国外家庭参与式综合管理在NICU中的应用现状及对我国的启示
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摘要
文章指出了家庭参与式综合管理的理论基础,综述了家庭参与式综合管理小组成员组成、物理环境、健康教育、患儿父母参与护理、同伴支持及实施后的效果,提出了展望,即开展家长参与式综合管理护士培训与教育、配备家庭参与式综合管理硬件设施、加大人力资源投入、延长我国NICU家长的探视时间、加强同伴教育的实施,旨在为家庭参与式综合管理在新生儿的应用提供参考,降低患儿母亲分离性焦虑,促进患儿生长发育。
The oretical basis of family integrated care,the team members,physical environment,education,integrating parents into the care team,peer support and clinical outcomes in neonatal intensive care unit were reviewed in this paper.Some suggestions were recommended,such as organizing family integrated care nurse training and education,equipping with family integrated care hardware facilities,increasing the investment of human resources and parents' visiting time in neonatal intensive care unit,and promoting peer education.This would provide reference for the application of family integrated care,decrease separation anxiety and promote the growth of neonates.
The oretical basis of family integrated care,the team members,physical environment,education,integrating parents into the care team,peer support and clinical outcomes in neonatal intensive care unit were reviewed in this paper.Some suggestions were recommended,such as organizing family integrated care nurse training and education,equipping with family integrated care hardware facilities,increasing the investment of human resources and parents' visiting time in neonatal intensive care unit,and promoting peer education.This would provide reference for the application of family integrated care,decrease separation anxiety and promote the growth of neonates.
引文
[1]吴本清.新生儿危重症监护诊疗与护理[M].北京:人民卫生出版社,2009:20.
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[17]姚婉晴,陈海花,张岚,等.国外早产儿连续护理现状及对我国的启示[J].护理管理杂志,2017,17(2):109-111.
[18]宋婷婷,张秀英,张岚,等.新生儿重症监护室患儿家属焦虑状况研究进展[J].中国护理管理,2012,12(6):81-83.DOI:10.3969/j.issn.1672-1756.2012.06.025.
[19]何克勤,李小华,魏琴,等.对早产儿家长实施系统健康教育的方法及效果评价[J].护理管理杂志, 2010,10(5):375-376.
[20]姚文英,张莉,谢安慰,等.住院患儿父母参与照护项目问卷研制及信效度分析[J].护理管理杂志, 2018,18(1):8-11. DOI:10.3969/j. issn.1671-315x. 2018. 01.002.
[21]VOOS K C,MILLER L,PARK N,et al.Promoting familycentered care in the NICU through a parent-to-parent man-ager position[J].Advances in Neonatal Care,2015,15(2):119-124.DOI:10.1097/ANC.0000000000000136.
[22]何悦,陈京立.以家庭为中心的护理在新生儿重症监护室的应用现状[J].解放军护理杂志,2014,31(7):29-32.DOI:10.3969/j.issn.1008-9993.2014.07.008.
[23]何叶,王俊星,何伟明,等.同伴支持对社区空巢老年糖尿病患者自我管理行为及生活质量的影响[J].护理管理杂志,2013,13(1):49-51.
[24]朱文娟,吴爱玲,杨群英.同伴支持小组协同护理模式对肠造口患者自我护理和适应水平的影响[J].护理学杂志,2015,30(4):5-8.DOI:10.3870/hlxzz.2015.04.005.
[25]MILES M S,FUNK S G,CARLSON J. Parental StressorScale:neonatal intensive care unit[J].Nursing Research,1993,42(3):148-152.
[26]PREYDE M,ARDAL F.Effectiveness of a parent “buddy”program for mothers of very preterm infants in a neonatalintensive care unit[J].CMAJ:Canadian Medical Associa-tion Journal,2003,168(8):969-973.
[27]周明芳,刘蕾,王楠,等.母婴分离早产儿母亲母乳喂养体验的质性研究[J].护理管理杂志,2011,11(12):837-840.
[28]PAUDEL D,SHRESTHA I B,SIEBECK M,et al.Impact ofthe community-based newborn care package in Nepal:aquasi-experimental evaluation[J]. BMJ Open, 2017,7(10):e15285.DOI:10.1136/bmjopen-2016-015285.
[29]盛芝仁,陈燕,柳春波,等.强化父亲参与和支持策略对促进母乳喂养实践的效果评价[J].中国护理管理,2017,17(3):397-400.DOI:10.3969/j.issn.1672-1756.2017.03.026.
[30]施姝澎,张玉侠.NICU母乳喂养策略的研究现况[J].中华护理杂志,2015,50(5):608-613.DOI:10.3761/j.issn.0254-1769.2015.05.021.
[31]MOFID L S,CASAPíA M,AGUILAR E,et al.A doubleblind randomized controlled trial of maternal postpartumdeworming to improve infant weight gain in the peruvianamazon[J]. PLOS Neglected Tropical Diseases, 2017,11(1):e0005098.DOI:10.1371/journal.pntd.0005098.
[32]BENZIES K M,MAGILL-EVANS J E,HAYDEN K A,et al.Key components of early intervention programs for pre-term infants and their parents:a systematic review and me-ta-analysis[J]. BMC Pregnancy&Childbirth, 2013,13(1):S10.DOI:10.1186/1471-2393-13-S1-S10.
[33]刘桂华,钱小芳,欧萍,等.延续护理干预对极低及超低出生体重早产儿生长发育的影响[J].中华护理杂志,2015,50(6):697-703.DOI:10.3761/j.issn.0254-1769.2015.06.012.
[34]TANEJA S,BAHL S,MAZUMDER S,et al.Impact on ineq-uities in health indicators:effect of implementing the inte-grated management of neonatal and childhood illness pro-gramme in Haryana,India[J]. Journal of Global Health,2015,5(1):010401.DOI:10.7189/jogh.05.010401.
[35]伍金林,曾振锚.极低出生体重儿支气管肺发育不良的营养管理进展[J/OL].中华妇幼临床医学杂志(电子版),2009,5(3):83-86.DOI:10.3969/j.issn.1673-5250.2009.03.026.
[36]马兰,陶亚琴,凌慧.NICU早产儿母亲疾病不确定感的影响因素分析[J].护理学杂志,2017,32(7):71-73.DOI:10.3870/j.issn.1001-4152.2017.07.071.
[37]尹志勤,吴艳华,李一美.新生儿重症监护病房患儿母亲的护理需求调查及影响因素分析[J].护理与康复,2010,9(10):842-844.DOI:10.3969/j.issn.1671-9875.2010.10.006.
[38]王黎,郭红艳,谢红.国内外长期护理机构护理人员资质及培训现状研究[J].护理管理杂志,2014,14(8):555-557.
[39]周明芳,藤本荣子,晏玲,等.新生儿重症监护室出院早产儿母亲育儿生活体验的质性研究[J].中华护理杂志,2012,47(8):680-682. DOI:10. 3761/j. issn. 0254-1769.2012.08.002.
[2]周明芳,晏玲,刘蕾,等.NICU出院早产儿母亲角色适应的心理体验[J].中华护理杂志, 2011, 46(11):1057-1060.DOI:10.3761/j.issn.0254-1769.2011.11.002.
[3]RAISKILA S,AXELIN A,TOOME L,et al. Parents'pres-ence and parent-infant closeness in 11 neonatal intensivecare units in six European countries vary between and with-in the countries[J]. Acta Paediatrica, 2017, 106(6):878-888.DOI:10.1111/apa.13798.
[4]SHIRAZI Z H,SHARIF F,RAKHSHAN M,et al.Lived ex-perience of caregivers of family-centered care in the neo-natal intensive care unit:"evocation of being at home"[J].Iranian Journal of Pediatrics,2016,26(5):e3960.DOI:10.5812/ijp.3960.
[5]STEFANA A,LAVELLI M. Parental engagement and earlyinteractions with preterm infants during the stay in the neo-natal intensive care unit:protocol of a mixed-method andlongitudinal study[J]. BMJ Open, 2017, 7(2):e13824.DOI:10.1136/bmjopen-2016-013824.
[6]FINLAYSON K,DIXON A,SMITH C,et al.Mothers'per-ceptions of family centred care in neonatal intensive care u-nits[J]. Sexual&Reproductive Healthcare,2014,5(3):119-124.DOI:10.1016/j.srhc.2014.06.003.
[7]GALARZA-WINTON M E,DICKY T,Oê1/4LEARY L,et al.Implementing Family-Integrated Care in the NICU:edu-cating nurses[J].Advances in Neonatal Care,2013,13(5):335-340.DOI:10.1097/ANC.0b013e3182a14cde.
[8]O'BRIEN K,BRACHT M,MACDONELL K,et al. A pilotcohort analytic study of family integrated care in a Canadianneonatal intensive care unit[J].BMC Pregnancy and Child-birth,2013,13(Suppl 1):S12.DOI:10.1186/1471-2393-13-S1-S12.
[9]向希盈,李颖,李卓颖,等.中国新生儿重症监护病房中实施家长参与早产儿住院期间综合管理与常规护理平行对照研究[J].中国循证儿科杂志,2016,11(3):177-181.DOI:10.3969/j.issn.1673-5501.2016.03.004.
[10]何利,谭彦娟,黑明燕.新生儿重症监护病房实施家庭参与式综合管理对住院早产儿母亲紧张焦虑情绪影响的自身前后对照研究[J].中国循证儿科杂志,2015,10(6):409-413.DOI:10.3969/j.issn.1673-5501.2015.06.003.
[11]HEI M,GAO X,GAO X,et al.Is family integrated care inneonatal intensive care units feasible and good for preterminfants in China:study protocol for a cluster randomizedcontrolled trial[J].Trials,2016,17(1):22.DOI:10.1186/s13063-015-1152-9.
[12]LEVIN A. The mother-infant unit at Tallinn Children'sHospital,Estonia:a truly baby-friendly unit[J]. Birth,1994,21(1):39-46.
[13]LEVIN A.Humane neonatal care initiative[J].Acta Paedi-atrica,1999,88(4):353-355.
[14]MACDONELL K,CHRISTIE K,ROBSON K,et al.Imple-menting family-integrated care in the NICU:engaging vet-eran parents in program design and delivery[J].Advancesin Neonatal Care,2013,13(4):262-269.
[15]BRACHT M,O'LEARY L,LEE S K,et al. Implementingfamily-integrated care in the NICU[J].Advances in Neo-natal Care,2013,13(2):115-126. DOI:10. 1097/ANC.0b013e318285fb5b.
[16]SAMRA H A,DUTCHER J,MCGRATH J M,et al.Effectof skin-to-skin holding on stress in mothers of late-pre-term infants[J].Advances in Neonatal Care,2015,15(5):354-364.DOI:10.1097/ANC.0000000000000223.
[17]姚婉晴,陈海花,张岚,等.国外早产儿连续护理现状及对我国的启示[J].护理管理杂志,2017,17(2):109-111.
[18]宋婷婷,张秀英,张岚,等.新生儿重症监护室患儿家属焦虑状况研究进展[J].中国护理管理,2012,12(6):81-83.DOI:10.3969/j.issn.1672-1756.2012.06.025.
[19]何克勤,李小华,魏琴,等.对早产儿家长实施系统健康教育的方法及效果评价[J].护理管理杂志, 2010,10(5):375-376.
[20]姚文英,张莉,谢安慰,等.住院患儿父母参与照护项目问卷研制及信效度分析[J].护理管理杂志, 2018,18(1):8-11. DOI:10.3969/j. issn.1671-315x. 2018. 01.002.
[21]VOOS K C,MILLER L,PARK N,et al.Promoting familycentered care in the NICU through a parent-to-parent man-ager position[J].Advances in Neonatal Care,2015,15(2):119-124.DOI:10.1097/ANC.0000000000000136.
[22]何悦,陈京立.以家庭为中心的护理在新生儿重症监护室的应用现状[J].解放军护理杂志,2014,31(7):29-32.DOI:10.3969/j.issn.1008-9993.2014.07.008.
[23]何叶,王俊星,何伟明,等.同伴支持对社区空巢老年糖尿病患者自我管理行为及生活质量的影响[J].护理管理杂志,2013,13(1):49-51.
[24]朱文娟,吴爱玲,杨群英.同伴支持小组协同护理模式对肠造口患者自我护理和适应水平的影响[J].护理学杂志,2015,30(4):5-8.DOI:10.3870/hlxzz.2015.04.005.
[25]MILES M S,FUNK S G,CARLSON J. Parental StressorScale:neonatal intensive care unit[J].Nursing Research,1993,42(3):148-152.
[26]PREYDE M,ARDAL F.Effectiveness of a parent “buddy”program for mothers of very preterm infants in a neonatalintensive care unit[J].CMAJ:Canadian Medical Associa-tion Journal,2003,168(8):969-973.
[27]周明芳,刘蕾,王楠,等.母婴分离早产儿母亲母乳喂养体验的质性研究[J].护理管理杂志,2011,11(12):837-840.
[28]PAUDEL D,SHRESTHA I B,SIEBECK M,et al.Impact ofthe community-based newborn care package in Nepal:aquasi-experimental evaluation[J]. BMJ Open, 2017,7(10):e15285.DOI:10.1136/bmjopen-2016-015285.
[29]盛芝仁,陈燕,柳春波,等.强化父亲参与和支持策略对促进母乳喂养实践的效果评价[J].中国护理管理,2017,17(3):397-400.DOI:10.3969/j.issn.1672-1756.2017.03.026.
[30]施姝澎,张玉侠.NICU母乳喂养策略的研究现况[J].中华护理杂志,2015,50(5):608-613.DOI:10.3761/j.issn.0254-1769.2015.05.021.
[31]MOFID L S,CASAPíA M,AGUILAR E,et al.A doubleblind randomized controlled trial of maternal postpartumdeworming to improve infant weight gain in the peruvianamazon[J]. PLOS Neglected Tropical Diseases, 2017,11(1):e0005098.DOI:10.1371/journal.pntd.0005098.
[32]BENZIES K M,MAGILL-EVANS J E,HAYDEN K A,et al.Key components of early intervention programs for pre-term infants and their parents:a systematic review and me-ta-analysis[J]. BMC Pregnancy&Childbirth, 2013,13(1):S10.DOI:10.1186/1471-2393-13-S1-S10.
[33]刘桂华,钱小芳,欧萍,等.延续护理干预对极低及超低出生体重早产儿生长发育的影响[J].中华护理杂志,2015,50(6):697-703.DOI:10.3761/j.issn.0254-1769.2015.06.012.
[34]TANEJA S,BAHL S,MAZUMDER S,et al.Impact on ineq-uities in health indicators:effect of implementing the inte-grated management of neonatal and childhood illness pro-gramme in Haryana,India[J]. Journal of Global Health,2015,5(1):010401.DOI:10.7189/jogh.05.010401.
[35]伍金林,曾振锚.极低出生体重儿支气管肺发育不良的营养管理进展[J/OL].中华妇幼临床医学杂志(电子版),2009,5(3):83-86.DOI:10.3969/j.issn.1673-5250.2009.03.026.
[36]马兰,陶亚琴,凌慧.NICU早产儿母亲疾病不确定感的影响因素分析[J].护理学杂志,2017,32(7):71-73.DOI:10.3870/j.issn.1001-4152.2017.07.071.
[37]尹志勤,吴艳华,李一美.新生儿重症监护病房患儿母亲的护理需求调查及影响因素分析[J].护理与康复,2010,9(10):842-844.DOI:10.3969/j.issn.1671-9875.2010.10.006.
[38]王黎,郭红艳,谢红.国内外长期护理机构护理人员资质及培训现状研究[J].护理管理杂志,2014,14(8):555-557.
[39]周明芳,藤本荣子,晏玲,等.新生儿重症监护室出院早产儿母亲育儿生活体验的质性研究[J].中华护理杂志,2012,47(8):680-682. DOI:10. 3761/j. issn. 0254-1769.2012.08.002.