晚期癌症病人安宁疗护的研究进展
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摘要
对晚期癌症病人安宁疗护的国内外发展现状进行综述,指出我国的安宁疗护起步较晚,但需求量很大,针对晚期癌症安宁疗护的评价量表多是引用自国外,缺乏本土化、具有良好信效度的量表,基于我国国情的晚期癌症病人的安宁疗护模式和理论还需进一步进行探索。
引文
[1]国家卫生计生委医政医管局.关于安宁疗护中心基本标准、管理规范及安宁疗护实践指南的解读[EB/OL].(2017-01-25)[2017-04-17].http://www.nhfpc.gov.cn/yzygj/s3593/201702/f12b1c7868194dd0ba1c658b32f8b59f.shtml.
[2]申靓亮,刘冰冰,赵利梅,等.我国台湾安宁疗护的发展历程及启示[J].护理管理杂志,2017,17(3):189-191.
[3]LYERLY H K,FAWZY M R,AZIZ Z,et al.Regional variation in identified cancer care needs of early-career oncologists in China,India,and Pakistan[J].Oncologist,2015,20(5):523-524.
[4]国家卫生和计划生育委员会.安宁疗护中心基本标准和管理规范(试行)[J].中国护理管理,2017,17(3):289-290.
[5]刘梦雨.武汉临终关怀模式研究[D].武汉:华中师范大学,2015.
[6]诸海燕,孙彩萍,张宇平,等.综合性医院安宁疗护模式的实施与效果评价[J].中国护理管理,2016,16(6):832-835.
[7]张燕,韩琤琤,路琦,等.癌症晚期患者居家临终关怀服务模式研究及效果评价[J].中国全科医学,2014(31):3773-3776.
[8]赵可式.台湾安宁疗护的发展与前瞻[J].护理杂志,2009,56(1):5-10.
[9]龚国梅,骆俊宏,陈瑞娥,等.中国台湾地区安宁疗护发展及启示[J].中华现代护理杂志,2016,22(3):313-316.
[10]赵可式安宁疗护是普世价值且为护理的本质[J].护理杂志,2015,62(2):5-12.
[11]The Economist Intelligence Unit.2015 Quality of Death Index Infographic SC[EB/OL].[2017-04-17].http://bit.ly/quality of death 2015.
[12]张燮泉.Hospice-垂危病人病院[J].医学与哲学,1986(4):56.
[13]WEE B.Models of delivering palliative and end-of-life care in the UK[J].Current Opinion in Supportive and Palliative Care,2013,7(2):195-200.
[14]LISTED N.Cancer care during the last phase of life[J].Journal of Clinical Oncology Official Journal of the American Society of Clinical Oncology,1998,16(5):1986.
[15]张雪梅,胡秀英.我国安宁疗护的发展现状、存在的问题及发展前景[J].中华现代护理杂志,2016,22(34):4885-4888.
[16]ELLERSHAW J E,PEAT S J,BOYS L C.Assessing the effectiveness of a hospital palliative care team[J].Palliative Medicine,1995,9(2):145.
[17]HEARN J,HIGGINSON I J.Outcome measures in palliative care for advanced cancer patients:a review[J].J Public Health Med,1997,19(2):193-199.
[18]COLLINS E S,WITT J,BAUSEWEIN C,et al.A systematic review of the use of the palliative care outcome scale and the support team assessment schedule in palliative care[J].Journal of Pain&Symptom Management,2015,50(6):842-853.
[19]GUTIERREZSANCHEZ D,LEIVASANTOS J P,SANCHEZHERNANDEZ R,et al.Spanish Modified Version of the Palliative Care Outcome Scale-symptoms renal:cross-cultural adaptation and validation[J].Bmc Nephrology,2016,17(1):180.
[20]OSSE B H,VERNOOIJ M J,SCHADE E,et al.Towards a new clinical tool for needs assessment in the palliative care of cancer patients:the PNPC instrument[J].Journal of Pain&Symptom Management,2004,28(4):329-341.
[21]OSSE B H,VERNOOIJ-DASSEN M J,SCHADE E,et al.Apractical instrument to explore patients′needs in palliative care:the Problems and Needs in Palliative Care Questionnaire Short Version[J].Palliative Medicine,2007,21(5):391-399.
[22]OSSE B H,VERNOOIJDASSEN M J,SCHADE E,et al.Problems experienced by the informal caregivers of cancer patients and their needs for support[J].Cancer Nursing,2006,29(5):378.
[23]HUGHES P,AHMED N,WINSLOW M,et al.Consumer views on a new holistic screening tool for supportive and palliative-care needs:sheffield Profile for Assessment and Referral for Care(SPARC):a survey of self-help support groups in health care[J].Health Expectations,2015,18(4):562-577.
[24]LEPPERT W,MAJKOWICZ M,AHMEDZAI S H.The adaptation of the Sheffield Profile for Assessment and Referral for Care(SPARC)to the polish clinical setting for needs assessment of advanced cancer patients[J].Journal of Pain&Symptom Management,2012,44(6):916.
[25]BURTON C R,PAYNE S,ADDINGTONHALL J,et al.The palliative care needs of acute stroke patients:aprospective study of hospital admissions[J].Age&Ageing,2010,39(5):554-559.
[26]WALL J,CROSBY V,HUSSAIN A,et al.Establishing the palliative and supportive care needs of patients with idiopathic pulmonary fibrosis and non specific interstitial pneumonia[J].Thorax,2013,68(Suppl3):A165-A166.
[27]LEVETOWN M,HAYSLIP B,PEEL J.The development of the physicians,end-of-life care attitude scale[J].Omega(Westport),1999,40(2):323-333.
[28]杨斐敏.职业性临终关怀态度量表的汉化及在浙江省三甲医院肿瘤科护士中的调查[D].杭州:浙江大学,2012.
[29]朱正刚,周阳,陈燕.中国传统伦理文化对临终关怀照护的影响[J].中国老年学,2015(21):6302-6303.
[30]张中华.安宁护理接受度及影响因素研究[D].郑州:河南大学,2010.
[31]睢素利.对生前预嘱相关问题的探讨[J].中国卫生法制,2014(2):7-11.
[32]Liu X.Knowledge and attitudes about hospice care among Chinese American older adults[J].Innovation in Aging,2017,1(suppl1):757.
[33]邹敏.上海市护士姑息护理知识的现状调查与原因分析[J].中国实用护理杂志,2015,31(18):1386-1390.
[34]葛国靖.中日癌症患者临终关怀与姑息照护现状及模式的对比研究[D].太原:山西医科大学,2016.
[35]杜朝东,王沁,蒋涛,等.对安宁疗护影响因素的调查研究-以贵州省为例[J].医学与哲学,2012,33(19):32-33.
[36]苏永刚,马娉,陈晓阳.英国临终关怀现状分析及对中国的启示[J].山东社会科学,2012(2):48-54.
[37]谢秋菊,李丽云,周绣玲,等.探讨推动安宁疗护之障碍因子及其应对策略建议[J].肿瘤护理杂志,2012,12(2):51-59.
[38]苏永刚,马娉,陈晓阳.英国临终关怀现状分析及对中国的启示[J].山东社会科学,2012(2):48-54.
[39]陆宇晗.我国安宁疗护的现状及发展方向[J].中华护理杂志,2017,52(6):659-664.
[2]申靓亮,刘冰冰,赵利梅,等.我国台湾安宁疗护的发展历程及启示[J].护理管理杂志,2017,17(3):189-191.
[3]LYERLY H K,FAWZY M R,AZIZ Z,et al.Regional variation in identified cancer care needs of early-career oncologists in China,India,and Pakistan[J].Oncologist,2015,20(5):523-524.
[4]国家卫生和计划生育委员会.安宁疗护中心基本标准和管理规范(试行)[J].中国护理管理,2017,17(3):289-290.
[5]刘梦雨.武汉临终关怀模式研究[D].武汉:华中师范大学,2015.
[6]诸海燕,孙彩萍,张宇平,等.综合性医院安宁疗护模式的实施与效果评价[J].中国护理管理,2016,16(6):832-835.
[7]张燕,韩琤琤,路琦,等.癌症晚期患者居家临终关怀服务模式研究及效果评价[J].中国全科医学,2014(31):3773-3776.
[8]赵可式.台湾安宁疗护的发展与前瞻[J].护理杂志,2009,56(1):5-10.
[9]龚国梅,骆俊宏,陈瑞娥,等.中国台湾地区安宁疗护发展及启示[J].中华现代护理杂志,2016,22(3):313-316.
[10]赵可式安宁疗护是普世价值且为护理的本质[J].护理杂志,2015,62(2):5-12.
[11]The Economist Intelligence Unit.2015 Quality of Death Index Infographic SC[EB/OL].[2017-04-17].http://bit.ly/quality of death 2015.
[12]张燮泉.Hospice-垂危病人病院[J].医学与哲学,1986(4):56.
[13]WEE B.Models of delivering palliative and end-of-life care in the UK[J].Current Opinion in Supportive and Palliative Care,2013,7(2):195-200.
[14]LISTED N.Cancer care during the last phase of life[J].Journal of Clinical Oncology Official Journal of the American Society of Clinical Oncology,1998,16(5):1986.
[15]张雪梅,胡秀英.我国安宁疗护的发展现状、存在的问题及发展前景[J].中华现代护理杂志,2016,22(34):4885-4888.
[16]ELLERSHAW J E,PEAT S J,BOYS L C.Assessing the effectiveness of a hospital palliative care team[J].Palliative Medicine,1995,9(2):145.
[17]HEARN J,HIGGINSON I J.Outcome measures in palliative care for advanced cancer patients:a review[J].J Public Health Med,1997,19(2):193-199.
[18]COLLINS E S,WITT J,BAUSEWEIN C,et al.A systematic review of the use of the palliative care outcome scale and the support team assessment schedule in palliative care[J].Journal of Pain&Symptom Management,2015,50(6):842-853.
[19]GUTIERREZSANCHEZ D,LEIVASANTOS J P,SANCHEZHERNANDEZ R,et al.Spanish Modified Version of the Palliative Care Outcome Scale-symptoms renal:cross-cultural adaptation and validation[J].Bmc Nephrology,2016,17(1):180.
[20]OSSE B H,VERNOOIJ M J,SCHADE E,et al.Towards a new clinical tool for needs assessment in the palliative care of cancer patients:the PNPC instrument[J].Journal of Pain&Symptom Management,2004,28(4):329-341.
[21]OSSE B H,VERNOOIJ-DASSEN M J,SCHADE E,et al.Apractical instrument to explore patients′needs in palliative care:the Problems and Needs in Palliative Care Questionnaire Short Version[J].Palliative Medicine,2007,21(5):391-399.
[22]OSSE B H,VERNOOIJDASSEN M J,SCHADE E,et al.Problems experienced by the informal caregivers of cancer patients and their needs for support[J].Cancer Nursing,2006,29(5):378.
[23]HUGHES P,AHMED N,WINSLOW M,et al.Consumer views on a new holistic screening tool for supportive and palliative-care needs:sheffield Profile for Assessment and Referral for Care(SPARC):a survey of self-help support groups in health care[J].Health Expectations,2015,18(4):562-577.
[24]LEPPERT W,MAJKOWICZ M,AHMEDZAI S H.The adaptation of the Sheffield Profile for Assessment and Referral for Care(SPARC)to the polish clinical setting for needs assessment of advanced cancer patients[J].Journal of Pain&Symptom Management,2012,44(6):916.
[25]BURTON C R,PAYNE S,ADDINGTONHALL J,et al.The palliative care needs of acute stroke patients:aprospective study of hospital admissions[J].Age&Ageing,2010,39(5):554-559.
[26]WALL J,CROSBY V,HUSSAIN A,et al.Establishing the palliative and supportive care needs of patients with idiopathic pulmonary fibrosis and non specific interstitial pneumonia[J].Thorax,2013,68(Suppl3):A165-A166.
[27]LEVETOWN M,HAYSLIP B,PEEL J.The development of the physicians,end-of-life care attitude scale[J].Omega(Westport),1999,40(2):323-333.
[28]杨斐敏.职业性临终关怀态度量表的汉化及在浙江省三甲医院肿瘤科护士中的调查[D].杭州:浙江大学,2012.
[29]朱正刚,周阳,陈燕.中国传统伦理文化对临终关怀照护的影响[J].中国老年学,2015(21):6302-6303.
[30]张中华.安宁护理接受度及影响因素研究[D].郑州:河南大学,2010.
[31]睢素利.对生前预嘱相关问题的探讨[J].中国卫生法制,2014(2):7-11.
[32]Liu X.Knowledge and attitudes about hospice care among Chinese American older adults[J].Innovation in Aging,2017,1(suppl1):757.
[33]邹敏.上海市护士姑息护理知识的现状调查与原因分析[J].中国实用护理杂志,2015,31(18):1386-1390.
[34]葛国靖.中日癌症患者临终关怀与姑息照护现状及模式的对比研究[D].太原:山西医科大学,2016.
[35]杜朝东,王沁,蒋涛,等.对安宁疗护影响因素的调查研究-以贵州省为例[J].医学与哲学,2012,33(19):32-33.
[36]苏永刚,马娉,陈晓阳.英国临终关怀现状分析及对中国的启示[J].山东社会科学,2012(2):48-54.
[37]谢秋菊,李丽云,周绣玲,等.探讨推动安宁疗护之障碍因子及其应对策略建议[J].肿瘤护理杂志,2012,12(2):51-59.
[38]苏永刚,马娉,陈晓阳.英国临终关怀现状分析及对中国的启示[J].山东社会科学,2012(2):48-54.
[39]陆宇晗.我国安宁疗护的现状及发展方向[J].中华护理杂志,2017,52(6):659-664.