刊物主题:Quality of Life Research; Quality of Life Research;
出版者:BioMed Central
ISSN:1477-7525
卷排序:15
文摘
BackgroundNeurofibromatosis 1 (NF1) is an inherited, multi-system, tumour suppressor disorder with variable complications that cause psychological distress and social isolation. The study aim was to develop and validate a disease-specific questionnaire to measure quality of life (QOL) in NF1 that is suitable both as an assessment tool in clinical practice and in clinical trials of novel therapy.
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