Health related quality of life of Iranian children with type 1 diabetes: reliability and validity of the Persian version of the PedsQL?Generic Core Scales and Diabetes Module

详细信息    查看全文

• 作者：Peyman Jafari (1)
  Elham Forouzandeh (1)
  Zahra Bagheri (1)
  Zohreh Karamizadeh (2)
  Keivan Shalileh (3)
  
• 关键词：quality of life ; diabetes ; validation studies ; Iran
• 刊名：Health and Quality of Life Outcomes
• 出版年：2011
• 出版时间：December 2011
• 年：2011
• 卷：9
• 期：1
• 全文大小：141KB
• 参考文献：1. Kalyva E, Malakonaki E, Eiser C, Mamoulakis D: Health-related quality of life (HRQoL) of children with type 1 diabetes mellitus (T1DM): self and parental perceptions. / Pediatr Diabetes 2011,12(1):34-0. CrossRef
  2. Pishdad GR: Low incidence of type 1 diabetes in Iran. / Diabetes Care 2005,28(4):927-28. CrossRef
  3. Stevanovi? D, Laki? A, Damnjanovi? M: Some psychometric properties of the Pediatric Quality of Life Inventory?Version 4.0 Generic Core Scales (PedsQL(TM)) in the general Serbian population. / Qual Life Res 2011,20(20):945-49. CrossRef
  4. Hao Y, Tian Q, Lu Y, Chai Y, Rao S: Psychometric properties of the Chinese version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales. / Qual Life Res 2010,19(8):1229-233. CrossRef
  5. Chen YM, He LP, Mai JC, Hao YT, Xiong LH, Chen WQ, Wu JN: Validity and reliability of Pediatric Quality of Life Inventory Version 4.0 Generic Core Scales in Chinese children and adolescents. / Zhonghua Liu Xing Bing Xue Za Zhi 2008,29(6):560-63.
  6. Kobayashi K, Kamibeppu K: Measuring quality of life in Japanese children: development of the Japanese version of PedsQL. / Pediatr Int 2010,52(1):80-9. CrossRef
  7. Petersen S, H?ggl?f B, Stenlund H, Bergstr?m E: Psychometric properties of the Swedish PedsQL, Pediatric Quality of Life Inventory 4.0 Generic Core Scales. / Acta Paediatr 2009,98(9):1504-512. CrossRef
  8. Kook SH, Varni JW: Validation of the Korean version of the Pediatric Quality of Life Inventory?4.0 (PedsQL? Generic Core Scales in school children and adolescents using the rasch model. / Health Qual Life Outcomes 2008, 6:41. CrossRef
  9. Gkoltsiou K, Dimitrakaki C, Tzavara C, Papaevangelou V, Varni JW, Tountas Y: Measuring health-related quality of life in Greek children: psychometric properties of the Greek version of the Pediatric Quality of Life Inventory(TM) 4.0 Generic Core Scales. / Qual Life Res 2008,17(2):299-05. CrossRef
  10. Emmanouilidou E, Galli-Tsinopoulou A, Karavatos A, Nousia-Arvanitakis S: Quality of life of children and adolescents with diabetes of Northern Greek origin. / Hippokratia 2008,12(3):168-75.
  11. Varni JW, Burwinkle TM, Jacobs JR, Gottschalk M, Kaufman F, Jones KL: The PedsQL in type 1 and type 2 diabetes: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and Type 1 Diabetes Module. / Diabetes care 2003,26(3):631-37. CrossRef
  12. Varni JW, Limbers CA, Burwinkle TM, Bryant WP, Wilson DP: The ePedsQL in type 1 and type 2 diabetes: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Internet administration. / Diabetes Care 2008,31(4):672-77. CrossRef
  13. Buresova G, Veleminsky MJ, Veleminsky MS: Health related quality of life of children and adolescents with type 1 diabetes. / Neuro Endocrinol Lett 2008,29(6):1045-053.
  14. Nuboer R, Borsboom GJ, Zoethout JA, Koot HM, Bruining J: Effects of insulin pump vs. injection treatment on quality of life and impact of disease in children with type 1 diabetes mellitus in a randomized, prospective comparison. / Pediatr Diabetes 2008, 28:291-96. CrossRef
  15. Amiri P, M Ardekani E, Jalali-Farahani S, Hosseinpanah F, Varni JW, Ghofranipour F, Montazeri A, Azizi F: Reliability and validity of the Iranian version of the Pediatric Quality of Life Inventory?4.0 Generic Core Scales in adolescents. / Qual Life Res 2010,19(10):1501-508. CrossRef
  16. Jafari P, Ghanizadeh A, Akhondzadeh S, Mohammadi MR: Health-related quality of life of Iranian children with attention deficit/hyperactivity disorder. / Qual Life Res 2011,20(1):31-6. CrossRef
  17. Fayers PM, Machin D: / Quality of life: The assessment, analysis and interpretation of patient-reported outcomes. 2nd edition. Chichester: John Wiley; 2007.
  
• 作者单位：Peyman Jafari (1)
  Elham Forouzandeh (1)
  Zahra Bagheri (1)
  Zohreh Karamizadeh (2)
  Keivan Shalileh (3)
  
  1. Department of Biostatistics, Shiraz University of Medical Sciences, Shiraz, Iran
  2. Department of Pediatrics, Shiraz University of Medical Sciences, Shiraz, Iran
  3. Medical School, Tehran University of Medical Sciences, Tehran, Iran
  

文摘

Background The aim of this study was to measure health related quality of life (HRQOL) in Iranian children with type 1 diabetes and to test the psychometric properties of the Persian version of the PedsQL?4.0 Generic Core Scales and the PedsQL?3.0 Diabetes Module. Methods Participants were 94 children and adolescents diagnosed with type 1 diabetes for at least 3 months in Shiraz, southern Iran. Convergent, discriminant, and construct validity of the PedsQL?4.0 Generic Core Scales and the PedsQL?3.0 Diabetes Module were assessed. Moreover, internal consistency was checked by Cronbach's alpha coefficient. Results Cronbach's α for the PedsQL?4.0 Generic Core Scales and the PedsQL?3.0 Diabetes Module was greater than 0.80 both in the child self-report and parent proxy-report. Both generic and disease-specific versions of the PedsQL showed excellent convergent and acceptable discriminant validity except for 'diabetes symptoms' subscale in the child self-report of the disease-specific module. Moreover, Iranian children with diabetes, as compared with other countries, had lower HRQOL scores. Conclusions While this study showed that the Persian version of the PedsQL?4.0 Generic Core Scales has good psychometric properties in children with type 1 diabetes, the PedsQL?3.0 Diabetes Module needs some modifications to be used as a disease-specific quality of life (QOL) measure. Also, more support should be provided for the care of Iranian children with diabetes.