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Elsevier电子期刊(12)
在“
Elsevier电子期刊
”中,
命中:
12
条,耗时:小于0.01 秒
在所有数据库中总计命中:
12
条
1.
When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority
作者:
Kyle B. Brothers
;
MD
;
PhD
1
;
kyle.brothers@louisville.edu" class="auth_mail" title="E-mail the corresponding author
;
Ingrid A. Holm
;
MD
;
MPH
2
;
3
;
4
;
Janet E. Childerhose
;
PhD
5
;
Armand H.M. Antommaria
;
MD
;
PhD
6
;
Barbara A. Bernhardt
;
MS
;
CGC
7
;
Ellen Wright Clayton
;
MD
;
JD
8
;
Bruce D. Gelb
;
MD
9
;
Steven Joffe
;
MD
;
MPH
10
;
John A. Lynch
;
PhD
11
;
Jennifer B. McCormick
;
PhD
12
;
Laurence B. McCullough
;
PhD
13
;
D. Williams Parsons
;
MD
;
PhD
14
;
Agnes S. Sundaresan
;
MD
15
;
Wendy A. Wolf
;
PhD
2
;
Joon-Ho Yu
;
MPH
;
PhD
16
;
Benjamin
S.
Wilfond
;
MD
17
;
on behalf of the Pediatrics Workgroup of the Clinical Sequencing Exploratory Research (CSER) Consortium
Benjamin
E. Berkman
;
JD
;
MPH
;
Leslie G. Biesecker
;
MD
;
Sara C. Hull
;
PhD
;
Sawona Biswas
;
MSc
;
MS
;
CGC
;
Wendy K. Chung
;
MD
;
PhD
;
Barbara Koenig
;
PhD
;
Lisa S. Lehmann
;
MD
;
PhD
;
Michelle Lewis
;
MD
;
JD
;
Amy L. McGuire
;
JD
;
PhD
;
Melody J. Slashinski
;
PhD
;
MPH
;
Lainie F. Ross
;
MD
;
PhD
;
Joseph S. Salama
;
BS
;
Debra Skinner
;
PhD
;
Holly K. Tabor
;
PhD
;
Susan M. Wolf
;
JD
;
the Consent
;
Education
;
Regulation
;
Consultation Workgroup of the Electronic Medical Records
;
Genomics (eMERGE) Network
;
&lowast
;
关键词:
IRB
;
Institutional Review Board
;
OHRP
;
Office of Human Research Protections
;
SACHRP
;
Secretary's Advisory Committee on Human Research Protections
刊名:The Journal of Pediatrics
出版年:2016
2.
Assent in Research: The Voices of Adolescents
作者:
Christine Grady
;
R.N.
;
Ph.D.
a
;
cgrady@nih.gov" class="auth_mail
;
Lori Wiener
;
Ph.D.
b
;
Emily Abdoler
;
M.D.
c
;
Emily Trauernicht
d
;
Sima Zadeh
;
Psy.D.
b
;
Douglas S. Diekema
;
M.D.
;
M.P.H.
e
;
Benjamin
S.
Wilfond
;
M.D.
e
;
David Wendler
;
Ph.D.
a
关键词:
Adolescents
;
Clinical research
;
Assent
刊名:Journal of Adolescent Health
出版年:May, 2014
3.
Fuzzy Images: Ethical Implications of Using Routine Neuroimaging in Premature Neonates to Predict Neurologic Outcomes
作者:
Paul C. Mann
;
David E. Woodrum
;
Benjamin
S.
Wilfond
关键词:
CP
;
Cerebral palsy
;
CT
;
Computerized tomography
;
HUS
;
Head ultrasound
;
IVH
;
Intraventricular hemorrhage
;
MDI
;
Mental Developmental Index
;
MRI
;
Magnetic resonance imaging
;
NDI
;
Neurodevelopmental impairment
;
QoL
;
Quality of life
;
WMI
;
White matter injury
刊名:The Journal of Pediatrics
出版年:2013
4.
Li-Fraumeni syndrome: report of a clinical research workshop and creation of a research consortium
作者:
Phuong L. Mai
;
David Malkin
;
Judy E. Garber
;
Joshua D. Schiffman
;
Jeffrey N. Weitzel
;
Louise C. Strong
;
Oliver Wyss
;
Luana Locke
;
Von Means
;
Maria Isabel Achatz
;
Pierre Hainaut
;
Thierry Frebourg
;
D. Gareth Evans
;
Eveline Bleiker
;
Andrea Patenaude
;
Katherine Schneider
;
Benjamin
Wilfond
;
June A. Peters
;
Paul M. Hwang
;
James Ford
;
et al.
关键词:
Li-Fraumeni syndrome
;
hereditary cancer predisposition syndrome
;
TP53 mutations
刊名:Cancer Genetics
出版年:2012
5.
A randomized trial of genetic and environmental risk assessment (GERA) for colorectal cancer risk in primary care: Trial design and baseline findings
作者:
Ronald E. Myers
;
Sharon L. Manne
;
Benjamin
Wilfond
;
R
;
a Sifri
;
Barry Ziring
;
Thomas A. Wolf
;
James Cocroft
;
Amy Uel
;
Anett Petrich
;
Heidi Swan
;
Melissa DiCarlo
;
David S. Weinberg
关键词:
Decision making
;
Colorectal neoplasms
;
Mass screening
;
Risk assessment
;
Genetic screening
刊名:Contemporary Clinical Trials
出版年:2011
6.
Pediatric Biobanks: Approaching Informed Consent for Continuing Research After Children Grow Up
作者:
Aaron J. Goldenberg
;
Sara Ch
;
ros Hull
;
Jeffrey R. Botkin
;
Benjamin
S.
Wilfond
刊名:The Journal of Pediatrics
出版年:2009
7.
Therapeutic misconception in early phase gene transfer trials
作者:
Gail E. Henderson
;
Michele M. Easter
;
Catherine Zimmer
;
Nancy M.P. King
;
Arlene M. Davis
;
Barbra Bluestone Rothschild
;
Larry R. Churchill
;
Benjamin
S.
Wilfond
and Daniel K. Nelson
关键词:
USA
;
Clinical trials
;
Informed consent
;
Therapeutic misconception
;
Gene transfer research
;
Benefit
刊名:Social Science and Medicine
出版年:2006
8.
Balancing benefits and risks for cystic fibrosis newborn screening: implications for policy decisions
作者:
Benjamin
S.
Wilfond
;
Richard B. Parad
;
Norman Fost
关键词:
major depression
;
children
;
adolescents
;
SSRI
刊名:The Journal of Pediatrics
出版年:2005
9.
Policy issues for expanding newborn screening programs: The cystic fibrosis newborn screening experience in the United States
作者:
Benjamin
S.
Wilfond
;
Sarah E. Gollust
关键词:
major depression
;
children
;
adolescents
;
SSRI
刊名:The Journal of Pediatrics
出版年:2005
10.
Ethical issues in newborn screening research: lessons from the Wisconsin cystic fibrosis trial
作者:
Holly A. Taylor
;
Benjamin
S.
Wilfond
刊名:The Journal of Pediatrics
出版年:2004
1
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