗传性易栓症病人早期疾病体验的质性研究
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摘要
[目的]探讨遗传性易栓症病人早期疾病体验的心理感受,为提高后期治疗的依从性、延续性提供参考依据。[方法]对10例遗传性易栓症病人采用现象学研究方法,访谈资料导入质性分析软件NVivo 10进行数据统计分析,采用Giorgi分析法进行分析。[结果]遗传性易栓症病人早期疾病体验的心理感受包括:疾病相关知识不足、治疗延误行为意向、疾病不确定感、计划生活与寻找新选择、医疗资源匮乏5个主题。[结论]通过加强病人全面心理疏导、延续性规范用药指导、健全各层级医疗体系,提高遗传性易栓症病人后期治疗的依从性、延续性。
引文
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[21] 韦瑜群,李岸花,黄英凡,等.陪护家属心理疏导行为与肝癌住院患者焦虑抑郁的相关性分析[J].中国实用护理杂志,2017,33(8):602.
[22] 刘静.护理干预对提高高血压患者用药依从性的影响[J].中国实用医药,2018,13(4):152-153.
[23] 梁梅冰,郑桂凤,黄贵芝,等.协同护理模式对老年糖尿病患者用药依从性的影响评价[J].中国实用医药,2017,12(19):161-162.
[24] 赵晓宇,郑锐.遗传性易栓症危险因素的研究进展[J].中国全科医学,2014(34):4137-4140.
[25] 赵连兴.静脉血栓栓塞症相关基因研究进展[J].中华急诊医学杂志,2014,23(11):1291-1294.
[2] PREVITALI E.Risk factors for venous and arterial thrombosis[J].Blood Transfus,2011(9):120-138.
[3] MARTINELLI I,STEFANO V D,MANNUCCI P M.Inherited risk factors for venous thromboembolism[J].Nature Reviews Cardiology,2014(11):140-156.
[4] ROSENDAAL F R,REITSMA P H.Genetics of venous thrombosis[J].Thromb Haemost,2009,7(Suppl1):301-304.
[5] NOWAK-G?TTL U,VAN OMMEN H,KENET G,et al.Thrombophilia testing in children:what and when should be tested[J].Thromb Res,2018,164:75-78.
[6] FRANCHINI M,MARTINELLI I.Uncertain thrombophilia markers[J].Thromb Haemost,2016,115(1):25-30.
[7] ARMSTRONG E M,BELLONE J M,HORNSBY L B,et al.Acquired thrombophilia[J].Journal of pharmacy practice,2014,27(3):234-242.
[8] 程子卉,夏海鸥.ICU专科护士培训后工作内容变化的质性研究[J].中华护理杂志,2017,52(12):1427-1431.
[9] GIORGI A.The theory,practice,and evaluation of the phenomeno-logical method as a qualitative research procedure[J].J Phenomenology Psychology,1997,28(2):235-260.
[10] 赵晓宇,郑锐.遗传性易栓症危险因素的研究进展[J].中国全科医学,2014(34):4137-4139.
[11] Gould M K,Garcia D A,Wren S M,et al.Prevention of VTE in nonorthopedic surgical patients:antithrombotic therapy and prevention of thrombosis 9th ed:American College of chest physicians evidence-based clinical practice guidelines j 1[J].Chest,2012,141(2Suppl):e227S-e277S.
[12] LIPPI G,CERVELLIN G,MATTIUZZI C.Red meat,processed meat and the risk of venous thromboembolism:friend or foe[J].Thromb Res,2015,136(2):208-211.
[13] FIELDS H,MILLSTINE D,AGRWAL N,et al.Is meat killing us?[J].J Am Osteopath Assoc,2016,116(5):296-300.
[14] 王蕊琪,周郁秋,贾红红.糖尿病患者治疗延误行为意向的现象学研究[J].护理学杂志,2018,33(3):43-46.
[15] DIDILESCU A C,HANGANU S C,GALIE N,et al.The role of smoking in changing essential parameters in body homeostasis[J].Pneumolosia,2009,58(2):89-94.
[16] 陆光美.手术病人疾病不确定感与舒适度的相关性研究[J].心理医生,2018,24(8):30-32.
[17] 虞亚梅,张永芳,石洁文,等.全程专业护理个案管理对乳腺癌化疗患者疾病不确定感的影响[J].护士进修杂志,2018,33(2):99-111.
[18] 吴莹莹.蛋白S与中国汉族人群静脉血栓形成的关联研究[D].武汉:华中科技大学,2016.
[19] 戴斌,陈文兵.家属同步认知干预对宫颈癌患者心理、行为特征的影响[J].中国现代医生,2015,53(16):50-53.
[20] 余芳,姜涛,赵晶晶.雌孕激素联合心理疏导治疗卵巢早衰的效果[J].中国医药导报,2015,12(26):65-69.
[21] 韦瑜群,李岸花,黄英凡,等.陪护家属心理疏导行为与肝癌住院患者焦虑抑郁的相关性分析[J].中国实用护理杂志,2017,33(8):602.
[22] 刘静.护理干预对提高高血压患者用药依从性的影响[J].中国实用医药,2018,13(4):152-153.
[23] 梁梅冰,郑桂凤,黄贵芝,等.协同护理模式对老年糖尿病患者用药依从性的影响评价[J].中国实用医药,2017,12(19):161-162.
[24] 赵晓宇,郑锐.遗传性易栓症危险因素的研究进展[J].中国全科医学,2014(34):4137-4140.
[25] 赵连兴.静脉血栓栓塞症相关基因研究进展[J].中华急诊医学杂志,2014,23(11):1291-1294.