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When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority
详细信息
查看全文
作者:
Kyle B. Brothers
;
MD
;
PhD
1
;
kyle.brothers@louisville.edu" class="auth_mail" title="E-mail the corresponding author
;
Ingrid A.
Holm
;
MD
;
MPH
2
;
3
;
4
;
Janet E. Childerhose
;
PhD
5
;
Armand H.M. Antommaria
;
MD
;
PhD
6
;
Barbara A. Bernhardt
;
MS
;
CGC
7
;
Ellen
Wright Clayton
;
MD
;
JD
8
;
Bruce D. Gelb
;
MD
9
;
Steven Joffe
;
MD
;
MPH
10
;
John A. Lynch
;
PhD
11
;
Jennifer B. McCormick
;
PhD
12
;
Laurence B. McCullough
;
PhD
13
;
D. Williams Parsons
;
MD
;
PhD
14
;
Agnes S. Sundaresan
;
MD
15
;
Wendy A. Wolf
;
PhD
2
;
Joon-Ho Yu
;
MPH
;
PhD
16
;
Benjamin S. Wilfond
;
MD
17
;
on behalf of the Pediatrics Workgroup of the Clinical Sequencing Exploratory Research (CSER) ConsortiumBenjamin E. Berkman
;
JD
;
MPH
;
Leslie G. Biesecker
;
MD
;
Sara C. Hull
;
PhD
;
Sawona Biswas
;
MSc
;
MS
;
CGC
;
Wendy K. Chung
;
MD
;
PhD
;
Barbara Koenig
;
PhD
;
Lisa S. Lehmann
;
MD
;
PhD
;
Michelle Lewis
;
MD
;
JD
;
Amy L. McGuire
;
JD
;
PhD
;
Melody J. Slashinski
;
PhD
;
MPH
;
Lainie F. Ross
;
MD
;
PhD
;
Joseph S. Salama
;
BS
;
Debra Skinner
;
PhD
;
Holly K. Tabor
;
PhD
;
Susan M. Wolf
;
JD
;
;
the Consent
;
Education
;
Regulation
;
Consultation Workgroup of the Electronic Medical Records
;
Genomics (eMERGE) Network
;
&lowast
;
关键词:
IRB
;
Institutional Review Board
;
OHRP
;
Office of Human Research Protections
;
SACHRP
;
Secretary's Advisory Committee on Human Research Protections
刊名:The Journal of Pediatrics
出版年:2016
出版时间:January 2016
年:2016
卷:168
期:Complete
页码:226-231.e1
全文大小:215 K
文摘
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