我国脑卒中患者主要照顾者真实体验质性研究的Meta整合
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摘要
目的系统整合有关我国脑卒中患者主要照顾者的真实体验,为医院、社区更好地开展服务工作提供依据。方法检索PubMed、Web of Science、Elsevier-SDOL、CNKI、万方和维普等数据库,纳入所有相关的质性研究,在进行质量评价之后进行整合与分析。结果共纳入12篇相关文献,将研究结果重新归纳分类,将相似结果归纳组合形成7个新的类别,并综合成3个整合结果,包括照顾者存在多重负担、照顾者渴望得到多方面支持、照顾者不断进行自我调整。结论卫生保健人员需关注脑卒中患者主要照顾者的负担和需求,给予相应的帮助和指导,从而加强主要照顾者的照顾能力,减轻其照顾负担。
Objective To conduct a systematic review on the real experience in primary caregivers of stroke patients and provide evidence-based guidance for delivery of care in hospital and community settings.Methods PubMed,Web of Science,Elsevier-SDOL,CNKI,Wanfang data,CQVIP databases were included to retrieve literatures on real experience in primary caregivers of stroke patients.Results Twelve qualitative studies were sequently integrated into seven categories and finally three integrative results were summarized from the seven categories,the caregivers were over burdened,the caregivers expected multiple support,and the caregivers were constantly adjusting themselves.Conclusion Burden and need in primary caregivers of stroke patients should be paid attention by primary health staff.Help and guidance need to be taken to strengthen their care ability,and reduce burden of primary caregivers.
Objective To conduct a systematic review on the real experience in primary caregivers of stroke patients and provide evidence-based guidance for delivery of care in hospital and community settings.Methods PubMed,Web of Science,Elsevier-SDOL,CNKI,Wanfang data,CQVIP databases were included to retrieve literatures on real experience in primary caregivers of stroke patients.Results Twelve qualitative studies were sequently integrated into seven categories and finally three integrative results were summarized from the seven categories,the caregivers were over burdened,the caregivers expected multiple support,and the caregivers were constantly adjusting themselves.Conclusion Burden and need in primary caregivers of stroke patients should be paid attention by primary health staff.Help and guidance need to be taken to strengthen their care ability,and reduce burden of primary caregivers.
引文
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[22] 吉琳,金瑞华,郑洁,等.以时机理论为基础的居家护理对中青年脑卒中病人自我护理及家庭照顾者照顾能力的影响[J].护理研究,2018,32(9):1393-1397.DOI:10.12102/j.issn.1009-6493.2018.09.016.
[23] 吕露露,郭红,胡力云,等.脑卒中患者照顾者综合照顾能力现状及影响因素分析[J].护理学杂志,2016,31(11):1-4.DOI:10.3870/j.issn.1001-4152.2016.11.001.
[24] 张旭,任蔚虹,泮燕红.家庭赋权方案对首发脑卒中患者主要照顾者的影响研究[J].中华护理杂志,2018,53(2):133-138.DOI:10.3761/j.issn.0254-1769.2018.02.001.
[2] 徐江华,胡慧,王宁.脑卒中患者自我效能感的研究进展[J].中华护理杂志,2014,49(1):87-90.DOI:10.3761/j.issn.0254-1769.2014.01.022.
[3] CAMERON J I,NAGLIE G,SILVER F L,et al.Stroke family caregivers' support needs change across the care continuum:a qualitative study using the timing it right framework[J].Disability and Rehabiltation,2013,35(4):315-324.DOI:10.3109/09638288.2012.691937.
[4] 刘娟娟,刘琪,尹心红,等.脑卒中患者家庭照顾者照顾准备度与疾病不确定感的相关性研究[J].护理管理杂志,2018,18(3):202-206.DOI:10.3969/j.issn.1671-315x.2018.03.012.
[5] 吕露露,郭红,徐小菁,等.脑卒中主要照顾者心理弹性及影响因素研究[J].护理管理杂志,2017,17(6):384-386.
[6] QIU X,JWH S,KOO F K.The influence of Chinese culture on family caregivers of stroke survivors:a qualitative study[J].Journal of Clinical Nursing,2017,27(1-2):309-319.DOI:10.1111/jocn.13947.Epub 2017 Sep 6.
[7] 陈谷兰,李壮苗,何琼霞.脑卒中患者院外延续性护理需求的质性研究[J].齐鲁护理杂志,2015,21(7):1-4.DOI:10.3969/j.issn.1006-7256.2015.07.001.
[8] 江萍,陈晓悦,胡亚平,等.社区脑卒中患者主要照顾者照顾能力及需求的质性研究[J].中国实用护理杂志,2017,33(15):1164-1169.DOI:10.3760/cma.j.issn.1672-7088.2017.15.011.
[9] 秦莹,吴玲,杨婷.脑卒中患者主要照顾者压力源及心理反应的质性研究[J].护士进修杂志,2009,24(4):335-336.
[10] 田雪,于宏利,石蕾,等.高龄失能脑卒中患者配偶照顾者照顾体验的质性研究[J].现代临床护理,2017,16(9):15-19.DOI:10.3969/j.issn.1671-8283.2017.09.004.
[11] 武秋娣,王爱红.卒中患者照顾者照顾感受的质性研究[J].解放军护理杂志,2009,26(13):22-24.DOI:10.3969/j.issn.1008-9993.2009.13.008.
[12] 章微微,王元姣.脑卒中康复患者子女照护体验的质性研究[J].护理学报,2014,21(20):67-69.
[13] 梅永霞,张振香,张艳,等.社区脑卒中患者母亲照顾者照顾体验的质性研究[J].中国卫生事业管理,2014,31(5):389-391.
[14] 黄晓琴,陈碧霞,朱菊媚,等.老年脑卒中患者出院后家庭护理服务需求的质性研究[J].护理学报,2012,19(7):51-53.
[15] 陈素锦,周亚梅,张萍,等.急性出血性脑卒中患者家属真实体验的质性研究[J].中华现代护理杂志,2014,20(4):384-386.DOI:10.3760/j.issn.1674-2907.2014.04.005.
[16] 赵雪萍,薛小玲.脑卒中病人家属照顾者照顾负荷的质性研究[J].护理研究,2011,25(5):415-417.DOI:10.3969/j.issn.1009-6493.2011.05.017.
[17] 吴缨芳.脑卒中患者居家主要照顾者照顾体验的研究[J].中国实用护理杂志,2012,28(增1):13.
[18] 刘娟娟,刘姗,蒋丽琼,等.脑卒中患者主要照顾者准备度现状及影响因素分析[J].中国护理管理,2018,18(1):52-57.DOI:10.3969/j.issn.1672-1756.2018.01.014.
[19] 石丹,李铮.脑卒中居家照顾者负荷干预研究进展[J].护理学杂志,2016,31(17):107-110.DOI:10.3870/j.issn.1001-4152.2016.17.107.
[20] 张建凤,李志菊,王芳云,等.家庭访视对脑卒中患者照顾者照顾负担及积极体验的影响研究[J].中华护理杂志,2017,52(7):830-834.DOI:10.3761/j.issn.0254-1769.2017.07.013.
[21] 朱翠平.农村脑卒中偏瘫患者家庭康复护理干预的效果研究[J].护理管理杂志,2018,18(10):745-748.DOI:10.3969/j.issn.1671-315x.2018.10.015.
[22] 吉琳,金瑞华,郑洁,等.以时机理论为基础的居家护理对中青年脑卒中病人自我护理及家庭照顾者照顾能力的影响[J].护理研究,2018,32(9):1393-1397.DOI:10.12102/j.issn.1009-6493.2018.09.016.
[23] 吕露露,郭红,胡力云,等.脑卒中患者照顾者综合照顾能力现状及影响因素分析[J].护理学杂志,2016,31(11):1-4.DOI:10.3870/j.issn.1001-4152.2016.11.001.
[24] 张旭,任蔚虹,泮燕红.家庭赋权方案对首发脑卒中患者主要照顾者的影响研究[J].中华护理杂志,2018,53(2):133-138.DOI:10.3761/j.issn.0254-1769.2018.02.001.