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User-centered design and the development of patient decision aids: protocol for a systematic review
- 作者:Holly O Witteman (1) (2) (3)
Selma Chipenda Dansokho (1) Heather Colquhoun (4) Angela Coulter (5) Michèle Dugas (1) Angela Fagerlin (6) (7) Anik MC Giguere (1) (2) (8) Sholom Glouberman (9) Lynne Haslett (10) Aubri Hoffman (11) Noah Ivers (12) (13) France Légaré (2) (3) Jean Légaré (14) Carrie Levin (15) Karli Lopez (16) Victor M Montori (17) Thierry Provencher (1) Jean-Sébastien Renaud (1) (2) Kerri Sparling (18) Dawn Stacey (19) (20) Gratianne Vaisson (1) Robert J Volk (21) William Witteman (3)
1. Office of Education and Continuing Professional Development ; Faculty of Medicine ; Laval University ; Pavillon Ferdinand-Vandry 2881 ; Quebec City ; QC ; G1V 0A6 ; Canada 2. Department of Family and Emergency Medicine ; Laval University ; 1050 avenue de la Médecine ; Pavillon Ferdinand-Vandry 4617 ; Quebec City ; QC ; G1V 0A6 ; Canada 3. Research Centre of the Centre Hospitalier Universitaire de Québec ; 1 rue de l’Espinay ; H?pital Saint Fran?ois d’Assise D6-727 ; Quebec City ; QC ; G1L 3L5 ; Canada 4. Occupational Science and Occupational Therapy ; Rehabilitation Sciences Building ; 160-500 University Ave ; Toronto ; ON ; M5G 1V7 ; Canada 5. Health Services Research Unit ; Nuffield Department of Population Health ; University of Oxford ; Old Road Campus ; Oxford ; OX3 7LF ; UK 6. Center for Bioethics and Social Sciences in Medicine ; Division of General Medicine ; Department of Internal Medicine ; University of Michigan ; 2800 Plymouth Road ; Building 16 ; Rm. 421W ; Ann Arbor ; MI ; 48109-2800 ; USA 7. VA Health Services Research and Development Center of Excellence ; VA Ann Arbor Healthcare System ; Ann Arbor ; MI ; USA 8. Quebec Centre for Excellence in Aging ; Research Centre of the CHU de Quebec ; St-Sacrement Hospital ; Local L2-08 ; 1050 chemin Sainte-Foy ; Quebec City ; QC ; G1S 4L8 ; Canada 9. Patients Canada ; 3560 Bathurst Street ; Toronto ; ON ; M6A 2E1 ; Canada 10. East End Community Health Centre ; 1619 Queen St.E ; Toronto ; ON ; M4L1G4 ; Canada 11. Department of Community and Family Medicine ; The Dartmouth Institute for Health Policy and Clinical Practice ; Geisel School of Medicine at Dartmouth ; 46 Centerra Parkway (HB3250) ; Lebanon ; NH ; USA 12. Family Practice Health Centre and Institute for Health Systems Solutions and Virtual Care ; Women’s College Hospital ; 77 Grenville Street 4th Floor ; Toronto ; ON ; M5S 1B3 ; Canada 13. Department of Family and Community Medicine ; University of Toronto ; 500 University Avenue ; 5th Floor ; Toronto ; ON ; M5G 1V7 ; Canada 14. Arthritis Alliance of Canada ; 403 rue des érables ; Neuville ; Québec ; G0A 2R0 ; Canada 15. Informed Medical Decisions Foundation ; Healthwise ; Inc ; 40 Court Street ; Boston ; MA ; 02108 ; USA 16. 6811 Baxter Terrace Cir ; Anchorage ; AK ; 99504 ; USA 17. Knowledge and Evaluation Research Unit ; Mayo Clinic ; Rochester ; MN ; 55905 ; USA 18. Six Until Me ; 5600 Post Rd ; Unit 228 ; East Greenwich ; RI ; 02818 ; USA 19. School of Nursing ; University of Ottawa ; 451 Smyth Road (RGN 1118) ; Ottawa ; ON ; K1H 8M5 ; Canada 20. Ottawa Hospital Research Institute ; 725 Parkdale Ave ; Ottawa ; ON ; K1Y 4E9 ; Canada 21. Department of Health Services Research ; The University of Texas MD Anderson Cancer Center ; P.O. Box 301402 ; Houston ; TX ; 77230-1444 ; USA
- 关键词:Patient decision aids ; Decision support ; Shared decision ; making ; Patient education ; Counseling ; User ; centered design ; Human ; centered design ; Patient partnership ; Stakeholder engagement ; Implementation ; Knowledge translation ; Patient ; centered care
- 刊名:Systematic Reviews
- 出版年:2015
- 出版时间:December 2015
- 年:2015
- 卷:4
- 期:1
- 全文大小:84 KB
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2. Longtin Y, Sax H, Leape LL, Sheridan SE, Donaldson L, Pittet D: Patient participation: current knowledge and applicability to patient safety. / Mayo Clin Proc. 2010, 85:53-2. 10.4065/mcp.2009.0248 2009.0248" target="_blank" title="It opens in new window">CrossRef 3. Topic of conversation: / Den Haag. Netherlands: Dutch organization for health and innovation in healthcare; 2010:1-7. 4. Collier R: Federal government unveils patient-oriented research strategy. / Can Med Assoc J. 2011, 183:E993-. 10.1503/cmaj.109-3978 CrossRef 5. Brett J, Staniszewska S, Mockford C, Herron-Marx S, Hughes J, Tysall C, / et al.: Mapping the impact of patient and public involvement on health and social care research: a systematic review. / Health Expect. 2014, 17:637-0. 10.1111/j.1369-7625.2012.00795.x 2012.00795.x" target="_blank" title="It opens in new window">CrossRef 6. Frank L, Basch E, Selby JV: The PCORI perspective on patient-centered outcomes research. / JAMA. 2014, 312:1513-4. 10.1001/jama.2014.11100 2014.11100" target="_blank" title="It opens in new window">CrossRef 7. Stacey D, Legare F, Col NF, Bennett CL, Barry MJ, Eden KB, / et al.: Decision aids for people facing health treatment or screening decisions. / Cochrane Database Syst Rev. 2014., 1: CD001431 8. Makoul G, Clayman ML: An integrative model of shared decision making in medical encounters. / Patient Educ Couns. 2006, 60:301-2. 10.1016/j.pec.2005.06.010 2005.06.010" target="_blank" title="It opens in new window">CrossRef 9. Barry MJ, Edgman-Levitan S: Shared decision making—pinnacle of patient-centered care. / N Engl J Med. 2012, 366:780-. 10.1056/NEJMp1109283 CrossRef 10. Mulley AG, Trimble C, Elwyn G: Stop the silent misdiagnosis: patients-preferences matter. / BMJ. 2012, 345:e6572-. 10.1136/bmj.e6572 CrossRef 11. Elwyn G, O’Connor A, Stacey D, Volk RJ, Edwards A, Coulter A, / et al.: Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. / BMJ. 2006, 333:417. 10.1136/bmj.38926.629329.AE CrossRef 12. Elwyn G, O’Connor AM, Bennett C, Newcombe RG, Politi MC, Durand M-A, / et al.: Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). / PLoS One. 2009, 4:e4705. 10.1371/journal.pone.0004705 CrossRef 13. Coulter A, Kryworuchko J, Mullen PD, Ng CJ, Stillwell D, van der Weijden T: Chapter A: using a systematic development process. In / 2012 update of the international patient decision Aid standards (IPDAS) Collaboration’s background document Edited by: Volk RJ, Llewellyn-Thomas HA. 2012, 1-6. Available at: http://ipdas.ohri.ca/IPDAS-Chapter-A.pdf 14. Coulter A, Stilwell D, Kryworuchko J, Mullen PD, Ng CJ, van der Weijden T: A systematic development proces - 刊物主题:Medicine/Public Health, general; Biomedicine general; Statistics for Life Sciences, Medicine, Health Sciences;
- 出版者:BioMed Central
- ISSN:2046-4053
文摘
Background Providing patient-centered care requires that patients partner in their personal health-care decisions to the full extent desired. Patient decision aids facilitate processes of shared decision-making between patients and their clinicians by presenting relevant scientific information in balanced, understandable ways, helping clarify patients-goals, and guiding decision-making processes. Although international standards stipulate that patients and clinicians should be involved in decision aid development, little is known about how such involvement currently occurs, let alone best practices. This systematic review consisting of three interlinked subreviews seeks to describe current practices of user involvement in the development of patient decision aids, compare these to practices of user-centered design, and identify promising strategies. Methods/design A research team that includes patient and clinician representatives, decision aid developers, and systematic review method experts will guide this review according to the Cochrane Handbook and PRISMA reporting guidelines. A medical librarian will hand search key references and use a peer-reviewed search strategy to search MEDLINE, EMBASE, PubMed, Web of Science, the Cochrane Library, the ACM library, IEEE Xplore, and Google Scholar. We will identify articles across all languages and years describing the development or evaluation of a patient decision aid, or the application of user-centered design or human-centered design to tools intended for patient use. Two independent reviewers will assess article eligibility and extract data into a matrix using a structured pilot-tested form based on a conceptual framework of user-centered design. We will synthesize evidence to describe how research teams have included users in their development process and compare these practices to user-centered design methods. If data permit, we will develop a measure of the user-centeredness of development processes and identify practices that are likely to be optimal. Discussion This systematic review will provide evidence of current practices to inform approaches for involving patients and other stakeholders in the development of patient decision aids. We anticipate that the results will help move towards the establishment of best practices for the development of patient-centered tools and, in turn, help improve the experiences of people who face difficult health decisions. Systematic review registration PROSPERO CRD42014013241
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