炎症性肠病患者生活质量与疲乏的相关性研究
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摘要
目的探讨炎症性肠病(IBD)患者生活质量与心理疲乏状况及两者之间的关系,为制定科学的临床干预措施提供依据。方法抽取炎症性肠病患者作为研究对象,采用一般调查量表、中文版炎症性肠病生活质量问卷和中文版多维度疲乏量表评估186例炎症性肠病患者生活质量和心理疲乏的状况并进行相关性分析。结果炎症性肠病患者生活质量与疲乏性呈负相关;多元线性回归分析中教育程度、居住在城市、医疗费用来源、疾病严重程度和疲乏是炎症性肠病患者生活质量的影响因素。结论炎症性肠病患者的生活质量与心理疲乏相关。医护工作者可通过帮助患者自我管理及有效的干预来促进患者身心健康,提高生活质量。
Objective To explore the relationship between life quality and psychological fatigue in patients with inflammatory bowel disease(IBD), to provide evidence for the development of scientific clinical interventions. Methods The convenience sampling method was adopted to enroll IBD patients as study subjects. A total of 186 IBD patients were selected and investigated by the general information questionnaire, the Chinese version questionnaire of life quality in inflammatory bowel disease patients and the Chinese multi-dimensional fatigue scale. We then analyzed the correlation between life quality and psychological fatigue. Results We observed a negative correlation between life quality and fatigue in IBD patients. Multi-variate linear regression showed education level, residence, medical expense source, disease severity, and fatigue were influencing factors of the quality of life in IBD patients. Conclusion The quality of life in patients with IBD was related to psychological fatigue. Health care workers can promote patients' physical and mental health and improve their quality of life by helping them to manage themselves and effectively intervene.
Objective To explore the relationship between life quality and psychological fatigue in patients with inflammatory bowel disease(IBD), to provide evidence for the development of scientific clinical interventions. Methods The convenience sampling method was adopted to enroll IBD patients as study subjects. A total of 186 IBD patients were selected and investigated by the general information questionnaire, the Chinese version questionnaire of life quality in inflammatory bowel disease patients and the Chinese multi-dimensional fatigue scale. We then analyzed the correlation between life quality and psychological fatigue. Results We observed a negative correlation between life quality and fatigue in IBD patients. Multi-variate linear regression showed education level, residence, medical expense source, disease severity, and fatigue were influencing factors of the quality of life in IBD patients. Conclusion The quality of life in patients with IBD was related to psychological fatigue. Health care workers can promote patients' physical and mental health and improve their quality of life by helping them to manage themselves and effectively intervene.
引文
1王莹,马颖丽.炎症性肠病患者疲乏的护理现状[J].天津护理,2016,24(5):464-466.
2邱云香,朱嘉鹛,丁敏,等.炎症性肠病病人生活质量的质性研究[J].全科护理,2017,15(32):3984-3986.
3 Ng SC,Tang W,Ching JY,et al.Incidence and phenotype of inflammatory bowel disease based on results from the Asia-pacific Crohn’s and colitis epidemiology study[J].Gastroenterology,2013,145(1):158-165.
4 Grimstad T,Norheim KB,Isaksen K,et al.Fatigue in newly diagnosed inflammatory bowel disease[J].Journal of Crohn’s and Colitis,2015,9(9):725-730.
5 Stjernman H,Tysk C,Almer S,et al.Worries and concerns in a large unselected cohort of patients with Crohn’s disease[J].Scandinavian journal of gastroenterology,2010,45(6):696-706.
6杨红,钱家鸣.炎症性肠病诊断与治疗的共识意见(2012年·广州)溃疡性结肠炎治疗部分解读[J].胃肠病学,2012,17(12):724-727.
7 Guyatt G,Mitchell A,Irvine EJ,et al.A new measure of health status for clinical trials in inflammatory bowel disease[J].Gastroenterology,1989,96(3):804-810.
8周璐,陆星华.炎症性肠病患者的健康相关生存质量[J].中华内科杂志,2004,43(5):392-393.
9 Smets EMA,Garssen B,Bonke B,et al.The Multidimensional Fatigue Inventory(MFI)psychometric qualities of an instrument to assess fatigue[J].Journal of psychosomatic research,1995,39(3):315-325.
10苗雨,刘晓虹,刘伟志,等.多维疲劳量表中文版在军队基层医护人员中的初步修订[J].中国心理卫生杂志,2008,22(9):658-660,668.
11徒文静,徐桂华.自我管理理论在炎症性肠病患者中的应用研究进展[J].中华护理杂志,2014,49(2):220-225.
12 Hirsch JK,Sirois FM.Hope and fatigue in chronic illness:The role of perceived stress[J].Journal of health psychology,2016,21(4):451-456.
13张婷,李惠萍,窦婉君,等.老年乳腺癌患者心理韧性现状及影响因素研究[J].中国全科医学,2015,18(7):823-826.
14 Denvir MA,Lee AJ,Rysdale J,et al.Influence of socioeconomic status on clinical outcomes and quality of life after percutaneous coronary intervention[J].Journal of Epidemiology&Community Health,2006,60(12):1085-1088.
15李莎,林征,卞秋桂,等.炎症性肠病患者生活质量与心理韧性的相关性研究[J].中华行为医学与脑科学杂志,2017,26(3):271-275.
16 Chang JA,Curtis JR,Patrick DL,et al.Assessment of healthrelated quality of life in patients with interstitial lung disease[J].Chest,1999,116(5):1175-1182.
2邱云香,朱嘉鹛,丁敏,等.炎症性肠病病人生活质量的质性研究[J].全科护理,2017,15(32):3984-3986.
3 Ng SC,Tang W,Ching JY,et al.Incidence and phenotype of inflammatory bowel disease based on results from the Asia-pacific Crohn’s and colitis epidemiology study[J].Gastroenterology,2013,145(1):158-165.
4 Grimstad T,Norheim KB,Isaksen K,et al.Fatigue in newly diagnosed inflammatory bowel disease[J].Journal of Crohn’s and Colitis,2015,9(9):725-730.
5 Stjernman H,Tysk C,Almer S,et al.Worries and concerns in a large unselected cohort of patients with Crohn’s disease[J].Scandinavian journal of gastroenterology,2010,45(6):696-706.
6杨红,钱家鸣.炎症性肠病诊断与治疗的共识意见(2012年·广州)溃疡性结肠炎治疗部分解读[J].胃肠病学,2012,17(12):724-727.
7 Guyatt G,Mitchell A,Irvine EJ,et al.A new measure of health status for clinical trials in inflammatory bowel disease[J].Gastroenterology,1989,96(3):804-810.
8周璐,陆星华.炎症性肠病患者的健康相关生存质量[J].中华内科杂志,2004,43(5):392-393.
9 Smets EMA,Garssen B,Bonke B,et al.The Multidimensional Fatigue Inventory(MFI)psychometric qualities of an instrument to assess fatigue[J].Journal of psychosomatic research,1995,39(3):315-325.
10苗雨,刘晓虹,刘伟志,等.多维疲劳量表中文版在军队基层医护人员中的初步修订[J].中国心理卫生杂志,2008,22(9):658-660,668.
11徒文静,徐桂华.自我管理理论在炎症性肠病患者中的应用研究进展[J].中华护理杂志,2014,49(2):220-225.
12 Hirsch JK,Sirois FM.Hope and fatigue in chronic illness:The role of perceived stress[J].Journal of health psychology,2016,21(4):451-456.
13张婷,李惠萍,窦婉君,等.老年乳腺癌患者心理韧性现状及影响因素研究[J].中国全科医学,2015,18(7):823-826.
14 Denvir MA,Lee AJ,Rysdale J,et al.Influence of socioeconomic status on clinical outcomes and quality of life after percutaneous coronary intervention[J].Journal of Epidemiology&Community Health,2006,60(12):1085-1088.
15李莎,林征,卞秋桂,等.炎症性肠病患者生活质量与心理韧性的相关性研究[J].中华行为医学与脑科学杂志,2017,26(3):271-275.
16 Chang JA,Curtis JR,Patrick DL,et al.Assessment of healthrelated quality of life in patients with interstitial lung disease[J].Chest,1999,116(5):1175-1182.