癌症患者志气缺失综合征的研究进展
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摘要
本文从志气缺失综合征的概念、测量工具、癌症患者志气缺失综合征影响因素及干预措施等方面对国内外癌症患者志气缺失综合征的研究进展进行综述,以期为降低癌症患者志气缺失综合征发生率提供参考依据。
This paper reviewed Demoralization Syndrome in patients with cancer. It summarized the concept of Demoralization Syndrome, Demoralization Scales, influence factors and nursing interventions. It is expected to provide information for nurses to improve Demoralization Syndrome in patients with cancer.
This paper reviewed Demoralization Syndrome in patients with cancer. It summarized the concept of Demoralization Syndrome, Demoralization Scales, influence factors and nursing interventions. It is expected to provide information for nurses to improve Demoralization Syndrome in patients with cancer.
引文
[1]国家卫生计生委疾病预防控制局.中国居民营养与慢性病状况报告(2015).北京:人民卫生出版社,2015.National Bureau of Disease Prevention and Cont rol of the National Health Planning Commission.Report on the status of Chinese residents'nutrition and chronic diseases(2015).Beijing:People's Medical Publishing House,2015.
[2]邓莉莎,庞英,何毅,等.恶性肿瘤患者志气缺失的发生及影响因素分析.医学与哲学(B),2017(4):75-79.Deng LS,Pang Y,He Y,et al.The occurrence and influencing factors of demoralization in advanced cancer patients.Medicine and Philosophy(B),2017(4):75-79.
[3]刘明辉,陈萌蕾,顾筱莉,等.晚期恶性肿瘤患者心理状况初步分析.中国癌症杂志,2014(11):852-856.Liu MH,Chen ML,Gu XL,et al.Preliminary analysis of the psychological status of the advanced cancer patients.China Oncology,2014(11):852-856.
[4]李玉琪,周汎澔,王秀红.失志的概念分析.护理杂志,2015,62(3):83-88.Li YQ,Zhou FH,Wang XH.Demoralization:a concept analysis.The Journal of Nursing,2015,62(3):83-88.
[5]Brewer BW,Caspari JM,Youngwerth J,et al.Demoralization in medical illness:feasibility and acceptability of a pilot educational intervention for inpatient oncology nurses.Palliative and Supportive Care,2017,15(1):1-8.
[6]Fang C,Chang M,Chen P,et al.A correlational study of suicidal ideation with psychological distress,depression,and demoralization in patients with cancer.Supportive Care in Cancer,2014,22(12):3165-3174.
[7]Mehnert A,Vehling S,H?cker A,et al.Demoralization and depression in patients with advanced cancer:validation of the German version of the Demoralization Scale.Journal of Pain and Symptom Management,2011,42(5):768-776.
[8]Robinson S,Kissane DW,Brooker J,et al.A systematic review of the demoralization syndrome in individuals with progressive disease and cancer:a decade of research.Journal of Pain and Symptom Management,2015,49(3):595-610.
[9]Vehling S,Mehnert A.Symptom burden,loss of dignity,and demoralization in patients with cancer:a mediation model.Psycho-Oncology,2014,23(3):283-290.
[10]Grassi L,Nanni MG.Demoralization syndrome:new insights in psychosocial cancer care.Cancer,2016,122(14):2130-2133.
[11]Frank JD,Frank JB.Demoralization and unexplained illness in two cohorts of American soldiers overseas.J Nerv Ment Dis,1996,184(7):445-446.
[12]Clarke DM,Kissane DW.Demoralization:its phenomenology and importance.Aust NZJ Psychiatry,2002,36(6):733-742.
[13]Kissane DW.The contribution of demoralization to end of life decisionmaking.Hastings Center Report,2004,34(4):21-31.
[14]Kissane DW,Wein S,Love A,et al.The Demoralization Scale:a report of its development and preliminary validation,2004,20(4):269-276.
[15]Juli?o M,Nunes B,Barbosa A.Prevalence and factors associated with demoralization syndrome in patients with advanced disease:results from a cross-sectional Portuguese study.Palliative and Supportive Care,2016,14(5):468-473.
[16]Costantini A,Picardi A,Brunetti S,et al.Italian version of Demoralization Scale:a validation study.Rivista Di Psichiatria,2013,48(3):234-239.
[17]Rudilla D,Galiana L,Oliver A,et al.Demoralization Scale in Spanish-speaking palliative care patients.Journal of Pain and Symptom Management,2016,51(4):769-775.
[18]洪晓琪.癌症病人失志量表中文版之信效度检测.内科学志,2010,21(6):427-435.Hong XQ.Reliability and validity of Demoralization Scale-mandar in version of cancer patients.Journal of Internal Medicine,2010,21(6):427-435.
[19]Robinson S,Kissane DW,Brooker J,et al.Refinement and revalidation of the demoralization scale:the DS-II-internal validity.Cancer,2016,122(14):2251-2259.
[20]Grassi L,Costantini A,Kissane D,et al.The factor structure and use of the Demoralization Scale(DS-IT)in Italian cancer patients.PsychoOncology,2017,26(11):1965.
[21]Cockram CA,Doros G,De FJM.Diagnosis and measurement of subjective incompetence:the clinical hallmark of demoralization.Psychotherapy&Psychosomatics,2009,78(6):342.
[22]Cockram CA,Doros G,De FJM.Subjective incompetence as a clinical hallmark of demoralization in cancer patients without mental disorder.Primary Psychiatry,2010,17(7):54-58.
[23]Porcelli P,Sonino N.Interview for the diagnostic criteria for psychosomatic research.Advances in Psychosomatic Medicine,2007(28):174.
[24]Guidi J,Rafanelli C,Roncuzzi R,et al.Assessing psychological factors affecting medical conditions:comparison between different proposals.Gen Hosp Psychiatry,2013,35(2):141-146.
[25]Galeazzi GM,Ferrari S,Mackinnon A,et al.Interrater reliability,prevalence,and relation to ICD-10 diagnoses of the diagnostic criteria for psychosomatic research in consultation-liaison psychiatry patients.Psychosomatics,2004,45(5):386-393.
[26]Grassi L,Rossi E,Sabato S,et al.Diagnostic criteria for psychosomat ic resea rch a nd psychosocial variables in breast cancer patients.Psychosomatics,2004,45(6):483-491.
[27]Porcelli P,Guidi J.The clinical utility of the diagnostic criteria for psychosomatic research:a review of studies.Psychotherapy&Psychosomatics,2015,84(5):265-272.
[28]Tecuta L,Tomba E,Grandi S,et al.Demoralization:a systematic review on its clinical characterization.Psychological Medicine,2015,45(4):673-691.
[29]Vehling S,Oechsle K,Koch U,et al.Receiving palliative treatment moderates the effect of age and gender on demoralization in patients with cancer.Plos One,2013,8(3):e59417.
[30]Li Y,Ho C,Wang H.Demoralization in cancer patients and related factors in Taiwan.Cancer Nursing,2017,40(1):54-60.
[31]Li Y,Ho C,Wang H.Protective factors of demoralization among cancer patients in Taiwan:an age-matched and gender-matched study.Asian Nursing Research,2017,11(3):174-179.
[32]梁寅寅,甘秀妮,王玉琼.癌症患者失志状况及影响因素研究.重庆医科大学学报,2017(9):1178-1182.Liang YY,Gan XN,Wang YQ.Research on demoralization and related factors in cancer patients.Journal of Chongqing medical university,2017(9):1178-1182.
[33]Li Y,Yeh P,Chen H,et al.Posttraumatic growth and demoralization after cancer:the effects of patients'meaning-making.Palliative and Supportive Care,2015,13(5):1449-1458.
[34]Lee C,Fang C,Yang Y,et al.Demoralization syndrome among cancer outpatients in Taiwan.Supportive Care in Cancer,2012,20(10):2259-2267.
[35]林家惠,王枝燦.探讨癌症病人疼痛与失志状态之关联.护理杂志,2017,64(1):51.Lin JH,Wang ZC.The relationship between pain and demoralization in cancer patients.The Journal of Nursing,2017,64(1):51.
[36]Robinson S,Kissane DW,Brooker J,et al.A review of the construct of demoralization:history,definitions,and future directions for palliative care.American Journal of Hospice and Palliative Medicine,2015,33(1):93-101.
[37]Robinson S,Kissane DW,Brooker J,et al.The relationship between poor quality of life and desire to hasten death:a multiple mediation model examining the contributions of depression,demoralization,loss of control,and low selfworth.J Pain Symptom Manage,2017,53(2):243-249.
[38]Lo C,Hales S,Rydall A,et al.Managing Cancer And Living Meaningfully(CALM):study protocol for a randomized controlled trial.Trials,2015,16(1):391.
[39]Griffith JL.Hope Modules:brief psychotherapeutic interventions to counter demoralization from daily stressors of chronic illness.Academic Psychiatry,2017(1):1-11.
[2]邓莉莎,庞英,何毅,等.恶性肿瘤患者志气缺失的发生及影响因素分析.医学与哲学(B),2017(4):75-79.Deng LS,Pang Y,He Y,et al.The occurrence and influencing factors of demoralization in advanced cancer patients.Medicine and Philosophy(B),2017(4):75-79.
[3]刘明辉,陈萌蕾,顾筱莉,等.晚期恶性肿瘤患者心理状况初步分析.中国癌症杂志,2014(11):852-856.Liu MH,Chen ML,Gu XL,et al.Preliminary analysis of the psychological status of the advanced cancer patients.China Oncology,2014(11):852-856.
[4]李玉琪,周汎澔,王秀红.失志的概念分析.护理杂志,2015,62(3):83-88.Li YQ,Zhou FH,Wang XH.Demoralization:a concept analysis.The Journal of Nursing,2015,62(3):83-88.
[5]Brewer BW,Caspari JM,Youngwerth J,et al.Demoralization in medical illness:feasibility and acceptability of a pilot educational intervention for inpatient oncology nurses.Palliative and Supportive Care,2017,15(1):1-8.
[6]Fang C,Chang M,Chen P,et al.A correlational study of suicidal ideation with psychological distress,depression,and demoralization in patients with cancer.Supportive Care in Cancer,2014,22(12):3165-3174.
[7]Mehnert A,Vehling S,H?cker A,et al.Demoralization and depression in patients with advanced cancer:validation of the German version of the Demoralization Scale.Journal of Pain and Symptom Management,2011,42(5):768-776.
[8]Robinson S,Kissane DW,Brooker J,et al.A systematic review of the demoralization syndrome in individuals with progressive disease and cancer:a decade of research.Journal of Pain and Symptom Management,2015,49(3):595-610.
[9]Vehling S,Mehnert A.Symptom burden,loss of dignity,and demoralization in patients with cancer:a mediation model.Psycho-Oncology,2014,23(3):283-290.
[10]Grassi L,Nanni MG.Demoralization syndrome:new insights in psychosocial cancer care.Cancer,2016,122(14):2130-2133.
[11]Frank JD,Frank JB.Demoralization and unexplained illness in two cohorts of American soldiers overseas.J Nerv Ment Dis,1996,184(7):445-446.
[12]Clarke DM,Kissane DW.Demoralization:its phenomenology and importance.Aust NZJ Psychiatry,2002,36(6):733-742.
[13]Kissane DW.The contribution of demoralization to end of life decisionmaking.Hastings Center Report,2004,34(4):21-31.
[14]Kissane DW,Wein S,Love A,et al.The Demoralization Scale:a report of its development and preliminary validation,2004,20(4):269-276.
[15]Juli?o M,Nunes B,Barbosa A.Prevalence and factors associated with demoralization syndrome in patients with advanced disease:results from a cross-sectional Portuguese study.Palliative and Supportive Care,2016,14(5):468-473.
[16]Costantini A,Picardi A,Brunetti S,et al.Italian version of Demoralization Scale:a validation study.Rivista Di Psichiatria,2013,48(3):234-239.
[17]Rudilla D,Galiana L,Oliver A,et al.Demoralization Scale in Spanish-speaking palliative care patients.Journal of Pain and Symptom Management,2016,51(4):769-775.
[18]洪晓琪.癌症病人失志量表中文版之信效度检测.内科学志,2010,21(6):427-435.Hong XQ.Reliability and validity of Demoralization Scale-mandar in version of cancer patients.Journal of Internal Medicine,2010,21(6):427-435.
[19]Robinson S,Kissane DW,Brooker J,et al.Refinement and revalidation of the demoralization scale:the DS-II-internal validity.Cancer,2016,122(14):2251-2259.
[20]Grassi L,Costantini A,Kissane D,et al.The factor structure and use of the Demoralization Scale(DS-IT)in Italian cancer patients.PsychoOncology,2017,26(11):1965.
[21]Cockram CA,Doros G,De FJM.Diagnosis and measurement of subjective incompetence:the clinical hallmark of demoralization.Psychotherapy&Psychosomatics,2009,78(6):342.
[22]Cockram CA,Doros G,De FJM.Subjective incompetence as a clinical hallmark of demoralization in cancer patients without mental disorder.Primary Psychiatry,2010,17(7):54-58.
[23]Porcelli P,Sonino N.Interview for the diagnostic criteria for psychosomatic research.Advances in Psychosomatic Medicine,2007(28):174.
[24]Guidi J,Rafanelli C,Roncuzzi R,et al.Assessing psychological factors affecting medical conditions:comparison between different proposals.Gen Hosp Psychiatry,2013,35(2):141-146.
[25]Galeazzi GM,Ferrari S,Mackinnon A,et al.Interrater reliability,prevalence,and relation to ICD-10 diagnoses of the diagnostic criteria for psychosomatic research in consultation-liaison psychiatry patients.Psychosomatics,2004,45(5):386-393.
[26]Grassi L,Rossi E,Sabato S,et al.Diagnostic criteria for psychosomat ic resea rch a nd psychosocial variables in breast cancer patients.Psychosomatics,2004,45(6):483-491.
[27]Porcelli P,Guidi J.The clinical utility of the diagnostic criteria for psychosomatic research:a review of studies.Psychotherapy&Psychosomatics,2015,84(5):265-272.
[28]Tecuta L,Tomba E,Grandi S,et al.Demoralization:a systematic review on its clinical characterization.Psychological Medicine,2015,45(4):673-691.
[29]Vehling S,Oechsle K,Koch U,et al.Receiving palliative treatment moderates the effect of age and gender on demoralization in patients with cancer.Plos One,2013,8(3):e59417.
[30]Li Y,Ho C,Wang H.Demoralization in cancer patients and related factors in Taiwan.Cancer Nursing,2017,40(1):54-60.
[31]Li Y,Ho C,Wang H.Protective factors of demoralization among cancer patients in Taiwan:an age-matched and gender-matched study.Asian Nursing Research,2017,11(3):174-179.
[32]梁寅寅,甘秀妮,王玉琼.癌症患者失志状况及影响因素研究.重庆医科大学学报,2017(9):1178-1182.Liang YY,Gan XN,Wang YQ.Research on demoralization and related factors in cancer patients.Journal of Chongqing medical university,2017(9):1178-1182.
[33]Li Y,Yeh P,Chen H,et al.Posttraumatic growth and demoralization after cancer:the effects of patients'meaning-making.Palliative and Supportive Care,2015,13(5):1449-1458.
[34]Lee C,Fang C,Yang Y,et al.Demoralization syndrome among cancer outpatients in Taiwan.Supportive Care in Cancer,2012,20(10):2259-2267.
[35]林家惠,王枝燦.探讨癌症病人疼痛与失志状态之关联.护理杂志,2017,64(1):51.Lin JH,Wang ZC.The relationship between pain and demoralization in cancer patients.The Journal of Nursing,2017,64(1):51.
[36]Robinson S,Kissane DW,Brooker J,et al.A review of the construct of demoralization:history,definitions,and future directions for palliative care.American Journal of Hospice and Palliative Medicine,2015,33(1):93-101.
[37]Robinson S,Kissane DW,Brooker J,et al.The relationship between poor quality of life and desire to hasten death:a multiple mediation model examining the contributions of depression,demoralization,loss of control,and low selfworth.J Pain Symptom Manage,2017,53(2):243-249.
[38]Lo C,Hales S,Rydall A,et al.Managing Cancer And Living Meaningfully(CALM):study protocol for a randomized controlled trial.Trials,2015,16(1):391.
[39]Griffith JL.Hope Modules:brief psychotherapeutic interventions to counter demoralization from daily stressors of chronic illness.Academic Psychiatry,2017(1):1-11.