艾滋病患者疾病不确定感与自我感受负担的相关性研究
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摘要
目的探讨艾滋病患者疾病不确定感与自我感受负担的相关性,为制定心理护理干预措施提供参考。方法采用一般资料表、疾病不确定感量表、自我感受负担量表,对符合纳入标准的132例艾滋病住院患者进行问卷调查。结果艾滋病患者疾病不确定感总分为(103.67±10.22)分,处于中高等水平;自我感受负担总分为(34.22±6.16)分,处于中高等水平。疾病不确定感总分与自我感受负担总分呈正相关(r=0.660,P<0.01)。结论艾滋病患者疾病不确定感与自我感受负担相关。临床护理工作中应给予针对性心理护理,减少艾滋病患者自我感受负担,从而降低患者疾病不确定感,提高患者的生活质量。
Objective To investigate the correlation between uncertainty in illness and self-perceived burden in patients with the acquired immune deficiency syndrome(AIDS), and to provide evidence for the development of psychological interventions. Methods A total of 132 AIDS hospitalized patients who met the inclusion criteria were surveyed using a self-made general data sheet, Mishel's Uncertainty in Illness Scale(MUIS)and Self-Perceived Burden Scale(SPBS). Results The total score of MUIS in AIDS patients was(103.67±10.22), which was at a medium level. The total score of SPBS was(34.22±6.16), which was at a medium level. There was a positive correlation between total score of MUIS and SPBS(r=0.660, P<0.01). Conclusion The uncertainty in illness was positively correlated with the self-perceived burden in AIDS patients. Appropriate psychological interventions should be carry out to reduce the self-perceived burden of patients, thereby reducing the uncertainty in illness and improving the quality of life of AIDS patients.
Objective To investigate the correlation between uncertainty in illness and self-perceived burden in patients with the acquired immune deficiency syndrome(AIDS), and to provide evidence for the development of psychological interventions. Methods A total of 132 AIDS hospitalized patients who met the inclusion criteria were surveyed using a self-made general data sheet, Mishel's Uncertainty in Illness Scale(MUIS)and Self-Perceived Burden Scale(SPBS). Results The total score of MUIS in AIDS patients was(103.67±10.22), which was at a medium level. The total score of SPBS was(34.22±6.16), which was at a medium level. There was a positive correlation between total score of MUIS and SPBS(r=0.660, P<0.01). Conclusion The uncertainty in illness was positively correlated with the self-perceived burden in AIDS patients. Appropriate psychological interventions should be carry out to reduce the self-perceived burden of patients, thereby reducing the uncertainty in illness and improving the quality of life of AIDS patients.
引文
[1] 江欣悦, 刘拽花, 徐钟庚. 艾滋病与艾滋病家庭研究进展[J]. 中国艾滋病性病, 2017, 23(7): 674-676.
[2] MISHEL M H. Uncertainty in illness[J]. J Nurs Scholarsh, 1988, 20(4): 225-232.
[3] LI L, WU S, WU Z, et al. Understanding family support for people living with HIV/AIDS in Yunnan, China[J]. Aids Behav, 2006, 10(5): 509-517.
[4] 杨冬叶, 叶菁菁, 周凤, 等. 颞下颌关节紊乱病患者疾病不确定感及情绪与应对方式的相关性研究[J]. 中华护理杂志, 2015, 50(11): 1298-1302.
[5] COUSINEAU N, MCDOWELL I, HOTZ S, et al. Measuring chronic patients' feelings of being a burden to their caregivers: development and preliminary validation of a scale[J]. Med Care, 2003, 41(1): 110-118.
[6] SIMMONS L A. Self-perceived burden in cancer patients: validation of the Self-perceived Burden Scale[J]. Cancer Nurs, 2007, 30(5): 405-411.
[7] 季玉花, 华凤连, 朱翠萍. 艾滋病患者的疾病不确定感与社会支持相关性分析[J]. 中国全科医学, 2008, 11(17): 1571-1572.
[8] 梁房文, 罗济伦, 黄澍杰, 等. 农村地区性病门诊男性就诊者心理现状及其影响因素分析[J]. 中国艾滋病性病, 2017, 23(10): 935-937.
[9] 严明珠, 马智勇, 赵艳秋, 等. 个案管理模式对肺癌化疗患者生活质量及自我感受负担的影响[J]. 郑州大学学报(医学版), 2018, 53(2): 241-244.
[10] MCPHERSON C J, WILSON K G, MURRAY M A. Feeling like a burden: Exploring the perspectives of patients at the end of life[J]. Soc Sci Med, 2007, 64(2): 417-427.
[11] KANG C R, BANG J H, CHO S I, et al. Suicidal ideation and suicide attempts among human immunodeficiency virus-infected adults: differences in risk factors and their implications[J]. Aids Care, 2015, 28(3): 306-313.
[12] CHOCHINOV H M, KRISTJANSON L J, Hack T F, et al. Burden to others and the terminally ill[J]. J Pain Symptom Manage, 2007, 34(5): 463-471.
[13] 景颖颖, 万婕, 沈佳雯, 等. 脑卒中患者疾病不确定感及自我感受负担的相关性研究[J]. 护理管理杂志, 2017, 17(5): 344-346.
[14] 刘欣欣, 谢世平, 桑海艳, 等. HIV/AIDS患者的心理健康状况及其影响因素[J]. 中华医院感染学杂志, 2014, 24(1): 136-137.
[15] 万荣珍, 何茂锐, 李冬菊, 等. 压力管理方案在艾滋病患者陪伴者中的应用[J]. 中华护理杂志, 2018, 53(4): 443-447.
[16] YADAV U N, CHANDRASEKHARAN V, GUDDATTU V, et al. Mixed method approach for determining factors associated with late presentation to HIV/AIDS care in southern India[J]. J Postgrad Med, 2016, 62(3): 173-177.
[2] MISHEL M H. Uncertainty in illness[J]. J Nurs Scholarsh, 1988, 20(4): 225-232.
[3] LI L, WU S, WU Z, et al. Understanding family support for people living with HIV/AIDS in Yunnan, China[J]. Aids Behav, 2006, 10(5): 509-517.
[4] 杨冬叶, 叶菁菁, 周凤, 等. 颞下颌关节紊乱病患者疾病不确定感及情绪与应对方式的相关性研究[J]. 中华护理杂志, 2015, 50(11): 1298-1302.
[5] COUSINEAU N, MCDOWELL I, HOTZ S, et al. Measuring chronic patients' feelings of being a burden to their caregivers: development and preliminary validation of a scale[J]. Med Care, 2003, 41(1): 110-118.
[6] SIMMONS L A. Self-perceived burden in cancer patients: validation of the Self-perceived Burden Scale[J]. Cancer Nurs, 2007, 30(5): 405-411.
[7] 季玉花, 华凤连, 朱翠萍. 艾滋病患者的疾病不确定感与社会支持相关性分析[J]. 中国全科医学, 2008, 11(17): 1571-1572.
[8] 梁房文, 罗济伦, 黄澍杰, 等. 农村地区性病门诊男性就诊者心理现状及其影响因素分析[J]. 中国艾滋病性病, 2017, 23(10): 935-937.
[9] 严明珠, 马智勇, 赵艳秋, 等. 个案管理模式对肺癌化疗患者生活质量及自我感受负担的影响[J]. 郑州大学学报(医学版), 2018, 53(2): 241-244.
[10] MCPHERSON C J, WILSON K G, MURRAY M A. Feeling like a burden: Exploring the perspectives of patients at the end of life[J]. Soc Sci Med, 2007, 64(2): 417-427.
[11] KANG C R, BANG J H, CHO S I, et al. Suicidal ideation and suicide attempts among human immunodeficiency virus-infected adults: differences in risk factors and their implications[J]. Aids Care, 2015, 28(3): 306-313.
[12] CHOCHINOV H M, KRISTJANSON L J, Hack T F, et al. Burden to others and the terminally ill[J]. J Pain Symptom Manage, 2007, 34(5): 463-471.
[13] 景颖颖, 万婕, 沈佳雯, 等. 脑卒中患者疾病不确定感及自我感受负担的相关性研究[J]. 护理管理杂志, 2017, 17(5): 344-346.
[14] 刘欣欣, 谢世平, 桑海艳, 等. HIV/AIDS患者的心理健康状况及其影响因素[J]. 中华医院感染学杂志, 2014, 24(1): 136-137.
[15] 万荣珍, 何茂锐, 李冬菊, 等. 压力管理方案在艾滋病患者陪伴者中的应用[J]. 中华护理杂志, 2018, 53(4): 443-447.
[16] YADAV U N, CHANDRASEKHARAN V, GUDDATTU V, et al. Mixed method approach for determining factors associated with late presentation to HIV/AIDS care in southern India[J]. J Postgrad Med, 2016, 62(3): 173-177.