Long term follow up of high risk children: who, why and how?

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• 作者：Lex W Doyle (11) (12) (13) (14) (29)
  Peter J Anderson (12) (13) (14)
  Malcolm Battin (15)
  Jennifer R Bowen (16)
  Nisha Brown (11) (12) (17)
  Catherine Callanan (14)
  Catherine Campbell (20)
  Samantha Chandler (29)
  Jeanie Cheong (11) (13) (14)
  Brian Darlow (18)
  Peter G Davis (11) (14)
  Tony DePaoli (19)
  Noel French (20)
  Andy McPhee (21)
  Shusannah Morris (29)
  Michael O鈥機allaghan (22)
  Ingrid Rieger (23) (24)
  Gehan Roberts (12) (13) (25)
  Alicia J Spittle (13) (26)
  Dieter Wolke (27)
  Lianne J Woodward (28)
  
  11. Department of Obstetrics and Gynaecology ; The University of Melbourne ; Melbourne ; Victoria ; Australia
  12. Department of Paediatrics ; The University of Melbourne ; Melbourne ; Victoria ; Australia
  13. Victorian Infant Brain Studies ; Clinical Sciences ; Murdoch Childrens Research Institute ; Parkville ; Victoria ; Australia
  14. Premature Infant Follow-up Program ; The Royal Women鈥檚 Hospital ; Parkville ; Victoria ; Australia
  29. Department of Obstetrics and Gynaecology ; The Royal Women鈥檚 Hospital ; 20 Flemington Road ; Parkville ; Victoria ; 3052 ; Australia
  15. National Women鈥檚 Hospital ; Auckland City Hospital ; Auckland ; New Zealand
  16. Department of Neonatology ; Royal North Shore Hospital ; Sydney ; New South Wales ; Australia
  17. Newborn Services ; The Royal Women鈥檚 Hospital ; Parkville ; Victoria ; Australia
  20. Neonatal Paediatrics ; King Edward Memorial Hospital ; Perth ; Western Australia ; Australia
  18. Department of Paediatrics ; University of Otago ; Christchurch ; New Zealand
  19. Department of Paediatrics ; Royal Hobart Hospital ; Hobart ; Tasmania ; Australia
  21. Neonatal Services ; Women鈥檚 and Children鈥檚 Health Network ; North Adelaide ; South Australia ; Australia
  22. Paediatrics and Child Health ; Mater Clinical School ; University of Queensland ; Brisbane ; Queensland ; Australia
  23. Department of Neonatal Medicine ; Royal Prince Alfred Hospital ; University of Sydney ; Sydney ; New South Wales ; Australia
  24. Faculty of Medicine ; University of Sydney ; Sydney ; New South Wales ; Australia
  25. Community Child Health ; The Royal Children鈥檚 Hospital ; Parkville ; Victoria ; Australia
  26. Department of Physiotherapy ; The University of Melbourne ; Parkville ; Victoria ; Australia
  27. Department of Psychology ; The University of Warwick ; Coventry ; UK
  28. Department of Pediatric Newborn Medicine ; Brigham and Women鈥檚 Hospital ; Harvard Medical School ; Boston ; USA
  
• 关键词：Infant ; Low birth weight ; Preterm ; High ; risk ; Follow ; up ; Cognition ; Development ; Growth
• 刊名：BMC Pediatrics
• 出版年：2014
• 出版时间：December 2014
• 年：2014
• 卷：14
• 期：1
• 全文大小：404 KB
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• 刊物主题：Pediatrics; Internal Medicine;
• 出版者：BioMed Central
• ISSN：1471-2431

文摘

Background Most babies are born healthy and grow and develop normally through childhood. There are, however, clearly identifiable high-risk groups of survivors, such as those born preterm or with ill-health, who are destined to have higher than expected rates of health or developmental problems, and for whom more structured and specialised follow-up programs are warranted. Discussion This paper presents the results of a two-day workshop held in Melbourne, Australia, to discuss neonatal populations in need of more structured follow-up and why, in addition to how, such a follow-up programme might be structured. Issues discussed included the ages of follow-up, and the personnel and assessment tools that might be required. Challenges for translating results into both clinical practice and research were identified. Further issues covered included information sharing, best practice for families and research gaps. Summary A substantial minority of high-risk children has long-term medical, developmental and psychological adverse outcomes and will consume extensive health and education services as they grow older. Early intervention to prevent adverse outcomes and the effective integration of services once problems are identified may reduce the prevalence and severity of certain outcomes, and will contribute to an efficient and effective use of health resources. The shared long-term goal for families and professionals is to work toward ensuring that high risk children maximise their potential and become productive and valued members of society.