摘要
目的了解急性白血病患儿父母对PICC维护的人文关怀体验与需求,为制订针对性的护理措施提供参考。方法采用质性研究中的现象学研究法,对15名急性白血病患儿父母进行半结构访谈,并运用Colaizzi 7步分析法进行资料分析。结果提炼出4个人文关怀体验主题:主动服务,为他人着想;技术娴熟、动作轻柔;尊重、体谅家属;善于与患儿沟通。4个人文关怀需求主题:PICC日常照顾知识需求;满足患儿尊重的需求;多形式开展人文关怀的需求;普及PICC维护点的需求。结论急性白血病患儿父母对PICC维护的人文关怀持肯定态度,但仍存在各种特殊需求,亟需不断完善PICC维护工作,多途径满足急性白血病患儿父母关于PICC维护的人文关怀需求。
Objective To explore experience and needs for humanistic care among parents of acute leukemia children receiving maintenance care of a PICC, and to provide references for targeted nursing intervention.Methods A total of 15 parents of acute leukemia children receiving maintenance care of a PICC were invited to join in semi-structured interviews.Then the data were analyzed with Colaizzi′s 7-step analytical method.Results Four themes of humanistic care experience were extracted from the interviews: nurses offer active service and always think of others; nurses provide skillful service with gentleness; nurses respect and show understan-ding and sympathy for the family members of patients; nurses are good at communication. Four themes of humanistic care needs were extracted as follows: the needs of knowledge of PICC daily care; the needs to maintain patient dignity; the needs to receive humanistic care in different forms; the needs to have more PICC maintenance sites.Conclusion Parents of acute leukemia children had positive attitudes towards humanistic care during PICC maintenance.Yet they had a variety of special needs. Measures should be taken to improve PICC maintenance service, and satisfy the parents′ need of humanistic care through various ways.
引文
[1] Gibson C,Connolly B L,Moineddin R,et al.Periphe-rally inserted central catheters:use at a tertiary care pediatric center[J].J Vasc Interv Radiol,2013,24(9):1323-1331.
[2] Menendez J J,Verdu C,Calderon B,et al.Incidence and risk factors of superficial and deep vein thrombosis associated with peripherally inserted central catheters in children[J].JTH,2016,14(11):2158-2168.
[3] 马慧珍,李倩,何慧娟,等.PICC置管患者医护协同全程管理效果探讨[J].护理学杂志,2017,32(5):45-47.
[4] 何娇,吴丽芬,刘恋.儿科血液病区护士人文关怀能力的培养[J].护理学杂志,2014,29(17):50-52.
[5] Colaizzi P.Psychological research as the phenomenologists views it[M].New York:Oxford University Press,1978:487.
[6] 李丹露,热娜·买买提,王学梅,等.恶性肿瘤儿童及家长心理调查及影响因素分析[J].新疆医学,2018,48(2):123-126.
[7] 刘义兰.优质护理服务工作中加强人文关怀的思考[J].护理学杂志,2012,27(9):1-2,26.
[8] 官春燕,刘义兰,许娟,门诊患者就医关怀体验质性研究[J].中华医院管理杂志2016,32(4):299-302.
[9] 薛朝华,刘义兰,鲁才红.眼科住院患者关怀护理体验的质性研究[J].护理学杂志,2017,32(12):79-82.
[10] 杨丽莎,陈素梅,廖小玲,等.健康教育在提高肿瘤病人留置PICC管依从性的应用[J].护理实践与研究,2009,6(14):115-116.
[11] 张慧敏,陈毓雯,甄佳静,等.血液病患儿PICC导管断裂的应急处理与预防[J].护理学杂志,2015,30(13):61-84.
[12] 赵林芳.国内外输液小组与PICC管理研究进展[J].中国护理管理,2009,9(2):5-9.
[13] 徐琛,郭秋菊,刘雨涵.实体瘤患儿PICC管路在门诊维护与使用的现状分析[J].中国小儿血液与肿瘤杂志,2016.21(5):266-268.
[14] 许栋,王国栋,张明,等.公立医院与基层医疗卫生机构分工协作的现状及策略[J].中国医院管理,2013,33(4):10-13.
[15] 中华人民共和国国家卫生和健康委员会.进一步改善医疗服务行动计划(2018-2020年)[S/OL].(2017-12-29)[2018-01-04].http://www.nhfpc.gov.cn/yzygj/s3594q/201801/9df87fced4da47b0a9f8e1ce9fbc7520.shtml.