老年痴呆患者照料负担研究进展
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摘要
<正>老年痴呆分为阿尔茨海默病(AD),又名老年性痴呆、血管性痴呆(VD)和混合性痴呆(AD+VD),具有患病率、发病率逐步升高和致残率高、负担高的特点。2015世界AD报告指出,全球AD患者为4 680万人,平均每3 s就有一人罹患AD,预计2030年将达到7 470万人,2050年将突破1亿3 150万人[1]。2015年,全球痴呆症对经济的影响为56 125亿元人民币(8 180亿美元),短短3年,此金额将增加至68.6亿元人民币(10
引文
1 Group Author(s):Alzheimer's Association.2015 Alzheimer's disease facts and figures[J].Alzheimers Dement,2015;11(3):332-84.
2 Mohamed S,Rosenheck R,Lyketsos CG,et al.Caregiver burden in Alzheimer disease:cross-sectional and longitudinal patient correlates[J].Am J Geriatr Psychiatry,2010;18(10):917-27.
3 Mirza SS,Wolters FJ,Swanson SA,et al.10-year trajectories of depressive symptoms and risk of dementia:a population-based study[J].Lancet Psychiatry,2016;3(7):628-35.
4 Juan D,Zhou DH,Li J,et al.A 2-year follow-up study of cigarette smoking and risk of dementia[J].Eur J Neurol,2004;11(4):277-82.
5 Cova I,Clerici F,Maggiore L,et al.Body mass index predicts progression of mild cognitive impairment to dementia[J].Dement Geriatr Cogn Disord,2016;41(3-4):172-80.
6 Whitmer RA,Gunderson EP,Barrett-Connor E,et al.Obesity in middle age and future risk of dementia:a 27 year longitudinal population based study[J].BMJ,2005;330(7504):1360.
7 Srivastava G,Tripathi RK,Tiwari SC,et al.Caregiver burden and quality of life of key caregivers of patients with dementia[J].Indian J Psychol Med,2016;38(2):133-6.
8 Bailes CO,Kelley CM,Parker NM.Caregiver burden and perceived health competence when caring for family members diagnosed with Alzheimer's disease and related dementia[J].J Am Assoc Nurse Pract,2016;28(10):534-40.
9 Lee DR,Mckeith I,Mosimann U,et al.Examining carer stress in dementia:the role of subtype diagnosis and neuropsychiatric symptoms[J].Int J Geriatr Psychiatry,2013;28(2):135-41.
10 Martin-Garcia R,Martin-Avila G,la Rubia-Marcos MD,et al.Consumption of drugs and nonpharmacological therapies in caregivers of patients with Alzheimer's disease:a case-control study in madrid[J].Dement Geriatr Cogn Dis Extra,2016;6(1):68-77.
11 George LK,Gwyther LP.Caregiver well-being:a multidimensional examination of family caregivers of demented adults[J].Gerontologist,1986;26(3):253-9.
12 Novak M,Guest C.Application of a multidimensional caregiver burden inventory[J].Gerontologist,1989;29(6):798-803.
13 Chou YC,Fu LY,Lin LC,et al.Predictors of subjective and objective caregiving burden in older female caregivers of adults with intellectual disabilities[J].Int Psychogeriatr,2011;23(4):562-72.
14 Brouwer WB,van Exel NJ,van de Berg B,et al.Burden of caregiving:evidence of objective burden,subjective burden,and quality of life impacts on informal caregivers of patients with rheumatoid arthritis[J].Arthritis Rheum,2004;51(4):570-7.
15 Verhey FR,De Vugt ME,Aalten P,et al.Caregiver outcomes in disease modifying trials[J].J Nutr Health Aging,2007;11(4):342-4.
16 翟俊伟,王晓伟,王晶莹,等.阿尔茨海默病家庭负担影响因素分析[J].中华流行病学杂志,2015;36(9):962-6.
17 Shim SH,Kang HS,Kim JH,et al.Factors associated with caregiver burden in dementia:1-year follow-up study[J].Psychiatry Invest,2016;13(1):43-9.
18 Koyama A,Matsushita M,Hashimoto M,et al.Mental health among younger and older caregivers of dementia patients[J].Psychogeriatrics,2016;31(9):1056-63.
19 Jang SI,Bae HC,Shin J,et al.Depression in the family of patients with dementia in korea[J].Am J Alzheimers Dis Other Demen,2016;38(3):313-24.
20 Ankri J,Andrieu S,Beaufils B,et al.Beyond the global score of the Zarit Burden Interview:useful dimensions for clinicians[J].Int J Geriatr Psychiatry,2005;20(3):254-60.
21 Schreiner AS,Morimoto T.The relationship between mastery and depression among Japanese family caregivers[J].Int J Aging Hum Dev,2003;56(4):307-21.
22 Gitlin LN,Rose K.Impact of caregiver readiness on outcomes of a nonpharmacological intervention to address behavioral symptoms in persons with dementia[J].Int J Geriatr Psychiatry,2016;31(9):1056-63.
23 de Vugt ME,Stevens F,Aalten P,et al.Do caregiver management strategies influence patient behaviour in dementia[J]?Int J Geriatr Psychiatry,2004;19(1):85-92.
24 Park M,Sung M,Kim SK,et al.Multidimensional determinants of family caregiver burden in Alzheimer's disease[J].Int Psychogeriatr,2015;27(8):1355-64.
25 Lorio AK,Gore JB,Warthen L,et al.Teaching dementia care to physical therapy doctoral students:a multimodal experiential learning approach[J].Gerontol Geriatr Educ,2016;38(3):313-24.
26 Yu H,Wang X,He R,et al.Measuring the caregiver burden of caring for community-residing people with Alzheimer's disease[J].PLoS One,2015;10(7):e132168.
27 Blom MM,Bosmans JE,Cuijpers P,et al.Effectiveness and cost-effectiveness of an internet intervention for family caregivers of people with dementia:design of a randomized controlled trial[J].BMC Psychiatry,2013;13:17.
28 Schaller S,Marinova-Schmidt V,Setzer M,et al.Usefulness of a tailored ehealth service for informal caregivers and professionals in the dementia treatment and care setting:the ehealth monitor dementia portal[J].JMIR Res Protoc,2016;5(2):e47.
29 Reichert M,Hampel S,Reuter V.Mobile dementia counseling as low-threshold assistance for caregiving relatives[J].Z Gerontol Geriatr,2016;49(3):181-6.
30 Ploeg J,Denton M,Tindale J,et al.Older adults' awareness of community health and support services for dementia care[J].Can J Aging,2009;28(4):359-70.
31 Frank C,Feldman S,Schulz M.Resources for people with dementia:the Alzheimer Society and beyond[J].Can Fam Physician,2011;57(12):1387-91,e460-4.
32 胡慧秀,王志稳.痴呆老人照顾模式及照料资源的现状[J].中华护理杂志,2013;48(12):1136-8.
2 Mohamed S,Rosenheck R,Lyketsos CG,et al.Caregiver burden in Alzheimer disease:cross-sectional and longitudinal patient correlates[J].Am J Geriatr Psychiatry,2010;18(10):917-27.
3 Mirza SS,Wolters FJ,Swanson SA,et al.10-year trajectories of depressive symptoms and risk of dementia:a population-based study[J].Lancet Psychiatry,2016;3(7):628-35.
4 Juan D,Zhou DH,Li J,et al.A 2-year follow-up study of cigarette smoking and risk of dementia[J].Eur J Neurol,2004;11(4):277-82.
5 Cova I,Clerici F,Maggiore L,et al.Body mass index predicts progression of mild cognitive impairment to dementia[J].Dement Geriatr Cogn Disord,2016;41(3-4):172-80.
6 Whitmer RA,Gunderson EP,Barrett-Connor E,et al.Obesity in middle age and future risk of dementia:a 27 year longitudinal population based study[J].BMJ,2005;330(7504):1360.
7 Srivastava G,Tripathi RK,Tiwari SC,et al.Caregiver burden and quality of life of key caregivers of patients with dementia[J].Indian J Psychol Med,2016;38(2):133-6.
8 Bailes CO,Kelley CM,Parker NM.Caregiver burden and perceived health competence when caring for family members diagnosed with Alzheimer's disease and related dementia[J].J Am Assoc Nurse Pract,2016;28(10):534-40.
9 Lee DR,Mckeith I,Mosimann U,et al.Examining carer stress in dementia:the role of subtype diagnosis and neuropsychiatric symptoms[J].Int J Geriatr Psychiatry,2013;28(2):135-41.
10 Martin-Garcia R,Martin-Avila G,la Rubia-Marcos MD,et al.Consumption of drugs and nonpharmacological therapies in caregivers of patients with Alzheimer's disease:a case-control study in madrid[J].Dement Geriatr Cogn Dis Extra,2016;6(1):68-77.
11 George LK,Gwyther LP.Caregiver well-being:a multidimensional examination of family caregivers of demented adults[J].Gerontologist,1986;26(3):253-9.
12 Novak M,Guest C.Application of a multidimensional caregiver burden inventory[J].Gerontologist,1989;29(6):798-803.
13 Chou YC,Fu LY,Lin LC,et al.Predictors of subjective and objective caregiving burden in older female caregivers of adults with intellectual disabilities[J].Int Psychogeriatr,2011;23(4):562-72.
14 Brouwer WB,van Exel NJ,van de Berg B,et al.Burden of caregiving:evidence of objective burden,subjective burden,and quality of life impacts on informal caregivers of patients with rheumatoid arthritis[J].Arthritis Rheum,2004;51(4):570-7.
15 Verhey FR,De Vugt ME,Aalten P,et al.Caregiver outcomes in disease modifying trials[J].J Nutr Health Aging,2007;11(4):342-4.
16 翟俊伟,王晓伟,王晶莹,等.阿尔茨海默病家庭负担影响因素分析[J].中华流行病学杂志,2015;36(9):962-6.
17 Shim SH,Kang HS,Kim JH,et al.Factors associated with caregiver burden in dementia:1-year follow-up study[J].Psychiatry Invest,2016;13(1):43-9.
18 Koyama A,Matsushita M,Hashimoto M,et al.Mental health among younger and older caregivers of dementia patients[J].Psychogeriatrics,2016;31(9):1056-63.
19 Jang SI,Bae HC,Shin J,et al.Depression in the family of patients with dementia in korea[J].Am J Alzheimers Dis Other Demen,2016;38(3):313-24.
20 Ankri J,Andrieu S,Beaufils B,et al.Beyond the global score of the Zarit Burden Interview:useful dimensions for clinicians[J].Int J Geriatr Psychiatry,2005;20(3):254-60.
21 Schreiner AS,Morimoto T.The relationship between mastery and depression among Japanese family caregivers[J].Int J Aging Hum Dev,2003;56(4):307-21.
22 Gitlin LN,Rose K.Impact of caregiver readiness on outcomes of a nonpharmacological intervention to address behavioral symptoms in persons with dementia[J].Int J Geriatr Psychiatry,2016;31(9):1056-63.
23 de Vugt ME,Stevens F,Aalten P,et al.Do caregiver management strategies influence patient behaviour in dementia[J]?Int J Geriatr Psychiatry,2004;19(1):85-92.
24 Park M,Sung M,Kim SK,et al.Multidimensional determinants of family caregiver burden in Alzheimer's disease[J].Int Psychogeriatr,2015;27(8):1355-64.
25 Lorio AK,Gore JB,Warthen L,et al.Teaching dementia care to physical therapy doctoral students:a multimodal experiential learning approach[J].Gerontol Geriatr Educ,2016;38(3):313-24.
26 Yu H,Wang X,He R,et al.Measuring the caregiver burden of caring for community-residing people with Alzheimer's disease[J].PLoS One,2015;10(7):e132168.
27 Blom MM,Bosmans JE,Cuijpers P,et al.Effectiveness and cost-effectiveness of an internet intervention for family caregivers of people with dementia:design of a randomized controlled trial[J].BMC Psychiatry,2013;13:17.
28 Schaller S,Marinova-Schmidt V,Setzer M,et al.Usefulness of a tailored ehealth service for informal caregivers and professionals in the dementia treatment and care setting:the ehealth monitor dementia portal[J].JMIR Res Protoc,2016;5(2):e47.
29 Reichert M,Hampel S,Reuter V.Mobile dementia counseling as low-threshold assistance for caregiving relatives[J].Z Gerontol Geriatr,2016;49(3):181-6.
30 Ploeg J,Denton M,Tindale J,et al.Older adults' awareness of community health and support services for dementia care[J].Can J Aging,2009;28(4):359-70.
31 Frank C,Feldman S,Schulz M.Resources for people with dementia:the Alzheimer Society and beyond[J].Can Fam Physician,2011;57(12):1387-91,e460-4.
32 胡慧秀,王志稳.痴呆老人照顾模式及照料资源的现状[J].中华护理杂志,2013;48(12):1136-8.