强直性脊柱炎患者生存质量影响因素的研究进展
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摘要
强直性脊柱炎可导致全身多个系统出现不同程度的病变,严重影响患者的生存质量。在疾病进展的过程中,影响强直性脊柱炎患者生存质量的因素很多,包括临床症状和体征、治疗方法、实验室检查、脊柱矢状面参数、护理干预、社会人口学、社会心理学、中医学等,这些因素从不同方面影响患者的生活、工作、情感、心理等。
引文
[1]中华医学会风湿病学分会.强直性脊柱炎诊断及治疗指南[J].中华风湿病学杂志,2010,14(8):557-559.
[2]郑国权,张永刚,王岩,等.强直性脊柱炎后凸畸形的301分型[J].中国脊柱脊髓杂志,2015,25(9):769-774.
[3]韩仁芳,陈梦雅,刘瑞,等.强直性脊柱炎2261例流行特征及功能状态现状分析[J].安徽医药,2017,21(1):73-76.
[4]张云鹏,钱邦平,邱勇.强直性脊柱炎患者生存质量研究进展[J].中国脊柱脊髓杂志,2016,26(9):845-849.
[5]OVAYOLU N,OVAYOLU O,KARADAG G.Healthrelated quality of life in ankylosing spondylitis,fibromyalgia syndrome,and rheumatoid arthritis:a comparison with a selected sample of healthy individuals[J].Clinical Rheumatology,2011,30(5):655-664.
[6]SALAFFI F,CAROTTI M,GASPARINI S,et al.The health-related quality of life in rheumatoid arthritis,ankylosing spondylitis,and psoriatic arthritis:a comparison with a selected sample of healthy people[J].Health Qual Life Outcomes,2009,7(1):25.
[7]HEALEY EL,HAYWOOD KL,JORDAN KP,et al.Patients with well-established ankylosing spondylitis show limited deterioration in a ten-year prospective cohort study[J].Clinical Rheumatology,2013,32(1):67-72.
[8]YOUNES M,JALLED A,AYDI Z,et al.Quality of life in ankylosing spondylitis[J].La Tunisie Medicale,2011,89(4):374-378.
[9]ALKAN BM,FIDAN F,ERTEN S,et al.Fatigue and correlation with disease-specific variables,spinal mobility measures,and health-related quality of life in ankylosing spondylitis[J].Modern Rheumatology,2013,23(6):1101-1107.
[10]彭丽岚,于文江.银质针配合舒筋通络中药序贯疗法对顽固性关节疼痛及生存质量的评价[J].中国疗养医学,2010,19(10):879-881.
[11]BODUR H,ATAMAN S,REZVANI A,et al.Quality of life and related variables in patients with ankylosing spondylitis[J].Quality of Life Research,2011,20(4):543-549.
[12]王笙,曾臻,段振华,等.强直性脊柱炎患者生存质量及影响因素分析[J].中华疾病控制杂志,2013,17(5):384-387.
[13]林丽,叶玲英,殷健,等.肿瘤坏死因子-α拮抗剂对类风湿关节炎和强直性脊柱炎患者血清白细胞介素-17和外周血Th17细胞比例的影响[J].中华风湿病学杂志,2014,18(10):661-664.
[14]欧阳辉,沈龙彬,何雪常,等.肌肉能量技术治疗强直性脊柱炎活动期功能障碍疗效观察[J].康复学报,2016,26(6):5-9.
[15]邓惠群.强直性脊柱炎住院患者的健康宣教[J].吉林医学,2012,33(36):8005-8006.
[16]上官红,陈丛辉.物理疗法配合健康教育治疗强直性脊柱炎[J].中国医学创新,2012,9(30):105-106.
[17]邓玉华,黄东梅,潘英华.功能锻炼在强直性脊柱炎护理中的应用[J].心血管外科杂志(电子版),2018,7(1):167-168.
[18]KIAER T,GEHRCHEN M.Transpedicular closed wedge osteotomy in ankylosing spondylitis:results of surgical treatment and prospective outcome analysis[J].European Spine Journal,2010,19(1):57-64.
[19]SWEENEY S,GUPTA R,TAYLOR G,et al.Total hip arthroplasty in ankylosing spondylitis:outcome in340 patients[J].J Rheumatol,2001,28(8):1862-1866.
[20]LOLKEMA MP,GADELLAA-VAN HOOIJDONKCG,BREDENOORD AL,et al.Ethical,Legal,and Counseling Challenges Surrounding the Return of Genetic Results in Oncology[J].J Clin Oncol,2013,31(15):1842-1848.
[21]FREESTON J,BARKHAM N,HENSOR E,et al.Ankylosing spondylitis,HLA-B27 positivity and the need for biologic therapies[J].Joint Bone Spine,2007,74(2):140-143.
[22]胡俊.脊柱截骨矫形手术对强直性脊柱炎伴胸腰椎后凸畸形患者脊柱-骨盆矢状面影响研究与脊柱-骨盆矢状面对脊柱畸形患者生活质量影响的研究[D].南京:南京大学,2017.
[23]张云鹏.强直性脊柱炎胸腰椎后凸畸形患者生存质量与脊柱整体矢状面形态的相关性[D].南京:东南大学,2016.
[24]徐璐,胡竹芳.同伴教育模式在强直性脊柱炎患者出院后健康教育中的应用[J].齐鲁护理杂志,2016,22(6):7-9.
[25]陈春莉.康复护理对强直性脊柱炎患者预后的影响[J].中国医药科学,2017,7(24):123-126.
[26]闫欣.心理干预对强直性脊柱炎患者不良情绪、生存质量的影响及相关因素研究[D].太原:山西医科大学,2005.
[27]洪光,莫成荣.强直性脊柱炎炎症活动期的年龄特点[J].辽宁中医药大学学报,2006,8(6):70.
[28]顾春芳,仇雅云,汤悦煦.强直性脊柱炎患者生活质量影响因素分析[J].中国医学前沿杂志(电子版),2017,9(10):145-148.
[29]闫欣,徐勇,刘中国,等.影响强直性脊柱炎住院患者生存质量社会心理因素调查[J].山西医科大学学报,2005,36(6):739-741.
[30]SHAHLAEE A,MAHMOUDI M,NICKNAM MH,et al.Gender differences in Iranian patients with ankylosing spondylitis[J].Clinical Rheumatology,2015,34(2):285-293.
[31]王笙.强直性脊柱炎患者生存质量现状及影响因素分析[D].合肥:安徽医科大学,2013.
[32]吴清香,元英,周陶,等.强直性脊柱炎患者生存质量与医学应对方式状况及其影响因素[J].现代临床护理,2014,13(11):5-9.
[33]WARD MM.Health-related quality of life in ankylosing spondylitis:a survey of 175 patients[J].Arthritis Care Res,1999,12(4):247-255.
[34]BROPHY S,CALIN A.Definition of disease flare in ankylosing spondylitis:the patients'perspective[J].J Rheumatol,2002,29(5):954-958.
[35]JINANE H,SAMIRA R,NAWALA,et al.Psychological status in Moroccan patients with ankylosing spondylitis and its relationships with disease parameters and quality of life[J].J Clin Rheumatol,2011,17(8):424-428.
[36]单泓博.强直性脊柱炎患者临床特征与抑郁及人格的关系分析[D].郑州:郑州大学,2017.
[37]龚细玲,尹春晴,王慧娟.链式亲情护理模式配合家庭访视在强直性脊柱炎患者中的应用[J].齐鲁护理杂志,2017,23(14):30-32.
[38]徐金芝,于文广.强直性脊柱炎患者的健康教育和护理指导[J].风湿病与关节炎,2014,3(7):65-67.
[39]孙广仁.中医基础理论[M].2版.北京:中国中医药出版社,2007:1-23.
[40]程华威,郭雯,刘健.生活质量评价在中医药学中的应用[J].安徽中医学院学报,2006,25(2):53-56.
[41]王丽琴,王钢.类风湿关节炎患者生存质量评价的研究进展[J].湖南中医杂志,2012,28(2):133-134.
[42]王永誉.常见中医证型AS患者的生存质量及临床指标的调查研究[D].广州:广州中医药大学,2016.
[43]王云霞,石怡,陶小芳,等.强直性脊柱炎患者中医证型与生存质量关系的研究[J].辽宁中医杂志,2014,41(4):612-615.
[2]郑国权,张永刚,王岩,等.强直性脊柱炎后凸畸形的301分型[J].中国脊柱脊髓杂志,2015,25(9):769-774.
[3]韩仁芳,陈梦雅,刘瑞,等.强直性脊柱炎2261例流行特征及功能状态现状分析[J].安徽医药,2017,21(1):73-76.
[4]张云鹏,钱邦平,邱勇.强直性脊柱炎患者生存质量研究进展[J].中国脊柱脊髓杂志,2016,26(9):845-849.
[5]OVAYOLU N,OVAYOLU O,KARADAG G.Healthrelated quality of life in ankylosing spondylitis,fibromyalgia syndrome,and rheumatoid arthritis:a comparison with a selected sample of healthy individuals[J].Clinical Rheumatology,2011,30(5):655-664.
[6]SALAFFI F,CAROTTI M,GASPARINI S,et al.The health-related quality of life in rheumatoid arthritis,ankylosing spondylitis,and psoriatic arthritis:a comparison with a selected sample of healthy people[J].Health Qual Life Outcomes,2009,7(1):25.
[7]HEALEY EL,HAYWOOD KL,JORDAN KP,et al.Patients with well-established ankylosing spondylitis show limited deterioration in a ten-year prospective cohort study[J].Clinical Rheumatology,2013,32(1):67-72.
[8]YOUNES M,JALLED A,AYDI Z,et al.Quality of life in ankylosing spondylitis[J].La Tunisie Medicale,2011,89(4):374-378.
[9]ALKAN BM,FIDAN F,ERTEN S,et al.Fatigue and correlation with disease-specific variables,spinal mobility measures,and health-related quality of life in ankylosing spondylitis[J].Modern Rheumatology,2013,23(6):1101-1107.
[10]彭丽岚,于文江.银质针配合舒筋通络中药序贯疗法对顽固性关节疼痛及生存质量的评价[J].中国疗养医学,2010,19(10):879-881.
[11]BODUR H,ATAMAN S,REZVANI A,et al.Quality of life and related variables in patients with ankylosing spondylitis[J].Quality of Life Research,2011,20(4):543-549.
[12]王笙,曾臻,段振华,等.强直性脊柱炎患者生存质量及影响因素分析[J].中华疾病控制杂志,2013,17(5):384-387.
[13]林丽,叶玲英,殷健,等.肿瘤坏死因子-α拮抗剂对类风湿关节炎和强直性脊柱炎患者血清白细胞介素-17和外周血Th17细胞比例的影响[J].中华风湿病学杂志,2014,18(10):661-664.
[14]欧阳辉,沈龙彬,何雪常,等.肌肉能量技术治疗强直性脊柱炎活动期功能障碍疗效观察[J].康复学报,2016,26(6):5-9.
[15]邓惠群.强直性脊柱炎住院患者的健康宣教[J].吉林医学,2012,33(36):8005-8006.
[16]上官红,陈丛辉.物理疗法配合健康教育治疗强直性脊柱炎[J].中国医学创新,2012,9(30):105-106.
[17]邓玉华,黄东梅,潘英华.功能锻炼在强直性脊柱炎护理中的应用[J].心血管外科杂志(电子版),2018,7(1):167-168.
[18]KIAER T,GEHRCHEN M.Transpedicular closed wedge osteotomy in ankylosing spondylitis:results of surgical treatment and prospective outcome analysis[J].European Spine Journal,2010,19(1):57-64.
[19]SWEENEY S,GUPTA R,TAYLOR G,et al.Total hip arthroplasty in ankylosing spondylitis:outcome in340 patients[J].J Rheumatol,2001,28(8):1862-1866.
[20]LOLKEMA MP,GADELLAA-VAN HOOIJDONKCG,BREDENOORD AL,et al.Ethical,Legal,and Counseling Challenges Surrounding the Return of Genetic Results in Oncology[J].J Clin Oncol,2013,31(15):1842-1848.
[21]FREESTON J,BARKHAM N,HENSOR E,et al.Ankylosing spondylitis,HLA-B27 positivity and the need for biologic therapies[J].Joint Bone Spine,2007,74(2):140-143.
[22]胡俊.脊柱截骨矫形手术对强直性脊柱炎伴胸腰椎后凸畸形患者脊柱-骨盆矢状面影响研究与脊柱-骨盆矢状面对脊柱畸形患者生活质量影响的研究[D].南京:南京大学,2017.
[23]张云鹏.强直性脊柱炎胸腰椎后凸畸形患者生存质量与脊柱整体矢状面形态的相关性[D].南京:东南大学,2016.
[24]徐璐,胡竹芳.同伴教育模式在强直性脊柱炎患者出院后健康教育中的应用[J].齐鲁护理杂志,2016,22(6):7-9.
[25]陈春莉.康复护理对强直性脊柱炎患者预后的影响[J].中国医药科学,2017,7(24):123-126.
[26]闫欣.心理干预对强直性脊柱炎患者不良情绪、生存质量的影响及相关因素研究[D].太原:山西医科大学,2005.
[27]洪光,莫成荣.强直性脊柱炎炎症活动期的年龄特点[J].辽宁中医药大学学报,2006,8(6):70.
[28]顾春芳,仇雅云,汤悦煦.强直性脊柱炎患者生活质量影响因素分析[J].中国医学前沿杂志(电子版),2017,9(10):145-148.
[29]闫欣,徐勇,刘中国,等.影响强直性脊柱炎住院患者生存质量社会心理因素调查[J].山西医科大学学报,2005,36(6):739-741.
[30]SHAHLAEE A,MAHMOUDI M,NICKNAM MH,et al.Gender differences in Iranian patients with ankylosing spondylitis[J].Clinical Rheumatology,2015,34(2):285-293.
[31]王笙.强直性脊柱炎患者生存质量现状及影响因素分析[D].合肥:安徽医科大学,2013.
[32]吴清香,元英,周陶,等.强直性脊柱炎患者生存质量与医学应对方式状况及其影响因素[J].现代临床护理,2014,13(11):5-9.
[33]WARD MM.Health-related quality of life in ankylosing spondylitis:a survey of 175 patients[J].Arthritis Care Res,1999,12(4):247-255.
[34]BROPHY S,CALIN A.Definition of disease flare in ankylosing spondylitis:the patients'perspective[J].J Rheumatol,2002,29(5):954-958.
[35]JINANE H,SAMIRA R,NAWALA,et al.Psychological status in Moroccan patients with ankylosing spondylitis and its relationships with disease parameters and quality of life[J].J Clin Rheumatol,2011,17(8):424-428.
[36]单泓博.强直性脊柱炎患者临床特征与抑郁及人格的关系分析[D].郑州:郑州大学,2017.
[37]龚细玲,尹春晴,王慧娟.链式亲情护理模式配合家庭访视在强直性脊柱炎患者中的应用[J].齐鲁护理杂志,2017,23(14):30-32.
[38]徐金芝,于文广.强直性脊柱炎患者的健康教育和护理指导[J].风湿病与关节炎,2014,3(7):65-67.
[39]孙广仁.中医基础理论[M].2版.北京:中国中医药出版社,2007:1-23.
[40]程华威,郭雯,刘健.生活质量评价在中医药学中的应用[J].安徽中医学院学报,2006,25(2):53-56.
[41]王丽琴,王钢.类风湿关节炎患者生存质量评价的研究进展[J].湖南中医杂志,2012,28(2):133-134.
[42]王永誉.常见中医证型AS患者的生存质量及临床指标的调查研究[D].广州:广州中医药大学,2016.
[43]王云霞,石怡,陶小芳,等.强直性脊柱炎患者中医证型与生存质量关系的研究[J].辽宁中医杂志,2014,41(4):612-615.