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CNKI学位论文(25)
知网期刊论文(1)
在“
Elsevier电子期刊
”中,
命中:
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条,耗时:小于0.01 秒
在所有数据库中总计命中:
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1.
Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB)
作者:
Yaffa R. Rubinstein
;
Stephen C. Groft
;
Ronald
Bartek
;
Kyle Brown
;
Ronald
A. Christensen
;
Elaine Collier
;
Amy Farber
;
Jennifer Farmer
;
John H. Ferguson
;
Christopher B. Forrest
;
Nicole C. Lockhart
;
Kate
关键词:
Rare diseases
;
Patient registry
;
Disease registry
;
Rare disease
;
Patient advocacy
;
Biospecimen
;
Biospecimen repositories
;
Clinical data
;
Electronic health record
刊名:Contemporary Clinical Trials
出版年:2010
1
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2010年(1)
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