先天性杆状体肌病新生儿1例的延续性护理
摘要
总结1例先天性杆状体肌病新生儿实施延续性护理的经验。患儿因疾病导致需长期鼻饲和吸痰的护理,通过对家长的照护意愿和能力的评估,做好出院前准备(家长护理技能的培训和考核),考核通过后患儿出院,实施延续性护理,定期对家长进行居家护理问题指导和心理支持,随访至患儿4月龄时开始停止鼻饲采用勺子和奶瓶混合喂养,随访至10月龄时停止电动吸痰,患儿已经能用奶瓶喂养,随访至患儿2周岁时各项生长发育和体格检查均在正常范围。
引文
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[5] 陆美英,陈燕,洪爱莲,等.口腔运动干预对早产儿经口喂养表现的临床研究[J].护理与康复,2014,13(7):629-632.
[6] 邱娜君.新生儿抚触护理的效果研究[J].实用临床护理学电子杂志,2017,2(2):104-105.
[7] 黄桂芳,李海飞,李金华.智护训练在新生儿生长发育中的效果观察[J].中国妇幼保健,2014,29(25):4108-4109.
[8] GALLO K P,HILL L C,HOAGWOOD K E,et al.A narrative synthesis of the components of and evidence for patient- and family-centered care[J].Clinical Pediatrics,2016,55(4):333.
[9] PINEDA R G,NEIL J,DIERKER D,et al.Alterations in brain structure and neurodevelopmental outcome in preterm infants hospitalized in different neonatal intensive care unit environments[J].The Journal of Pediatrics,2014,164(1):52-60.
[2] 杨海苓,王萍,侯文秀,等.医院-社区-家庭三元联动延续护理平台的设计及应用[J].中华护理杂志,2016,51(9):1133-1137.
[3] YUEN M,SARAH A S,JAMES J,et al.Leiomodin-3 dysfunction results in thin filament disorganization and nemaline myopathy[J].J Clin Invest,2014,124(11):4693-4708.
[4] 金逸,施雁,龚美芳,等.以慢性病患者为中心的延续性护理模式的实施与效果[J].中华护理杂志,2015,50(11):1388-1391.
[5] 陆美英,陈燕,洪爱莲,等.口腔运动干预对早产儿经口喂养表现的临床研究[J].护理与康复,2014,13(7):629-632.
[6] 邱娜君.新生儿抚触护理的效果研究[J].实用临床护理学电子杂志,2017,2(2):104-105.
[7] 黄桂芳,李海飞,李金华.智护训练在新生儿生长发育中的效果观察[J].中国妇幼保健,2014,29(25):4108-4109.
[8] GALLO K P,HILL L C,HOAGWOOD K E,et al.A narrative synthesis of the components of and evidence for patient- and family-centered care[J].Clinical Pediatrics,2016,55(4):333.
[9] PINEDA R G,NEIL J,DIERKER D,et al.Alterations in brain structure and neurodevelopmental outcome in preterm infants hospitalized in different neonatal intensive care unit environments[J].The Journal of Pediatrics,2014,164(1):52-60.