系统性红斑狼疮患者疲劳的研究进展
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摘要
<正>系统性红斑狼疮(systemic lupus erythematosus,SLE)是一种好发于青年女性并且累及皮肤、肾脏以及多个器官的慢性自身免疫性疾病~([1])。疲劳作为SLE患者的常见主诉之一,即使在患者病情缓解时也会对超过90%的SLE患者造成影响~([2])。对SLE患者疲劳的严重程度进行评估时发现,其疲劳严重度明显高于一般人群~([3])。有研究~([4-5])显示,疲劳
引文
[1]LAM N C,GHETU M V,BIENIEK M L.Systemic lupus erythematosus:primary care approach to diagnosis and management[J].Am Fam Physician,2016,94(4):284-294.
[2]CLEANTHOUS S,TYAGI M,ISENBERG D A,et al.What do we know about self-reported fatigue in systemic lupus erythematosus?[J].Lupus,2012,21(5):465-476.
[3]XIAN D,QIAN Z,YUAN Z,et al.Fatigue of systemic lupus erythematosus in China:contributors and effects on the quality of life[J].Patient Prefer Adherence,2018(12):1729-1735.
[4]STERLING K,GALLOP K,SWINBURN P,et al.Patient-reported fatigue and its impact on patients with systemic lupus erythematosus[J].Lupus,2014,23(2):124-132.
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[8]Ad Hoc Committee on Systemic Lupus Erythematosus Response Criteria for Fatigue.Measurement of fatigue in systemic lupus erythematosus:a systematic review[J].Arthritis Rheum,2007,57(8):1348-1357.
[9]陈琼,吴晓蓉.非活动期系统性红斑狼疮患者疲乏现状调查[J].上海护理,2016,16(5):23-26.
[10]MAHIEU M A,AHN G E,CHMIEL J S,et al.Serum adipokine levels and associations with patient-reported fatigue in systemic lupus erythematosus[J].Rheumatol Int,2018,38(6):1053-1061.
[11]AYAN C,DE PEDRO-MUNEZ A,MARTINEZ-LEM-OS I.Effects of physical exercise in a population with systemic lupus erythematosus:a systematic review[J].Semergen,2018,44(3):192-206.
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[15]李红娟,杜晴,王书雅,等.慢性病治疗功能评估疲劳量表与系统性红斑狼疮的关系及影响因素[J].中华医学杂志,2017,97(35):2775-2778.
[16]PETRI M A,MARTIN R S,SCHEINBERG M A,et al.Assessments of fatigue and disease activity in patients with systemic lupus erythematosus enrolled in the Phase2clinical trial with blisibimod[J].Lupus,2017,26(1):27-37.
[17]AHN G E,RAMSEY-GOLDMAN R.Fatigue in systemic lupus erythematosus[J].Int J Clin Rheumtol,2012,7(2):217-227.
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[19]RUIZ-IRASTORZA G,GORDO S,OLIVARES N,et al.Changes in vitamin D levels in patients with systemic lupus erythematosus:effects on fatigue,disease activity,and damage[J].Arthritis Care Res(Hoboken),2010,62(8):1160-1165.
[20]MORALEDA V,PRADOS G,MARTINEZ M P,et al.Sleep quality,clinical and psychological manifestations in women with systemic lupus erythematosus[J].Int JRheum Dis,2017,20(10):1541-1550.
[21]OZEL F,ARGON G.The effects of fatigue and pain on daily life activities in systemic lupus erythematosus[J].Agri,2015,27(4):181-189.
[22]BURGOS P I,ALARCON G S,MCGWIN G J R,et al.Disease activity and damage are not associated with increased levels of fatigue in systemic lupus erythematosus patients from a multiethnic cohort:LXVII[J].Arthritis Rheum,2009,61(9):1179-1186.
[23]BIYU S,WEI T,GUIJUAN F,et al.The correlations of disease activity,socioeconomic status,quality of life,and depression/anxiety in Chinese patients with systemic lupus erythematosus[J].Clin Dev Immunol,2013(2013):270878.
[24]FIGUEIREDO-BRAGA M,CORNABY C,BER-NARDES M,et al.Correlation between physical markers and psychiatric health in a Portuguese systemic lupus erythematosus cohort:the role of suffering in chronic autoimmune disease[J].PLoS One,2018,13(4):e0195579.
[25]YILMAZ-ONER S,ILHAN B,CAN M,et al.Fatigue in systemic lupus erythematosus:association with disease activity,quality of life and psychosocial factors[J].ZRheumatol,2017,76(10):913-919.
[26]PETTERSSON S,BOSTROM C,ERIKSSON K,et al.Lifestyle habits and fatigue among people with systemic lupus erythematosus and matched population controls[J].Lupus,2015,24(9):955-965.
[27]ODWYER T,DURCAN L,WILSON F.Exercise and physical activity in systemic lupus erythematosus:a systematic review with meta-analyses[J].Semin Arthritis Rheum,2017,47(2):204-215.
[28]NOWICKA-SAUER K,HAJDUK A,KUJAWSKA-DANECKA H,et al.Illness perception is significantly determined by depression and anxiety in systemic lupus erythematosus[J].Lupus,2018,27(3):454-460.
[29]DAVIES R J,LOMER M C,YEO S I,et al.Weight loss and improvements in fatigue in systemic lupus erythematosus:a controlled trial of a low glycaemic index diet versus a calorie restricted diet in patients treated with corticosteroids[J].Lupus,2012,21(6):649-655.
[30]INOUE M,SHIOZAWA K,YOSHIHARA R,et al.Predictors of poor sleep quality in patients with systemic lupus erythematosus[J].Clin Rheumatol,2017,36(5):1053-1062.
[31]GRECO C M,KAO A H,MAKSIMOWICZ-MCKIN-NON K,et al.Acupuncture for systemic lupus erythematosus:apilot RCT feasibility and safety study[J].Lupus,2008,17(12):1108-1116.
[32]DEL PINO-SEDENO T,TRUJILLO-MARTIN M M,RUIZ-IRASTORZA G,et al.Effectiveness of nonpharmacologic interventions for decreasing fatigue in adults with systemic lupus erythematosus:a systematic review[J].Arthritis Care Res(Hoboken),2016,68(1):141-148.
[2]CLEANTHOUS S,TYAGI M,ISENBERG D A,et al.What do we know about self-reported fatigue in systemic lupus erythematosus?[J].Lupus,2012,21(5):465-476.
[3]XIAN D,QIAN Z,YUAN Z,et al.Fatigue of systemic lupus erythematosus in China:contributors and effects on the quality of life[J].Patient Prefer Adherence,2018(12):1729-1735.
[4]STERLING K,GALLOP K,SWINBURN P,et al.Patient-reported fatigue and its impact on patients with systemic lupus erythematosus[J].Lupus,2014,23(2):124-132.
[5]GALLOP K,NIXON A,SWINBURN P,et al.Development of a conceptual model of health-related quality of life for systemic lupus erythematosus from the patient’s perspective[J].Lupus,2012,21(9):934-943.
[6]VAN OERS M L,BOSSEMA E R,THOOLEN B J,et al.Variability of fatigue during the day in patients with primary Sjogren’s syndrome,systemic lupus erythematosus,and rheumatoid arthritis[J].Clin Exp Rheumatol,2010,28(5):715-721.
[7]LORENTZEN K,DANIELSEN M A,KAY S D,et al.Validation of the fatigue severity scale in danish patients with systemic lupus erythematosus[J].Dan Med J,2014,61(4):A4808.
[8]Ad Hoc Committee on Systemic Lupus Erythematosus Response Criteria for Fatigue.Measurement of fatigue in systemic lupus erythematosus:a systematic review[J].Arthritis Rheum,2007,57(8):1348-1357.
[9]陈琼,吴晓蓉.非活动期系统性红斑狼疮患者疲乏现状调查[J].上海护理,2016,16(5):23-26.
[10]MAHIEU M A,AHN G E,CHMIEL J S,et al.Serum adipokine levels and associations with patient-reported fatigue in systemic lupus erythematosus[J].Rheumatol Int,2018,38(6):1053-1061.
[11]AYAN C,DE PEDRO-MUNEZ A,MARTINEZ-LEM-OS I.Effects of physical exercise in a population with systemic lupus erythematosus:a systematic review[J].Semergen,2018,44(3):192-206.
[12]YUEN H K,HOLTHAUS K,KAMEN D L,et al.Using wii fit to reduce fatigue among African American women with systemic lupus erythematosus:apilot study[J].Lupus,2011,20(12):1293-1299.
[13]JUMP R L,ROBINSON M E,ARMSTRONG A E,et al.Fatigue in systemic lupus erythematosus:contributions of disease activity,pain,depression,and perceived social support[J].J Rheumatol,2005,32(9):1699-1705.
[14]ARNAUD L,GAVAND P E,VOLL R,et al.Predictors of fatigue and severe fatigue in a large international cohort of patients with systemic lupus erythematosus and a systematic review of the literature[EB/OL].[2018-12-27].https://www.ncbi.nlm.nih.gov/pubmed/?term=Predictors+of+fatigue+and+severe+fatigue+in+a+large+international+cohort+of+patients+with+systemic+lupus+erythematosus+and+a+systematic+review+of+the+literature.
[15]李红娟,杜晴,王书雅,等.慢性病治疗功能评估疲劳量表与系统性红斑狼疮的关系及影响因素[J].中华医学杂志,2017,97(35):2775-2778.
[16]PETRI M A,MARTIN R S,SCHEINBERG M A,et al.Assessments of fatigue and disease activity in patients with systemic lupus erythematosus enrolled in the Phase2clinical trial with blisibimod[J].Lupus,2017,26(1):27-37.
[17]AHN G E,RAMSEY-GOLDMAN R.Fatigue in systemic lupus erythematosus[J].Int J Clin Rheumtol,2012,7(2):217-227.
[18]OMDAL R,MELLGREN S I,KOLDINGSNES W,et al.Fatigue in patients with systemic lupus erythematosus:lack of associations to serum cytokines,antiphospholipid antibodies,or other disease characteristics[J].J Rheumatol,2002,29(3):482-486.
[19]RUIZ-IRASTORZA G,GORDO S,OLIVARES N,et al.Changes in vitamin D levels in patients with systemic lupus erythematosus:effects on fatigue,disease activity,and damage[J].Arthritis Care Res(Hoboken),2010,62(8):1160-1165.
[20]MORALEDA V,PRADOS G,MARTINEZ M P,et al.Sleep quality,clinical and psychological manifestations in women with systemic lupus erythematosus[J].Int JRheum Dis,2017,20(10):1541-1550.
[21]OZEL F,ARGON G.The effects of fatigue and pain on daily life activities in systemic lupus erythematosus[J].Agri,2015,27(4):181-189.
[22]BURGOS P I,ALARCON G S,MCGWIN G J R,et al.Disease activity and damage are not associated with increased levels of fatigue in systemic lupus erythematosus patients from a multiethnic cohort:LXVII[J].Arthritis Rheum,2009,61(9):1179-1186.
[23]BIYU S,WEI T,GUIJUAN F,et al.The correlations of disease activity,socioeconomic status,quality of life,and depression/anxiety in Chinese patients with systemic lupus erythematosus[J].Clin Dev Immunol,2013(2013):270878.
[24]FIGUEIREDO-BRAGA M,CORNABY C,BER-NARDES M,et al.Correlation between physical markers and psychiatric health in a Portuguese systemic lupus erythematosus cohort:the role of suffering in chronic autoimmune disease[J].PLoS One,2018,13(4):e0195579.
[25]YILMAZ-ONER S,ILHAN B,CAN M,et al.Fatigue in systemic lupus erythematosus:association with disease activity,quality of life and psychosocial factors[J].ZRheumatol,2017,76(10):913-919.
[26]PETTERSSON S,BOSTROM C,ERIKSSON K,et al.Lifestyle habits and fatigue among people with systemic lupus erythematosus and matched population controls[J].Lupus,2015,24(9):955-965.
[27]ODWYER T,DURCAN L,WILSON F.Exercise and physical activity in systemic lupus erythematosus:a systematic review with meta-analyses[J].Semin Arthritis Rheum,2017,47(2):204-215.
[28]NOWICKA-SAUER K,HAJDUK A,KUJAWSKA-DANECKA H,et al.Illness perception is significantly determined by depression and anxiety in systemic lupus erythematosus[J].Lupus,2018,27(3):454-460.
[29]DAVIES R J,LOMER M C,YEO S I,et al.Weight loss and improvements in fatigue in systemic lupus erythematosus:a controlled trial of a low glycaemic index diet versus a calorie restricted diet in patients treated with corticosteroids[J].Lupus,2012,21(6):649-655.
[30]INOUE M,SHIOZAWA K,YOSHIHARA R,et al.Predictors of poor sleep quality in patients with systemic lupus erythematosus[J].Clin Rheumatol,2017,36(5):1053-1062.
[31]GRECO C M,KAO A H,MAKSIMOWICZ-MCKIN-NON K,et al.Acupuncture for systemic lupus erythematosus:apilot RCT feasibility and safety study[J].Lupus,2008,17(12):1108-1116.
[32]DEL PINO-SEDENO T,TRUJILLO-MARTIN M M,RUIZ-IRASTORZA G,et al.Effectiveness of nonpharmacologic interventions for decreasing fatigue in adults with systemic lupus erythematosus:a systematic review[J].Arthritis Care Res(Hoboken),2016,68(1):141-148.