肝炎后肝硬化病人症状群纵向研究进展
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摘要
介绍了症状群相关的概念、研究方法与测评工具,主要综述了肝炎后肝硬化症状群纵向研究现状,提出应制定有效的症状应对策略和积极的心理应对方式,提高病人自我管理效能、依从性、生存质量和幸福指数。
This article introduced the concepts,research methods and evaluation tools related to symptom dusters.It mainly reviewed the research status quo of post-hepatitis cirrhosis symptom clusters and proposed that effective symptom response strategies and positive psychological coping styles should be developed to improve patients′ self-management effecacy,compliance,quality of life and happiness index.
This article introduced the concepts,research methods and evaluation tools related to symptom dusters.It mainly reviewed the research status quo of post-hepatitis cirrhosis symptom clusters and proposed that effective symptom response strategies and positive psychological coping styles should be developed to improve patients′ self-management effecacy,compliance,quality of life and happiness index.
引文
[1] 陶亮,龚环宇.肝硬化与肠源性内毒素血症关系的研究进展[J].中国感染控制杂志,2015,14(2):139-144.
[2] World Health Organization.Global hepatitis report,2017[EB/OL].[2017-10-16].http://www.who.int/hepatitis/publications/global-hepatitis-report2017/en/.
[3] 陆再英,终南山.内科学[M].7版.北京:人民卫生出版社,2008:446-456.
[4] 吕探云,孙玉梅.健康评估[M].3版.北京:人民卫生出版社,2012:2-5.
[5] LENZ E R,SUPPE F,GIFT A G,et al.Collaborative development of middle-range nursing theories:toward a theory of unpleasant symptoms[J].Adv Nurs Sci,1995,17(3):1-13.
[6] RHODES V A,WATSON P M.Symptom distress:the concept past and present[J].Semin Oncol Nurs,1987,3(4):242-247.
[7] LENZ E R,PUGH L C,MILLIGAN R A,et al.The middle-range theory of unpleasant symptoms:an update[J].Adv Nurs Sci,1997,19(3):14-27.
[8] 鲍梦婕,王建宁,刘爱珍,等.症状体验的概念分析[J].中国实用护理杂志,2014,30(2):52-54.
[9] ARMSTRONG T S.Symptoms experience:a concept of analysis[J].Oncol Nurs Forum,2003,30(4):601-606.
[10] DODD M J,MIASKOWSKI C,PAUL S M.Symptom clusters and their effect on the functional status of patients with cancer[J].Oncol Nurs Forum,2001,28(3):465-470.
[11] 王毅欣.原发性肝癌患者自我效能感在其症状群与生活质量间的作用模型研究[D].上海:第二军医大学,2012.
[12] KIM H J,MCGUIRE D B,TULMAN L,et al.Symptom clusters:concept analysis and clinical implications for cancer nursing[J].Cancer Nurs,2005,28(4):270-284.
[13] CHEN M L,TSENG H C.Symptom clusters in cancer patients[J].Support Care Cancer,2006,14(8):825-830.
[14] KIRKOVA J,AKTAS A,WALSH D,et al.Consistency of symptom clusters in advanced cancer[J].Am J Hosp Palliat Care,2010,27 (5):342-346.
[15] MIASKOWSKI C,DODD M,LEE K.Symptom clusters:the new frontier in symptom management research[J].J Natl Cancer Inst Monogr,2004,32(32):17-21.
[16] BARSEVICK A M,WHITMER K,NAIL L M,et al.Symptom clusters research:conceptual,design,measurement and analysis issues[J].J Pain Symptom Manage,2006,31(1):85-95.
[17] 李楠楠,吴静,周洁.癌症患者症状群纵向研究现状综述[J].中华护理杂志,2017,52(1):24-28.
[18] KIM H J,ABRAHAM I L.Statistical approaches to modeling symptom clusters in cancer patients[J].Cancer Nurs,2008,31(5):e1-e10.
[19] 王家良.临床流行病学:临床科研设计、测量与评价[M].4版.上海:上海科学技术出版社,2014:174-178.
[20] HENLY S J,KALLAS K D,KLATT C M,et al.The notion of time in symptom experiences[J].Nurs Res,2003,52(6):410-417.
[21] 张卫,耿小平,章新琼,等.症状群管理:症状管理的新视角[J].医学与哲学,2016,37(1B):5-7;19.
[22] KIM H J,ABRAHAM I L,MALONE P S.Analytical methods and issues for symptom cluster research in oncology[J].Curr Opin Support Palliat Care,2013,7(1):45-53.
[23] DODD M J,JANSON S,FACIONE N,et al.Advancing the science of symptom management[J].J Adv Nurs,2001,33(5):668-676.
[24] PARKER K P,KIMBLE L P,DUNBAR S B,et al.Symptom interactions as mechanisms underlying symptom pairs and clusters[J].J Nurs Scholarsh,2005,37(3):209-215.
[25] 王毅欣,刘晓虹.国外癌症患者症状群相关概念及理论模式的研究与启示[J].中国实用护理杂志,2011,27(35):48-51.
[26] FLEISHMAN S B.Treatment of symptom clusters:pain,depression and fatigue[J].J Natl Cancer Inst Monogr,2004(32):119-123.
[27] 成燕,童莺歌,刘敏君,等.术后活动性疼痛护理评估对疼痛管理质量的影响[J].中华护理杂志,2015,50(8):924-928.
[28] 孙振晓,刘化学,焦林瑛,等.医院焦虑抑郁量表的信度及效度研究[J].中华临床医师杂志(电子版),2017,11(2):198-201.
[29] 张平,杜文海.匹兹堡睡眠质量指数的实际应用[J].疾病控制杂志,2001,5(4):318-320.
[30] WU L J,WU M S,LIEN G S,et al.Fatigue and physical activity levels in patients with liver cirrhosis[J].J Clin Nurs,2011,21(1/2):129-138.
[31] LAM W W,LAW C C,FU Y T,et al.New insights in symptom assessment:the Chinese Versions of the Memorial Symptom Assessment Scale Short Form (MSAS-SF) and the Condensed MSAS (CMSAS)[J].J Pain Symptom Manage,2008,36(6):584-595.
[32] HANSEN L,LEO M C,CHANG M F,et al.Symptom distress in patients with end-stage liver disease toward the end of life[J].Gastroenterol Nurs,2015,38(3):201-210.
[33] WANG X S,WANG Y,GUO H,et al.Chinese version of the M.D.Anderson Symptom Inventory:validation and application of symptom measurement in cancer patients[J].Cancer,2004,101(8):1890-1901.
[34] LISS H,LEO M C,CHANG M F,et al.Symptom distress in patients with end-stage liver disease toward the end of life[J].Gastroenterol Nurs,2015,38(3):201-210.
[35] 胡鑫才,张华,林彦,等.慢性肝病量表在乙型肝炎肝硬化中的应用评价[J].中华肝脏病杂志,2012,20(8):621-627.
[36] World Health Organization.Guidelines for the prevention,care and treatment of persons with chronic hepatitis B infection[EB/OL].[2017-10-16].http://www.who.int/hepatitis/publications/hepatitis-b-guidelines/en/.
[37] 鲍梦婕,王建宁,雷雪英,等.肝硬化住院患者的症状调查与分析[J].中国实用护理杂志,2014,30(21):67-70.
[38] GUO H M,LIU M,XIANG Y T,et al.Insomnia in adults with chronic hepatitis B,liver failure,and cirrhosis:a case-control study[J].Perspectives in Psychiatric Care,2017,53 (1):67-72.
[39] KIM S H,OH E G,LEE W H E E,et al.Symptom experience in Korean patients with liver cirrhosis[J].J Pain Symptom Manage,2006,31(4):326-334.
[40] FRITZ E,HAMMER J.Gastrointestinal symptoms in patients with liver cirrhosis are linked to impaired quality of life and psychological distress[J].Eur J Gastroenterol Hepatol,2009,21(4):370-375.
[41] TSAI L H,LIN C M,CHIANG S C,et al.Symptoms and distress among patients with liver cirrhosis but without hepatocellular carcinoma in Taiwan[J].Gastroenterol Nurs,2014,37(1):49-59.
[42] 董宁,王琳,陆艳,等.肝硬化病人的症状体验及管理现状[J].护理研究,2017,31(7B):2437-2440.
[43] 张琴,刘平,章浩伟,等.900例肝炎后肝硬化中医证候判别模式的研究[J].中国中西医结合杂志,2006,26(8):694-697.
[44] 李毅,刘艳,许永攀,等.基于聚类分析和Logistic回归分析的乙肝后肝硬化症状组合规律研究[J].辽宁中医药大学学报,2017,19(9):164-167.
[45] 马亚丽,周扬,柯方圆,等.基于精神医学量表评估肝硬化患者的心理状态及其与中医证候的关系[J].上海中医药大学学报,2017,31(4):28-31.
[46] WHITE A.Outpatient interventions for hepatology patients with fiuid retention:a review and synthesis of the literature[J].Gastroenterol Nurs,2014,37(3):236-244.
[47] DYSON J K,WEBB G,HIRSCHFIELD G M,et al.Unmet clinical need in autoimmune liver diseases[J].J Hepatol,2015,62(1):208-218.
[48] GULATI R,NAWAZ M,PYRSOPOULOS N T.Comparative analysis of online patient education material pertaining to hepatitis and its complications[J].Eur J Gastroenterol,2016,28(5):558-566.
[49] MCAFEE J L.Developing an advanced practice nurse-led liver clinic[J].Gastroenterol Nurs,2012,35(3):215-224.
[50] NEWTON J L,JONES DAVID E J.Managing systemic symptoms in chronic liver disease[J].J Hepatol,2012,56:S46-S55.
[51] 王月琳,蔡春江,王颖,等.中医外治法治疗肝硬化概况[J].湖南中医杂志,2016,32(1):174-175.
[52] 邱智辉,黄毅斌,陈春雷,等.中西医结合治疗肝硬化疗效观察[J].海南医学,2016,27(16):2627-2629.
[53] 齐雪阳,张勤生.耳穴压豆辅助治疗对慢性乙型肝炎肝硬化腹胀症状及生活质量的影响[J].中国老年学杂志,2017,37(12):2982-2984.
[54] 夏莹.中医综合护理对慢性乙型肝炎肝硬化腹胀症状及生活质量的影响[J].四川中医,2016,34(4):199-202.
[55] 王莹莹.应用Orem自理理论提高乙型肝炎肝硬化患者生存质量的探讨[J].中国医药指南,2016,14(20):175-176.
[56] 陈聪.“321”健康教育模式对代偿期肝硬化住院患者焦虑及睡眠质量的影响[J].护理管理杂志,2014,14(1):64-65.
[57] 王晓航,王蓓.肝硬化患者不同时期症状群管理的难点与对策[J].护士进修杂志,2015,30(21):1960-1962.
[58] 王玉枝.中医临床护理路径对乙肝后肝硬化患者效果的影响[J].中西医结合心脑血管病杂志,2016,4(4):133-134.
[59] 谭柳纯,顾春妮,黄雪霞,等.微信在肝硬化病人中医健康教育路径中的应用探讨[J].护理研究,2016,30(2A):495-496.
[2] World Health Organization.Global hepatitis report,2017[EB/OL].[2017-10-16].http://www.who.int/hepatitis/publications/global-hepatitis-report2017/en/.
[3] 陆再英,终南山.内科学[M].7版.北京:人民卫生出版社,2008:446-456.
[4] 吕探云,孙玉梅.健康评估[M].3版.北京:人民卫生出版社,2012:2-5.
[5] LENZ E R,SUPPE F,GIFT A G,et al.Collaborative development of middle-range nursing theories:toward a theory of unpleasant symptoms[J].Adv Nurs Sci,1995,17(3):1-13.
[6] RHODES V A,WATSON P M.Symptom distress:the concept past and present[J].Semin Oncol Nurs,1987,3(4):242-247.
[7] LENZ E R,PUGH L C,MILLIGAN R A,et al.The middle-range theory of unpleasant symptoms:an update[J].Adv Nurs Sci,1997,19(3):14-27.
[8] 鲍梦婕,王建宁,刘爱珍,等.症状体验的概念分析[J].中国实用护理杂志,2014,30(2):52-54.
[9] ARMSTRONG T S.Symptoms experience:a concept of analysis[J].Oncol Nurs Forum,2003,30(4):601-606.
[10] DODD M J,MIASKOWSKI C,PAUL S M.Symptom clusters and their effect on the functional status of patients with cancer[J].Oncol Nurs Forum,2001,28(3):465-470.
[11] 王毅欣.原发性肝癌患者自我效能感在其症状群与生活质量间的作用模型研究[D].上海:第二军医大学,2012.
[12] KIM H J,MCGUIRE D B,TULMAN L,et al.Symptom clusters:concept analysis and clinical implications for cancer nursing[J].Cancer Nurs,2005,28(4):270-284.
[13] CHEN M L,TSENG H C.Symptom clusters in cancer patients[J].Support Care Cancer,2006,14(8):825-830.
[14] KIRKOVA J,AKTAS A,WALSH D,et al.Consistency of symptom clusters in advanced cancer[J].Am J Hosp Palliat Care,2010,27 (5):342-346.
[15] MIASKOWSKI C,DODD M,LEE K.Symptom clusters:the new frontier in symptom management research[J].J Natl Cancer Inst Monogr,2004,32(32):17-21.
[16] BARSEVICK A M,WHITMER K,NAIL L M,et al.Symptom clusters research:conceptual,design,measurement and analysis issues[J].J Pain Symptom Manage,2006,31(1):85-95.
[17] 李楠楠,吴静,周洁.癌症患者症状群纵向研究现状综述[J].中华护理杂志,2017,52(1):24-28.
[18] KIM H J,ABRAHAM I L.Statistical approaches to modeling symptom clusters in cancer patients[J].Cancer Nurs,2008,31(5):e1-e10.
[19] 王家良.临床流行病学:临床科研设计、测量与评价[M].4版.上海:上海科学技术出版社,2014:174-178.
[20] HENLY S J,KALLAS K D,KLATT C M,et al.The notion of time in symptom experiences[J].Nurs Res,2003,52(6):410-417.
[21] 张卫,耿小平,章新琼,等.症状群管理:症状管理的新视角[J].医学与哲学,2016,37(1B):5-7;19.
[22] KIM H J,ABRAHAM I L,MALONE P S.Analytical methods and issues for symptom cluster research in oncology[J].Curr Opin Support Palliat Care,2013,7(1):45-53.
[23] DODD M J,JANSON S,FACIONE N,et al.Advancing the science of symptom management[J].J Adv Nurs,2001,33(5):668-676.
[24] PARKER K P,KIMBLE L P,DUNBAR S B,et al.Symptom interactions as mechanisms underlying symptom pairs and clusters[J].J Nurs Scholarsh,2005,37(3):209-215.
[25] 王毅欣,刘晓虹.国外癌症患者症状群相关概念及理论模式的研究与启示[J].中国实用护理杂志,2011,27(35):48-51.
[26] FLEISHMAN S B.Treatment of symptom clusters:pain,depression and fatigue[J].J Natl Cancer Inst Monogr,2004(32):119-123.
[27] 成燕,童莺歌,刘敏君,等.术后活动性疼痛护理评估对疼痛管理质量的影响[J].中华护理杂志,2015,50(8):924-928.
[28] 孙振晓,刘化学,焦林瑛,等.医院焦虑抑郁量表的信度及效度研究[J].中华临床医师杂志(电子版),2017,11(2):198-201.
[29] 张平,杜文海.匹兹堡睡眠质量指数的实际应用[J].疾病控制杂志,2001,5(4):318-320.
[30] WU L J,WU M S,LIEN G S,et al.Fatigue and physical activity levels in patients with liver cirrhosis[J].J Clin Nurs,2011,21(1/2):129-138.
[31] LAM W W,LAW C C,FU Y T,et al.New insights in symptom assessment:the Chinese Versions of the Memorial Symptom Assessment Scale Short Form (MSAS-SF) and the Condensed MSAS (CMSAS)[J].J Pain Symptom Manage,2008,36(6):584-595.
[32] HANSEN L,LEO M C,CHANG M F,et al.Symptom distress in patients with end-stage liver disease toward the end of life[J].Gastroenterol Nurs,2015,38(3):201-210.
[33] WANG X S,WANG Y,GUO H,et al.Chinese version of the M.D.Anderson Symptom Inventory:validation and application of symptom measurement in cancer patients[J].Cancer,2004,101(8):1890-1901.
[34] LISS H,LEO M C,CHANG M F,et al.Symptom distress in patients with end-stage liver disease toward the end of life[J].Gastroenterol Nurs,2015,38(3):201-210.
[35] 胡鑫才,张华,林彦,等.慢性肝病量表在乙型肝炎肝硬化中的应用评价[J].中华肝脏病杂志,2012,20(8):621-627.
[36] World Health Organization.Guidelines for the prevention,care and treatment of persons with chronic hepatitis B infection[EB/OL].[2017-10-16].http://www.who.int/hepatitis/publications/hepatitis-b-guidelines/en/.
[37] 鲍梦婕,王建宁,雷雪英,等.肝硬化住院患者的症状调查与分析[J].中国实用护理杂志,2014,30(21):67-70.
[38] GUO H M,LIU M,XIANG Y T,et al.Insomnia in adults with chronic hepatitis B,liver failure,and cirrhosis:a case-control study[J].Perspectives in Psychiatric Care,2017,53 (1):67-72.
[39] KIM S H,OH E G,LEE W H E E,et al.Symptom experience in Korean patients with liver cirrhosis[J].J Pain Symptom Manage,2006,31(4):326-334.
[40] FRITZ E,HAMMER J.Gastrointestinal symptoms in patients with liver cirrhosis are linked to impaired quality of life and psychological distress[J].Eur J Gastroenterol Hepatol,2009,21(4):370-375.
[41] TSAI L H,LIN C M,CHIANG S C,et al.Symptoms and distress among patients with liver cirrhosis but without hepatocellular carcinoma in Taiwan[J].Gastroenterol Nurs,2014,37(1):49-59.
[42] 董宁,王琳,陆艳,等.肝硬化病人的症状体验及管理现状[J].护理研究,2017,31(7B):2437-2440.
[43] 张琴,刘平,章浩伟,等.900例肝炎后肝硬化中医证候判别模式的研究[J].中国中西医结合杂志,2006,26(8):694-697.
[44] 李毅,刘艳,许永攀,等.基于聚类分析和Logistic回归分析的乙肝后肝硬化症状组合规律研究[J].辽宁中医药大学学报,2017,19(9):164-167.
[45] 马亚丽,周扬,柯方圆,等.基于精神医学量表评估肝硬化患者的心理状态及其与中医证候的关系[J].上海中医药大学学报,2017,31(4):28-31.
[46] WHITE A.Outpatient interventions for hepatology patients with fiuid retention:a review and synthesis of the literature[J].Gastroenterol Nurs,2014,37(3):236-244.
[47] DYSON J K,WEBB G,HIRSCHFIELD G M,et al.Unmet clinical need in autoimmune liver diseases[J].J Hepatol,2015,62(1):208-218.
[48] GULATI R,NAWAZ M,PYRSOPOULOS N T.Comparative analysis of online patient education material pertaining to hepatitis and its complications[J].Eur J Gastroenterol,2016,28(5):558-566.
[49] MCAFEE J L.Developing an advanced practice nurse-led liver clinic[J].Gastroenterol Nurs,2012,35(3):215-224.
[50] NEWTON J L,JONES DAVID E J.Managing systemic symptoms in chronic liver disease[J].J Hepatol,2012,56:S46-S55.
[51] 王月琳,蔡春江,王颖,等.中医外治法治疗肝硬化概况[J].湖南中医杂志,2016,32(1):174-175.
[52] 邱智辉,黄毅斌,陈春雷,等.中西医结合治疗肝硬化疗效观察[J].海南医学,2016,27(16):2627-2629.
[53] 齐雪阳,张勤生.耳穴压豆辅助治疗对慢性乙型肝炎肝硬化腹胀症状及生活质量的影响[J].中国老年学杂志,2017,37(12):2982-2984.
[54] 夏莹.中医综合护理对慢性乙型肝炎肝硬化腹胀症状及生活质量的影响[J].四川中医,2016,34(4):199-202.
[55] 王莹莹.应用Orem自理理论提高乙型肝炎肝硬化患者生存质量的探讨[J].中国医药指南,2016,14(20):175-176.
[56] 陈聪.“321”健康教育模式对代偿期肝硬化住院患者焦虑及睡眠质量的影响[J].护理管理杂志,2014,14(1):64-65.
[57] 王晓航,王蓓.肝硬化患者不同时期症状群管理的难点与对策[J].护士进修杂志,2015,30(21):1960-1962.
[58] 王玉枝.中医临床护理路径对乙肝后肝硬化患者效果的影响[J].中西医结合心脑血管病杂志,2016,4(4):133-134.
[59] 谭柳纯,顾春妮,黄雪霞,等.微信在肝硬化病人中医健康教育路径中的应用探讨[J].护理研究,2016,30(2A):495-496.