患方疗效汇报在整形外科的应用前景
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摘要
患方疗效汇报(Patient-reported outcome,PRO)近年来在医学领域逐渐发展,主要通过心理量表对患者进行生活质量的评估,旨在直接从患者处获得量化信息,以查明患者疾病的症状严重程度,以及对患者功能状态和健康相关生活质量的影响,评估治疗的效果。符合规范的PRO量表可以在医疗和科研的各个环节起到积极作用。通过患方疗效汇报,医疗行为的中心由疾病转移到患者,在注重个性化治疗的整形外科尤为重要。本文对患方疗效汇报在整形外科的应用及其前景进行综述。
Patient-reported outcome(PRO) has become a trend in modern medicine.Through psychometric measurement,PRO can demonstrate quantified information about the severity of disease and its affect on the patient 's functional state and health related quality of life,and thus provide substantial evidence on the efficacy of treatment.Standardized patient-reported outcome measurement may help with every aspect in the practice of plastic surgery.With PRO,the center of care can be transferred from the disease to the patient,which is exactly the goal of plastic surgery.In this paper,patient-reported outcome and its prospective application in plastic surgery were reviewed.
Patient-reported outcome(PRO) has become a trend in modern medicine.Through psychometric measurement,PRO can demonstrate quantified information about the severity of disease and its affect on the patient 's functional state and health related quality of life,and thus provide substantial evidence on the efficacy of treatment.Standardized patient-reported outcome measurement may help with every aspect in the practice of plastic surgery.With PRO,the center of care can be transferred from the disease to the patient,which is exactly the goal of plastic surgery.In this paper,patient-reported outcome and its prospective application in plastic surgery were reviewed.
引文
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[2]Medarov BI,Victorson DE,Judson MA.Patient-reported outcom measures for sleep disorders and related problems:clinical and research applications[J].Chest,2013,143(6):1809-1818.
[3]Frosch DL.Patient-reported outcomes as a measure of healthcar quality[J].J Gen Intern Med,2015,30(10):1383-1384.
[4]Ho AL,Scott AM,Klassen AF,et al.Measuring quality of life and patient satisfaction in facial paralysis patients:a systemati review of patient-reported outcome measures[J].Plast Reconst Surg,2012,130(1):91-99.
[5]Frost MH,Reeve BB,Liepa AM,et al.What is sufficient evidenc for the reliability and validity of patient‐reported outcome measure[J]?Value Health,2007,10 Suppl 2:S94-S105.
[6]Anthoine E,Moret L,Regnault A,et al.Sample size used to validat a scale:a review of publications on newly-developed patien reported outcomes measures[J].Health Qual Life Outcomes,201412:176.
[7]Alsarraf R.Outcomes research in facial plastic surgery:a review and new directions[J].Aesthet Plast Surg,2000,24(3):192-197.
[8]Ching S,Thoma A,Mccabe RE,et al.Measuring outcomes in aesthetic surgery:a comprehensive review of the literature[J]Plast Reconstr Surg,2003,111(1):469-480.
[9]Pusic AL,Lemaine V,Klassen AF,et al.Patient-reported outcom measures in plastic surgery:use and interpretation in evidencebased medicine[J].Plast Reconstr Surg,2011,127(3):1361-1367.
[10]Harris DL.Cosmetic surgery-where does it begin[J]?Br J Plas Surg,1982,35(3):281-286.
[11]Sarwer DB,Brown GK,Evans DL.Cosmetic breast augmentation and suicide[J].Am J Psychiatry,2007,164(7):1006-1013.
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[13]Klassen AF,Cano SJ,Scott AM,et al.Measuring outcomes tha matter to face-lift patients:development and validation of FACE-Q appearance appraisal scales and adverse effects checklist for the lower face and neck[J].Plast Reconstr Surg,2014,133(1):21-30.
[14]吕磊,马少林,伊其忠.美容整形受术者心理评估与术后满意度的相关性研究[J].现代生物医学进展,2008,8(1):141-143.
[15]Harris DL,Carr AT.The derriford appearance scale(DAS59):a new psychometric scale for the evaluation of patients with disfigurements and aesthetic problems of appearance[J].Br JPlast Surg,2001,54(3):216-222.
[16]Carr T,Moss T,Harris D.The DAS24:a short form of the Derriford Appearance Scale DAS59 to measure individual responses to living with problems of appearance[J].Br J Health Psychol,2005,10(2):285-298.
[17]曹阳,余小萍.PRO量表国内外研究近况[J].中医杂志,2014,55(8):710-714.
[18]Emery MP,Perrier LL,Acquadro C.Patient-reported outcome and quality of life instruments database(PROQOLID):frequently asked questions[J].Health Qual Life Outcomes,2005,3:12.
[19]任晓琳,梁平,刘雪琴.癫痫患者生活质量量表-31(中文版)的翻译及修订[J].解放军护理杂志,2003,20(4):99-101.
[20]奚悦文,范维琥.明尼苏达心力衰竭生活质量调查表适用性的评价[J].上海医学,2004,27(4):222-225.
[21]刘贤臣,唐茂芹.匹慈堡睡眠质量指数的信度和效度研究[J].中华精神科杂志,1996,29(2):103-107.
[22]张慧敏,艾永梅,吴燕萍,等.阿尔茨海默病生命质量测评量表(QOL-AD)中文版信度和效度分析[J].中国卫生统计,2013,30(1):57-59.
[23]杨芬,柳青,贾卫东,等.简体中文版MOS-HIV量表信度与效度评价[J].中国公共卫生,2007,23(8):981-982.
[24]Snyder CF,Blackford AL,Aaronson NK,et al.Can patientreported outcome measures identify cancer patients'most bothersome issues[J]?J Clin Oncol,2011,29(9):1216-1220.
[25]Hunter J,Corcoran K,Leeder S,et al.Is it time to abandon paper?The use of emails and the Internet for health services research-a cost-effectiveness and qualitative study[J].J Eval Clin Pract,2013,19(5):855-861.
[26]Rolfson O,Salomonsson R,Dahlberg LE,et al.Internet-based follow-up questionnaire for measuring patient-reported outcome after total hip replacement surgery-reliability and response rate[J].Value Health,2011,14(2):316-321.
[27]李娜.比较电子化和传统纸质病人报告结局在神经科学临床研究中的应用[D].上海:复旦大学,2012.
[28]Kyte D,Draper H,Calvert M.Patient-reported outcome alerts:ethical and logistical considerations in clinical trials[J].JAMA,2013,310(12):1229-1230.
[29]Cella D,Riley W,Stone A,et al.The patient-reported outcomes measurement information system(PROMIS)developed and tested its first wave of adult self-reported health outcome item banks:2005-2008[J].J Clin Epidemiol,2010,63(11):1179-1194.
[2]Medarov BI,Victorson DE,Judson MA.Patient-reported outcom measures for sleep disorders and related problems:clinical and research applications[J].Chest,2013,143(6):1809-1818.
[3]Frosch DL.Patient-reported outcomes as a measure of healthcar quality[J].J Gen Intern Med,2015,30(10):1383-1384.
[4]Ho AL,Scott AM,Klassen AF,et al.Measuring quality of life and patient satisfaction in facial paralysis patients:a systemati review of patient-reported outcome measures[J].Plast Reconst Surg,2012,130(1):91-99.
[5]Frost MH,Reeve BB,Liepa AM,et al.What is sufficient evidenc for the reliability and validity of patient‐reported outcome measure[J]?Value Health,2007,10 Suppl 2:S94-S105.
[6]Anthoine E,Moret L,Regnault A,et al.Sample size used to validat a scale:a review of publications on newly-developed patien reported outcomes measures[J].Health Qual Life Outcomes,201412:176.
[7]Alsarraf R.Outcomes research in facial plastic surgery:a review and new directions[J].Aesthet Plast Surg,2000,24(3):192-197.
[8]Ching S,Thoma A,Mccabe RE,et al.Measuring outcomes in aesthetic surgery:a comprehensive review of the literature[J]Plast Reconstr Surg,2003,111(1):469-480.
[9]Pusic AL,Lemaine V,Klassen AF,et al.Patient-reported outcom measures in plastic surgery:use and interpretation in evidencebased medicine[J].Plast Reconstr Surg,2011,127(3):1361-1367.
[10]Harris DL.Cosmetic surgery-where does it begin[J]?Br J Plas Surg,1982,35(3):281-286.
[11]Sarwer DB,Brown GK,Evans DL.Cosmetic breast augmentation and suicide[J].Am J Psychiatry,2007,164(7):1006-1013.
[12]Pusic AL,Klassen AF,Scott AM,et al.Development of a new patient-reported outcome measure for breast surgery:th BREAST-Q[J].Plast Reconstr Surg,2009,124(2):345-353.
[13]Klassen AF,Cano SJ,Scott AM,et al.Measuring outcomes tha matter to face-lift patients:development and validation of FACE-Q appearance appraisal scales and adverse effects checklist for the lower face and neck[J].Plast Reconstr Surg,2014,133(1):21-30.
[14]吕磊,马少林,伊其忠.美容整形受术者心理评估与术后满意度的相关性研究[J].现代生物医学进展,2008,8(1):141-143.
[15]Harris DL,Carr AT.The derriford appearance scale(DAS59):a new psychometric scale for the evaluation of patients with disfigurements and aesthetic problems of appearance[J].Br JPlast Surg,2001,54(3):216-222.
[16]Carr T,Moss T,Harris D.The DAS24:a short form of the Derriford Appearance Scale DAS59 to measure individual responses to living with problems of appearance[J].Br J Health Psychol,2005,10(2):285-298.
[17]曹阳,余小萍.PRO量表国内外研究近况[J].中医杂志,2014,55(8):710-714.
[18]Emery MP,Perrier LL,Acquadro C.Patient-reported outcome and quality of life instruments database(PROQOLID):frequently asked questions[J].Health Qual Life Outcomes,2005,3:12.
[19]任晓琳,梁平,刘雪琴.癫痫患者生活质量量表-31(中文版)的翻译及修订[J].解放军护理杂志,2003,20(4):99-101.
[20]奚悦文,范维琥.明尼苏达心力衰竭生活质量调查表适用性的评价[J].上海医学,2004,27(4):222-225.
[21]刘贤臣,唐茂芹.匹慈堡睡眠质量指数的信度和效度研究[J].中华精神科杂志,1996,29(2):103-107.
[22]张慧敏,艾永梅,吴燕萍,等.阿尔茨海默病生命质量测评量表(QOL-AD)中文版信度和效度分析[J].中国卫生统计,2013,30(1):57-59.
[23]杨芬,柳青,贾卫东,等.简体中文版MOS-HIV量表信度与效度评价[J].中国公共卫生,2007,23(8):981-982.
[24]Snyder CF,Blackford AL,Aaronson NK,et al.Can patientreported outcome measures identify cancer patients'most bothersome issues[J]?J Clin Oncol,2011,29(9):1216-1220.
[25]Hunter J,Corcoran K,Leeder S,et al.Is it time to abandon paper?The use of emails and the Internet for health services research-a cost-effectiveness and qualitative study[J].J Eval Clin Pract,2013,19(5):855-861.
[26]Rolfson O,Salomonsson R,Dahlberg LE,et al.Internet-based follow-up questionnaire for measuring patient-reported outcome after total hip replacement surgery-reliability and response rate[J].Value Health,2011,14(2):316-321.
[27]李娜.比较电子化和传统纸质病人报告结局在神经科学临床研究中的应用[D].上海:复旦大学,2012.
[28]Kyte D,Draper H,Calvert M.Patient-reported outcome alerts:ethical and logistical considerations in clinical trials[J].JAMA,2013,310(12):1229-1230.
[29]Cella D,Riley W,Stone A,et al.The patient-reported outcomes measurement information system(PROMIS)developed and tested its first wave of adult self-reported health outcome item banks:2005-2008[J].J Clin Epidemiol,2010,63(11):1179-1194.