多学科协作模式在肾病综合征患儿家庭管理中的应用
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摘要
目的:探讨多学科协作模式在肾病综合征(NS)患儿家庭管理中的应用效果。方法:将2016年7～12月收治的60例患儿为对照组,仅接受肾病综合征常规护理;将2017年1～6月收治的60例患儿为观察组,采用多学科协作模式;于干预前、干预6个月后应用家庭管理测量量表(Fa MM)、儿童生存质量普适性核心量表(Peds QLTM)评价干预效果。结果:干预6个月后,观察组Fa MM中患儿日常生活、疾病管理能力、父母相互支持3个分量表得分明显高于对照组(P <0. 05),而疾病管理困难、疾病精力消耗、疾病相关担心3个分量表得分明显低于对照组(P <0. 05);干预6个月后,观察组Peds QLTM总分及情感功能、社会功能、角色功能3个维度得分均明显高于对照组(P <0. 05)。结论:采用多学科协作模式对NS患儿进行家庭管理干预,可以改善患儿的家庭管理状况,提高患儿的生存质量,值得临床推广。
Objective: To explore the application effects of multidisciplinary collaboration model in family management of children with nephrotic syndrome( NS). Methods: 60 children admitted from July to December 2016 were in the control group,and only received routine care for nephrotic syndrome; 60 children admitted from January to June 2017 were observed groups and adopted a multidisciplinary collaboration model; The interventional effect was assessed using the Family Management Measurement Scale( Fa MM) and the Child Quality of Life Universal Scale( Peds QLTM) before intervention and 6 months after intervention. Results: After 6 months of intervention,the scores of daily life,disease management ability and parental support of the subgroups in the observation group were significantly higher than those in the control group( P < 0. 05). The scores of disease management,disease energy consumption,and disease-related concerns were significantly lower than those of the control group( P < 0. 05). After 6 months of intervention,the scores of Peds QLTM and emotional function,social function and role function in the observation group were significantly higher than those in the control group( P < 0. 05). Conclusion: The use of multidisciplinary collaboration mode for family management intervention in children with NS can improve the family management status of children and improve the quality of life of children,which is worthy of clinical promotion.
Objective: To explore the application effects of multidisciplinary collaboration model in family management of children with nephrotic syndrome( NS). Methods: 60 children admitted from July to December 2016 were in the control group,and only received routine care for nephrotic syndrome; 60 children admitted from January to June 2017 were observed groups and adopted a multidisciplinary collaboration model; The interventional effect was assessed using the Family Management Measurement Scale( Fa MM) and the Child Quality of Life Universal Scale( Peds QLTM) before intervention and 6 months after intervention. Results: After 6 months of intervention,the scores of daily life,disease management ability and parental support of the subgroups in the observation group were significantly higher than those in the control group( P < 0. 05). The scores of disease management,disease energy consumption,and disease-related concerns were significantly lower than those of the control group( P < 0. 05). After 6 months of intervention,the scores of Peds QLTM and emotional function,social function and role function in the observation group were significantly higher than those in the control group( P < 0. 05). Conclusion: The use of multidisciplinary collaboration mode for family management intervention in children with NS can improve the family management status of children and improve the quality of life of children,which is worthy of clinical promotion.
引文
[1]中华医学会儿科学分会肾脏病学组.小儿肾小球疾病的临床分类、诊断及治疗[J].中华儿科杂志,2001,39(12):746-747.(集体作者)
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[4] Jr AG. The effect of multidisciplinary team care on cancer management[J]. Pan African Medical Journal,2011,9(9):20.
[5]高莲英,李娜.多学科合作团队干预模式对喉癌患者术后自我护理能力的影响[J].齐鲁护理杂志,2015,21(14):25-27.
[6]朱庆贤,孙赵娜,吴兰君,等.糖尿病多学科护理团队对妊娠糖尿病患者饮食行为的影响[J].齐鲁护理杂志,2018,24(15):77-79.
[7]卢奕云,田琪,郝元涛,等.儿童生存质量测定量表Peds QLTM4. 0中文版的信度和效度分析[J].中山大学学报(医学科学版),2008,29(3):328-331.
[8]马佳莉,盛楠,丁文雯,等.慢性病患儿过渡期准备对其生活质量的影响[J].中国当代儿科杂志,2018,20(1):60-66.
[9]王文超,张玉侠,顾莺,等.儿童生活质量普遍适用核心量表中文版在儿童气管切开术后的信效度分析[J].护士进修杂志,2017,32(8):691-693.
[10]张显珍,位珍珍,邢娅娜,等.家庭管理水平对儿童哮喘控制水平的影响[J].中国护理管理,2017,17(6):765-769.
[11]刘花艳,朱丽辉,陈丹,等.癫痫患儿家庭管理干预的效果研究[J].中华护理杂志,2017,52(10):1157-1162.
[12] Kim DH,Im YJ. Validity and reliability of Korean version of the Family Management Measure(Korean Fa MM)for families with children having chronic illness[J]. Korean Acad Nurs,2013,43(1):123-132.
[13]张莹.慢性病患儿家庭管理方式及家庭干预效果研究[D].北京:北京协和医学院,2009.
[14] Chen YM,He LP,Mai JC,et al. Validity and reliability of Pediatric Quality of Life Inventory Version 4. 0 Generic Core Scales in Chinese children and adolescents[J]. Zhonghua Liu Xing Bing Xue Za Zhi,2008,29(6):560-563.
[15] Scholten L,Willemen AM,Napoleone E,et al. Moderators of the efficacy of a psychosocial group intervention for children with chronic illness and their parents:what works for whom[J]. Journal of Pediatric Psychology,2015,40(2):214-227.
[16] Mori E,Liu C,Otsuki E,et al. Comparing child-care values in Japan and China among parents with infants[J]. International Journal of Nursing Practice,2012,18(2):18-27.
[17] Lindsay S,Kingsnorth S,Hamdani Y. Barriers and facilitators of chronic illness self-management among adolescents:a review and future directions[J]. Journal of Nursing and Healthcare of Chronic Illness,2011,3(3):186-208.
[2] Wagner EH. The role of patient care teams in chronic disease management[J]. BMJ,2000,320(7234):569-572.
[3] Innocenzi M,D'Eramo G. Multi disciplinary Team in Cancer Management[M]. Berlin:Springer International Publishing,2014:1-9.
[4] Jr AG. The effect of multidisciplinary team care on cancer management[J]. Pan African Medical Journal,2011,9(9):20.
[5]高莲英,李娜.多学科合作团队干预模式对喉癌患者术后自我护理能力的影响[J].齐鲁护理杂志,2015,21(14):25-27.
[6]朱庆贤,孙赵娜,吴兰君,等.糖尿病多学科护理团队对妊娠糖尿病患者饮食行为的影响[J].齐鲁护理杂志,2018,24(15):77-79.
[7]卢奕云,田琪,郝元涛,等.儿童生存质量测定量表Peds QLTM4. 0中文版的信度和效度分析[J].中山大学学报(医学科学版),2008,29(3):328-331.
[8]马佳莉,盛楠,丁文雯,等.慢性病患儿过渡期准备对其生活质量的影响[J].中国当代儿科杂志,2018,20(1):60-66.
[9]王文超,张玉侠,顾莺,等.儿童生活质量普遍适用核心量表中文版在儿童气管切开术后的信效度分析[J].护士进修杂志,2017,32(8):691-693.
[10]张显珍,位珍珍,邢娅娜,等.家庭管理水平对儿童哮喘控制水平的影响[J].中国护理管理,2017,17(6):765-769.
[11]刘花艳,朱丽辉,陈丹,等.癫痫患儿家庭管理干预的效果研究[J].中华护理杂志,2017,52(10):1157-1162.
[12] Kim DH,Im YJ. Validity and reliability of Korean version of the Family Management Measure(Korean Fa MM)for families with children having chronic illness[J]. Korean Acad Nurs,2013,43(1):123-132.
[13]张莹.慢性病患儿家庭管理方式及家庭干预效果研究[D].北京:北京协和医学院,2009.
[14] Chen YM,He LP,Mai JC,et al. Validity and reliability of Pediatric Quality of Life Inventory Version 4. 0 Generic Core Scales in Chinese children and adolescents[J]. Zhonghua Liu Xing Bing Xue Za Zhi,2008,29(6):560-563.
[15] Scholten L,Willemen AM,Napoleone E,et al. Moderators of the efficacy of a psychosocial group intervention for children with chronic illness and their parents:what works for whom[J]. Journal of Pediatric Psychology,2015,40(2):214-227.
[16] Mori E,Liu C,Otsuki E,et al. Comparing child-care values in Japan and China among parents with infants[J]. International Journal of Nursing Practice,2012,18(2):18-27.
[17] Lindsay S,Kingsnorth S,Hamdani Y. Barriers and facilitators of chronic illness self-management among adolescents:a review and future directions[J]. Journal of Nursing and Healthcare of Chronic Illness,2011,3(3):186-208.