Building Trust and Relationships Between Patients and Providers: An Essential Complement to Health Literacy in HIV Care

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• 作者：Carol Dawson-Rose ; PhD ; RN ; FAAN ; ^{carol.dawson-rose@ucsf.edu" class="auth_mail" title="E-mail the corresponding author}Author Vitae ; Yvette P. Cuca ; PhD ; MPH ; MIAAuthor Vitae ; Allison R. Webel ; PhD ; RNAuthor Vitae ; Solymar S. Solí ; s Bá ; ez ; BAAuthor Vitae ; William L. Holzemer ; RN ; PhD ; FAANAuthor Vitae ; Marta Rivero-Mé ; ndez ; RN ; DNSAuthor Vitae ; Lucille Sanzero Eller ; PhD ; RNAuthor Vitae ; Paula Reid ; PhD ; RNC ; WHNPAuthor Vitae ; Mallory O. Johnson ; PhDAuthor Vitae ; Jeanne Kemppainen ; PhD ; RNAuthor Vitae ; Darcel Reyes ; PhD ; RN ; ANP-BC ; MSAuthor Vitae ; Kathleen Nokes ; PhD ; RN ; FAANAuthor Vitae ; Patrice K. Nicholas ; DNSc ; DHL (Hon) ; MPH ; RN ; ANP ; FAANAuthor Vitae ; Ellah Matshediso ; PhDAuthor Vitae ; Keitshokile Dintle Mogobe ; PhDAuthor Vitae ; Motshedisi B. Sabone ; RN ; PhDAuthor Vitae ; Esther I. Ntsayagae ; MCur ; RNAuthor Vitae ; Sheila Shaibu ; PhD ; MNS ; RNAuthor Vitae ; Inge B. Corless ; RN ; PhD ; FAANAuthor Vitae ; Dean Wantland ; PhD ; RNAuthor Vitae ; Teri Lindgren ; PhD ; RNAuthor Vitae
• 关键词：health literacy ; HIV ; HIV self-management ; patient&ndash ; provider relationship
• 刊名：Journal of the Association of Nurses in AIDS Care
• 出版年：2016
• 出版时间：September-October 2016
• 年：2016
• 卷：27
• 期：5
• 页码：574-584
• 全文大小：147 K

文摘

Health literacy is important for access to and quality of HIV care. While most models of health literacy acknowledge the importance of the patient–provider relationship to disease management, a more nuanced understanding of this relationship is needed. Thematic analysis from 28 focus groups with HIV-experienced patients (n = 135) and providers (n = 71) identified a long-term and trusting relationship as an essential part of HIV treatment over the continuum of HIV care. We found that trust and relationship building over time were important for patients with HIV as well as for their providers. An expanded definition of health literacy that includes gaining a patient's trust and engaging in a process of health education and information sharing over time could improve HIV care. Expanding clinical perspectives to include trust and the importance of the patient–provider relationship to a shared understanding of health literacy may improve patient experiences and engagement in care.