HIV阳性患者症状管理的研究进展
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摘要
在文献回顾的基础上,结合症状管理理论和HIV感染自我症状调节理论,对HIV阳性患者症状管理的定义、内涵、影响因素、调节因素、管理结局进行阐述,并指出信息技术在促进HIV阳性患者症状管理中的重要作用,为进一步的艾滋病症状管理研究和护理实践提供参考。
引文
[1]Lalanne C,Armstrong A R,Herrmann S,et al.Psychometric assessment of health-related quality of life and symptom experience in HIV patients treated with antiretroviral therapy[J].Qual Life Res,2015,24(6):1407-1418.
[2]Portillo C J,Holzemer W L,Chou F Y.HIV symptoms[J].Annu Rev Nurs Res,2007,25:259-291.
[3]Fierz K,Engberg S,Nicca D,et al.Symptom manageability in Swiss HIV-infected patients[J].Appl Nurs Res,2013,26(3):110-115.
[4]Panel on Opportunistic Infections in HIV-Infected Adults and Adolescents.Guidelines for the Prevention and Treatment of Opportunistic Infections in HIV-Infected Adults and Adolescents:Recommendations from the Centers for Disease Control and Prevention,the National Institutes of Health,and the HIV Medicine Association of the Infectious Diseases Society of America[EB/OL].[2017-12-18].https://aidsinfo.nih.gov/contentfiles/lvguidelines/adult_oi.pdf.
[5]Panel on Antiretroviral Guidelines for Adults and Adolescents,Department of Health and Human Services.Guidelines for the Use of Antiretroviral Agents in Adults and Adolescents Living with HIV[EB/OL].[2017-12-18].https://aidsinfo.nih.gov/guidelines/html/1/adult-and-adolescent-arv/0.
[6]The Joint United Nations Programme on HIV/AIDS.UnAIDS Terminology[EB/OL].[2017-07-01].http://www.unaids.org/sites/default/files/media_asset/2015_terminology_guidelines_en.pdf.
[7]何国平.健康评估[M].长沙:中南大学出版社,2011:1.
[8]Dodd M,Janson S,Facione N,et al.Advancing the science of symptom management[J].J Adv Nurs,2001,33(5):668-676.
[9]Holzemer W L.HIV and AIDS:the symptom experience.what cell counts and viral loads won′t tell you[J].Am J Nurs,2002,102(4):48-52.
[10]Spirig R,Moody K,Battegay M,et al.Symptom management in HIV/AIDS:advancing the conceptualization[J].ANS Adv Nurs Sci,2005,28(4):333-344.
[11]Nicca D,Fierz K,Happ M B,et al.Symptom management in HIV/AIDS:a mixed methods approach to describe collaboration and concordance between persons living with HIV and their close support persons[J].J Mix Methods Res,2012,6(3):217-235.
[12]Fierz K.Perceived symptom manageability-synthesis of a new use of a known concept based on a sample of HIV outpatients[D].Basel:University of Basel,2012.
[13]Fierz K,Nicca D,Spirig R.Perceived HIV symptom manageability:synthesis of a new use for a known concept[J].J Adv Nurs,2013,69(1):229-241.
[14]Voss J G.Developing evidence-based symptom management guidelines in HIV care:what have we learned?[J].J Assoc Nurses AIDS Care,2013,24(1Suppl):S1-S4.
[15]Chou F Y.Testing apredictive model of the use of HIV/AIDS symptom self-care strategies[J].AIDS Patient Care STDS,2004,18(2):109-117.
[16]伍春艳,刘媛航,曾志励,等.HIV感染者/AIDS患者自我管理量表的编制[J].护理学杂志,2016,31(1):35-38.
[17]Brion J M,Rose C D,Nicholas P K,et al.Unhealthy substance-use behaviors as symptom-related self-care in persons with HIV/AIDS[J].Nurs Health Sci,2011,13(1):16-26.
[18]Nanni M G,Caruso R,Mitchell A J,et al.Depression in HIV infected patients:a review[J].Curr Psychiatry Rep,2015,17(1):530.
[19]Corless I B,Wantland D,Kirksey K M,et al.Exploring the contribution of general self-efficacy to the use of selfcare symptom management strategies by people living with HIV infection[J].AIDS Patient Care STDS,2012,26(6):335-343.
[20]Eller L S,Rivero-Mendez M,Voss J,et al.Depressive symptoms,self-esteem,HIV symptom management self-efficacy and self-compassion in people living with HIV[J].AIDS Care,2014,26(7):795-803.
[21]Miles M S,Holditch-Davis D,Eron J,et al.An HIV self-care symptom management intervention for African American mothers[J].Nurs Res,2003,52(6):350-360.
[22]任晓华,王敏,蒋芙蓉,等.长沙市艾滋病患者焦虑、抑郁情绪与社会支持关系研究[J].中国医师杂志,2017,19(9):1428-1431.
[23]Young J,De Geest S,Spirig R,et al.Stable partnership and progression to AIDS or death in HIV infected patients receiving highly active antiretroviral therapy:Swiss HIV cohort study[J].BMJ,2004,328(7430):15.
[24]Das P,Horton R.The cultural challenge of HIV/AIDS[J].Lancet,2012,380(9839):309-310.
[25]江艳,王敏,魏秀青,等.长沙市180例接受艾滋病抗病毒治疗患者抑郁症患病现状及影响因素研究[J].中华流行病学杂志,2016,37(5):638-642.
[26]Rueda S,Mitra S,Chen S,et al.Examining the associations between HIV-related stigma and health outcomes in people living with HIV/AIDS:a series of Meta-analyses[J].BMJ Open,2016,6(7):e011453.
[27]Merlin J S,Westfall A O,Chamot E,et al.Pain is independently associated with impaired physical function in HIV-infected patients[J].Pain Med,2013,14(12):1985-1993.
[28]喻达,马烨,赵德才,等.758例艾滋病抗病毒治疗患者生活质量现状及相关因素研究[J].中华流行病学杂志,2009,30(6):622-625.
[29]Vidrine D J,Amick B C 3rd,Gritz E R,et al.Assessing a conceptual framework of health-related quality of life in a HIV/AIDS population[J].Qual Life Res,2005,14(4):923-933.
[30]朱政.HIV/AIDS住院患者症状管理的循证实践[D].上海:复旦大学,2015.
[31]刘倩,赵芮,吴谦,等.心理护理对艾滋病患者生活质量影响的meta分析[J].中华流行病学杂志,2017,38(7):972-976.
[32]赵蕊,朱政,胡雁,等.国际艾滋病照护协会优化成人及青少年HIV照护连续性指南要点解读[J].护理学杂志,2017,32(15):85-88.
[33]Gonzalez J S,Batchelder A W,Psaros C,et al.Depression and HIV/AIDS treatment nonadherence:a review and meta-analysis[J].J Acquir Immune Defic Syndr,2011,58(2):181-187.
[34]徐六妹,李莎茜,吴宝红,等.对发生药物不良反应AIDS患者服药依从性的干预研究[J].中华护理杂志,2015,50(2):179-183.
[35]Renaud A,Basenya O,de Borman N,et al.The cost effectiveness of integrated care for people living with HIV including antiretroviral treatment in a primary health care centre in Bujumbura,Burundi[J].AIDS Care,2009,21(11):1388-1394.
[36]Sandoval R,Gilkerson R.Management of sleep quality and pain in an individual living with HIV and hepatitis C coinfection using an activity monitor[J].J Int Assoc Provid AIDS Care,2015,14(6):476-481.
[37]Wantland D.Content and functional assessment of a HIV/AIDS tailored web-based symptom self assessment and self management tool[J].Stud Health Technol Inform,2009,146:820-821.
[38]Anand T,Nitpolprasert C,Kerr S J,et al.A qualitative study of Thai HIV-positive young men who have sex with men and transgender women demonstrates the need for ehealth interventions to optimize the HIV care continuum[J].AIDS Care,2017,29(7):870-875.
[2]Portillo C J,Holzemer W L,Chou F Y.HIV symptoms[J].Annu Rev Nurs Res,2007,25:259-291.
[3]Fierz K,Engberg S,Nicca D,et al.Symptom manageability in Swiss HIV-infected patients[J].Appl Nurs Res,2013,26(3):110-115.
[4]Panel on Opportunistic Infections in HIV-Infected Adults and Adolescents.Guidelines for the Prevention and Treatment of Opportunistic Infections in HIV-Infected Adults and Adolescents:Recommendations from the Centers for Disease Control and Prevention,the National Institutes of Health,and the HIV Medicine Association of the Infectious Diseases Society of America[EB/OL].[2017-12-18].https://aidsinfo.nih.gov/contentfiles/lvguidelines/adult_oi.pdf.
[5]Panel on Antiretroviral Guidelines for Adults and Adolescents,Department of Health and Human Services.Guidelines for the Use of Antiretroviral Agents in Adults and Adolescents Living with HIV[EB/OL].[2017-12-18].https://aidsinfo.nih.gov/guidelines/html/1/adult-and-adolescent-arv/0.
[6]The Joint United Nations Programme on HIV/AIDS.UnAIDS Terminology[EB/OL].[2017-07-01].http://www.unaids.org/sites/default/files/media_asset/2015_terminology_guidelines_en.pdf.
[7]何国平.健康评估[M].长沙:中南大学出版社,2011:1.
[8]Dodd M,Janson S,Facione N,et al.Advancing the science of symptom management[J].J Adv Nurs,2001,33(5):668-676.
[9]Holzemer W L.HIV and AIDS:the symptom experience.what cell counts and viral loads won′t tell you[J].Am J Nurs,2002,102(4):48-52.
[10]Spirig R,Moody K,Battegay M,et al.Symptom management in HIV/AIDS:advancing the conceptualization[J].ANS Adv Nurs Sci,2005,28(4):333-344.
[11]Nicca D,Fierz K,Happ M B,et al.Symptom management in HIV/AIDS:a mixed methods approach to describe collaboration and concordance between persons living with HIV and their close support persons[J].J Mix Methods Res,2012,6(3):217-235.
[12]Fierz K.Perceived symptom manageability-synthesis of a new use of a known concept based on a sample of HIV outpatients[D].Basel:University of Basel,2012.
[13]Fierz K,Nicca D,Spirig R.Perceived HIV symptom manageability:synthesis of a new use for a known concept[J].J Adv Nurs,2013,69(1):229-241.
[14]Voss J G.Developing evidence-based symptom management guidelines in HIV care:what have we learned?[J].J Assoc Nurses AIDS Care,2013,24(1Suppl):S1-S4.
[15]Chou F Y.Testing apredictive model of the use of HIV/AIDS symptom self-care strategies[J].AIDS Patient Care STDS,2004,18(2):109-117.
[16]伍春艳,刘媛航,曾志励,等.HIV感染者/AIDS患者自我管理量表的编制[J].护理学杂志,2016,31(1):35-38.
[17]Brion J M,Rose C D,Nicholas P K,et al.Unhealthy substance-use behaviors as symptom-related self-care in persons with HIV/AIDS[J].Nurs Health Sci,2011,13(1):16-26.
[18]Nanni M G,Caruso R,Mitchell A J,et al.Depression in HIV infected patients:a review[J].Curr Psychiatry Rep,2015,17(1):530.
[19]Corless I B,Wantland D,Kirksey K M,et al.Exploring the contribution of general self-efficacy to the use of selfcare symptom management strategies by people living with HIV infection[J].AIDS Patient Care STDS,2012,26(6):335-343.
[20]Eller L S,Rivero-Mendez M,Voss J,et al.Depressive symptoms,self-esteem,HIV symptom management self-efficacy and self-compassion in people living with HIV[J].AIDS Care,2014,26(7):795-803.
[21]Miles M S,Holditch-Davis D,Eron J,et al.An HIV self-care symptom management intervention for African American mothers[J].Nurs Res,2003,52(6):350-360.
[22]任晓华,王敏,蒋芙蓉,等.长沙市艾滋病患者焦虑、抑郁情绪与社会支持关系研究[J].中国医师杂志,2017,19(9):1428-1431.
[23]Young J,De Geest S,Spirig R,et al.Stable partnership and progression to AIDS or death in HIV infected patients receiving highly active antiretroviral therapy:Swiss HIV cohort study[J].BMJ,2004,328(7430):15.
[24]Das P,Horton R.The cultural challenge of HIV/AIDS[J].Lancet,2012,380(9839):309-310.
[25]江艳,王敏,魏秀青,等.长沙市180例接受艾滋病抗病毒治疗患者抑郁症患病现状及影响因素研究[J].中华流行病学杂志,2016,37(5):638-642.
[26]Rueda S,Mitra S,Chen S,et al.Examining the associations between HIV-related stigma and health outcomes in people living with HIV/AIDS:a series of Meta-analyses[J].BMJ Open,2016,6(7):e011453.
[27]Merlin J S,Westfall A O,Chamot E,et al.Pain is independently associated with impaired physical function in HIV-infected patients[J].Pain Med,2013,14(12):1985-1993.
[28]喻达,马烨,赵德才,等.758例艾滋病抗病毒治疗患者生活质量现状及相关因素研究[J].中华流行病学杂志,2009,30(6):622-625.
[29]Vidrine D J,Amick B C 3rd,Gritz E R,et al.Assessing a conceptual framework of health-related quality of life in a HIV/AIDS population[J].Qual Life Res,2005,14(4):923-933.
[30]朱政.HIV/AIDS住院患者症状管理的循证实践[D].上海:复旦大学,2015.
[31]刘倩,赵芮,吴谦,等.心理护理对艾滋病患者生活质量影响的meta分析[J].中华流行病学杂志,2017,38(7):972-976.
[32]赵蕊,朱政,胡雁,等.国际艾滋病照护协会优化成人及青少年HIV照护连续性指南要点解读[J].护理学杂志,2017,32(15):85-88.
[33]Gonzalez J S,Batchelder A W,Psaros C,et al.Depression and HIV/AIDS treatment nonadherence:a review and meta-analysis[J].J Acquir Immune Defic Syndr,2011,58(2):181-187.
[34]徐六妹,李莎茜,吴宝红,等.对发生药物不良反应AIDS患者服药依从性的干预研究[J].中华护理杂志,2015,50(2):179-183.
[35]Renaud A,Basenya O,de Borman N,et al.The cost effectiveness of integrated care for people living with HIV including antiretroviral treatment in a primary health care centre in Bujumbura,Burundi[J].AIDS Care,2009,21(11):1388-1394.
[36]Sandoval R,Gilkerson R.Management of sleep quality and pain in an individual living with HIV and hepatitis C coinfection using an activity monitor[J].J Int Assoc Provid AIDS Care,2015,14(6):476-481.
[37]Wantland D.Content and functional assessment of a HIV/AIDS tailored web-based symptom self assessment and self management tool[J].Stud Health Technol Inform,2009,146:820-821.
[38]Anand T,Nitpolprasert C,Kerr S J,et al.A qualitative study of Thai HIV-positive young men who have sex with men and transgender women demonstrates the need for ehealth interventions to optimize the HIV care continuum[J].AIDS Care,2017,29(7):870-875.